1. Our next Q&A session is on the topic of Christmas and dementia.This time we want our Q&A to involve our resident experts, you! Share tips and advice on navigating Christmas here in this thread.

    Pop by and post your questions or if you prefer you can email your question to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.
  1. rosy18

    rosy18 Registered User

    Jul 23, 2016
    1,279
    Female
    Blackpool
    I just wanted to say after joining TP I feel so much better.
    Every night once I have got Mum settled I'm straight onto my tablet and checking out daily threads where through reading all your post I have gained so much knowledge. I just wanted to thank all the TP users for sharing their experiences and making me feel not so isolated.
     
  2. HillyBilly

    HillyBilly Registered User

    Dec 21, 2015
    1,947
    Ireland
    Hi Rosy18 - it's great here isn't it? Of course it would be so much better if we didn't have to be here at all but it is an absolute lifeline. Hope all's well with you this evening x
     
  3. rosy18

    rosy18 Registered User

    Jul 23, 2016
    1,279
    Female
    Blackpool
    Cheers HillyBilly and yes thank you Mum only anxious at sundowning for around an hour this evening but now fast asleep to calm night. Hope all is well with you also
     
  4. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,884
    Kent
    It`s how it started for all of us Rosy. Welcome. :)
     
  5. Kevinl

    Kevinl Registered User

    Aug 24, 2013
    4,776
    Salford
    It's got to be one of the best self help sites around. I had so many issues with my mother a few years ago getting help and advise without the internet and to be fair many are still in that position. I regularly talk (mainly to elderly partners) of the residents and they don't have the internet or indeed a computer. I feel so sorry for them as they get pushed from pillar to post for every bit of help and advise and have no ability to check if what they're told is right or wrong,
    It's a sad situation when help from peers and charities have to pick up the pieces in a situation like this.
    K
     
  6. LadyA

    LadyA Registered User

    Oct 19, 2009
    13,540
    Ireland
    None of us ever wanted to be here - and many of us are no longer actively caring for our loved ones with dementia. And when we started on this site, we could never see that day coming. But we have survived and we are still here. TP is like one of those huge, multi-generational extended families, where a problem shared is a problem not just halved, but shared out among many.
     
  7. camkam

    camkam Registered User

    Jul 20, 2015
    62
    I agree, it's one of the best forums available, and whatever problem you have, someone has already experienced it and/or can offer good advice. Sometimes people outside of the family unit can look at problems more objectively. I think TP is brilliant! It also makes you realise that a lot of people are in much worse situations than you!


    Sent from my iPhone using Talking Point
     
  8. care2share

    care2share Registered User

    Jun 14, 2015
    92
    London
    I so agree too. It helps take away some of the loneliness of the situation. I take my hat off to those who are still TPing after the care situation has ended for them. Caring, whether your loved one is in a care home or not, whether parent, partner or friend is very difficult. It's a very bumpy ride. It would be so easy for these folks to just then consider it an S.E.P. "somebody else's problem" but they don't, for which I'm so grateful. I often look at the amount of posts someone has made and wonder how many hours, weeks, months or years they have spent helping others. Thank you so much TPers.
     
  9. WORRIER123

    WORRIER123 Registered User

    Oct 1, 2015
    1,174
    It's nice to chat and rant and ask questions and nobody judges you
     
  10. rosy18

    rosy18 Registered User

    Jul 23, 2016
    1,279
    Female
    Blackpool
    So very true Kevin1 but thank God for people like yourself with so much knowledge to share re this painful journey we are all on
     
  11. rosy18

    rosy18 Registered User

    Jul 23, 2016
    1,279
    Female
    Blackpool
    Thanks everyone TP I feel has become my life saver! Xx
     
  12. Georgina63

    Georgina63 Registered User

    Aug 11, 2014
    954
    Absolutely agree. TP has been so helpful, from the outset when my parents were diagnosed with AD and throughout until recently with their move into a CH. Amazing group of people! Gx
     
  13. Louby65

    Louby65 Registered User

    Mar 26, 2014
    619
    Scotland
    Hi rosy18. TP is definitely something that has been a stable influence on this journey with my mum . I have made many virtual friends through it , whose wise words have helped me tremendously . You are never alone and no question is ever deemed inappropriate or 'silly', so ask away and someone will be along to help. I hope you and your mum are doing ok ? I look after my mum too . It's difficult at times , as you will agree, but we wouldn't have it any other way . Remember to take care of yourself too . Best wishes to you both , Lou X
     
  14. jorgieporgie

    jorgieporgie Registered User

    Mar 2, 2016
    1,985
    YORKSHIRE
    Mine too Rosy, Welcome and look forward to getting to know you xxxx
     
  15. rosy18

    rosy18 Registered User

    Jul 23, 2016
    1,279
    Female
    Blackpool
    Thank you so much Lou and you are so right despite the awful times Mum is still here and I cherish each day.
    I hope you and your Mum are doing OK also xx
     
  16. rosy18

    rosy18 Registered User

    Jul 23, 2016
    1,279
    Female
    Blackpool
    And me you Jorgieporgie xxx:)
     
  17. Louby65

    Louby65 Registered User

    Mar 26, 2014
    619
    Scotland
    No problem Rosy18, keep posting and remember we are always here to listen . Best wishes to you and your mum , Lou xx
     
  18. mot

    mot Registered User

    May 4, 2016
    73
    USA
    I, too, thank all of you TP users!!!! This has been a life saving experience for me!! I look forward to my quiet time every day to log in and read the most recent posts. There's always something that makes me smile, cry, and gives me HOPE for tomorrow. I am so thankful you all are faithful to share and post!

    This is a journey. We each begin feeling alone. Overwhelmed. Defeated. Talking Point provides a safe place to share questions, concerns, heartaches and issues surrounding our roles as caregivers.

    Grateful, I am!!!!
     
  19. Rageddy Anne

    Rageddy Anne Registered User

    Feb 21, 2013
    5,984
    Cotswolds
    It does start to feel like a big supportive family...it's a life saver for me too, so many kind and understanding people....THANKYOU TP.
     

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