The day I've been dreading

[Toony Oony]

I wrote on TP in December that Mum was on a big downward spiral, and various actions were being taken by the CH for End of Life care. I didn't think she would make it to her 91st birthday and Christmas - but somehow she did. The New Year came and she rallied - she still needed a lot of care, but we had very happy visits, she joined in some of the activities and discovered a passion for mango smoothies!

Last Friday I noticed she had a bit of a cough, on Sunday my daughter noticed it too, on Monday it was much worse and she was really not herself and the CH said she would see the GP. We thought it was a chest infection as everyone seems to have had or has a cough at present. Yesterday I had to be 120 miles away for the whole day and evening. 5 mins from my first appointment and the CH rang. The diagnosis was pneumonia and evidently Mum was in a poor way but 'holding her own'. We went to the first appointment and then drove as swiftly as possible to the CH. My poor Mum, she was so agitated, her eyes closed, reaching out to something we could not see and with the most hideous cough. She had started antibiotics, but I had already stated DNR and no hospitalisation. My daughter and I stayed with her for about 4 hours, and when she seemed to be calmer and more peaceful, we came home. As I write this I am about to ring the CH for an update and get ready to go in again. This has happened so quickly.
The CH have been absolutely outstanding. The love, care and dedication both to Mum and ourselves has been incredible.
I love my Mum so much, but I want this awful, upsetting and degrading disease to be over for her now. It's over 6 years since she was diagnosed.
I don't know what today will bring, I just want to continue to do the best I can for her and hope she is not suffering and will soon be with my Dad.

 

[TNJJ]

I wrote on TP in December that Mum was on a big downward spiral, and various actions were being taken by the CH for End of Life care. I didn't think she would make it to her 91st birthday and Christmas - but somehow she did. The New Year came and she rallied - she still needed a lot of care, but we had very happy visits, she joined in some of the activities and discovered a passion for mango smoothies!

Last Friday I noticed she had a bit of a cough, on Sunday my daughter noticed it too, on Monday it was much worse and she was really not herself and the CH said she would see the GP. We thought it was a chest infection as everyone seems to have had or has a cough at present. Yesterday I had to be 120 miles away for the whole day and evening. 5 mins from my first appointment and the CH rang. The diagnosis was pneumonia and evidently Mum was in a poor way but 'holding her own'. We went to the first appointment and then drove as swiftly as possible to the CH. My poor Mum, she was so agitated, her eyes closed, reaching out to something we could not see and with the most hideous cough. She had started antibiotics, but I had already stated DNR and no hospitalisation. My daughter and I stayed with her for about 4 hours, and when she seemed to be calmer and more peaceful, we came home. As I write this I am about to ring the CH for an update and get ready to go in again. This has happened so quickly.
The CH have been absolutely outstanding. The love, care and dedication both to Mum and ourselves has been incredible.
I love my Mum so much, but I want this awful, upsetting and degrading disease to be over for her now. It's over 6 years since she was diagnosed.
I don't know what today will bring, I just want to continue to do the best I can for her and hope she is not suffering and will soon be with my Dad.

So sorry to hear this .Sending ((hugs))).Please keep us updated.

 

[canary]

Yes, Its heartbreaking when you suddenly realise that they have reached this stage, however much you know that it is coming.

Holding your virtual hand
((((((((((((((((((((((((((((((((((((((((((((hugs))))))))))))))))))))))))))))))))

 

[Sarasa]

So sorry to hear this @Toony Oony. Thinking of you both {{{hugs}}}

 

[Bunpoots]

Thinking of you @Toony Oony

 

[nellbelles]

Sending you strength @Toony Oony

 

[jugglingmum]

Sending hugs and thinking of you

 

[Izzy]

I’m so sorry to hear your news @Toony Oony. Wishing your mum peace and wishing you strength.

 

[Shedrech]

oh @Toony Oony
best wishes to all your family

 

[Wildflowerlady]

Thinking of you @Toony Oony.
I'm glad to hear that mum has such a lovely Care Home to look after her and your family.
Hugs sent to you all.

 

[CWR]

I wrote on TP in December that Mum was on a big downward spiral, and various actions were being taken by the CH for End of Life care. I didn't think she would make it to her 91st birthday and Christmas - but somehow she did. The New Year came and she rallied - she still needed a lot of care, but we had very happy visits, she joined in some of the activities and discovered a passion for mango smoothies!

Last Friday I noticed she had a bit of a cough, on Sunday my daughter noticed it too, on Monday it was much worse and she was really not herself and the CH said she would see the GP. We thought it was a chest infection as everyone seems to have had or has a cough at present. Yesterday I had to be 120 miles away for the whole day and evening. 5 mins from my first appointment and the CH rang. The diagnosis was pneumonia and evidently Mum was in a poor way but 'holding her own'. We went to the first appointment and then drove as swiftly as possible to the CH. My poor Mum, she was so agitated, her eyes closed, reaching out to something we could not see and with the most hideous cough. She had started antibiotics, but I had already stated DNR and no hospitalisation. My daughter and I stayed with her for about 4 hours, and when she seemed to be calmer and more peaceful, we came home. As I write this I am about to ring the CH for an update and get ready to go in again. This has happened so quickly.
The CH have been absolutely outstanding. The love, care and dedication both to Mum and ourselves has been incredible.
I love my Mum so much, but I want this awful, upsetting and degrading disease to be over for her now. It's over 6 years since she was diagnosed.
I don't know what today will bring, I just want to continue to do the best I can for her and hope she is not suffering and will soon be with my Dad.

Everyone in the TP family will be thinking of you at this terrible time. It's strange, you love your mother, but you don't want this to go on. Keep us updated.

 

[Woo2]

Thinking of you all, sending strength and hugs . X

 

[Toony Oony]

Thank you all for your kind and loving replies. I am currently sat at Mums side and she is struggling so much it is pitiful to watch and breaking me up inside whilst trying to be strong. A Senior member from the CH Head Office whom I know has just been in. She said ‘this is what the end of dementia looks like’ . So sad. CH continue to be absolutely fantastic.

 

[AliceA]

So sad for you but it is good she is surrounded bu so much care. Thinking of you in my thoughts and prayer, sending a big hug and love. Xxx

 

[DesperateofDevon]

Thank you all for your kind and loving replies. I am currently sat at Mums side and she is struggling so much it is pitiful to watch and breaking me up inside whilst trying to be strong. A Senior member from the CH Head Office whom I know has just been in. She said ‘this is what the end of dementia looks like’ . So sad. CH continue to be absolutely fantastic.

Sending you love & (((hugs)))
How lovely the CH sounds xx

 

[Jale]

So sad to be reading this, keeping you all in our thoughts. Take care x

 

[Pete1]

I really feel for you and your family @Toony Oony. Stay strong.

 

[RosettaT]

Bless you and your mum,

(((Hugs)))

 

[Batsue]

Thinking of you @Toony Oony

 

[LynneMcV]

Such a difficult stage - thinking of you and your family.