tests clear but problem still exists

Discussion in 'Memory concerns and seeking a diagnosis' started by scb, Jun 27, 2019.

  1. scb

    scb New member

    Jun 27, 2019
    2
    I have a partner who has been experiencing confusion, difficulty with using common sense, remembering appointments, and generally becoming rather vague. He has had CT and PET scans as well as many cognitive tests and his results are good. However, he has problems understanding and remembering normal directions or requests. He has not had a stroke or heart attack and is on statins and BP meds. How can I find out what is wrong?
     
  2. LadyA

    LadyA Registered User

    Oct 19, 2009
    13,468
    Ireland
    Hello, @scb and welcome to Talking point.
    My husband started out in a similar way. I knew he had dementia, his doctor knew, but for a very long time, all tests came back fine.
    All you can do is keep a log or diary of incidents, behavior and times of forgetfulness, and let the doctors see that. Sometimes, we just have to wait for the situation to become clearer.
     
  3. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    68,896
    Kent
    Hello @scb

    My husband wasn`t tested, it was only with hindsight we realised his dementia had been developing for years.
    Even so, by the time he was tested and diagnosed, his scans showed only slight brain shrinkage.
    Perhaps with some people it is a waiting game even though you know something is wrong.

    I agree with keeping a log or diary of areas which cause concern. It is what I did and the GP did take action eventually.
     
  4. Shedrech

    Shedrech Volunteer Moderator

    Dec 15, 2012
    7,564
    Yorkshire
    hello @scb
    a warm welcome from me too
    I guess if your husband has undergone the assessment you describe, he has also been checked over for low vitamin levels, stress, depression and even thyroid function as there are other reasons to suffer symptoms similar to those of dementia
    keepong a journal will help to give the medics a wider petspective on whatever is going on
     
  5. Sirena

    Sirena Registered User

    Feb 27, 2018
    1,327
    Female
    There was a thread on here recently where we were talking about how the NHS encourages us to get an early diagnosis, and it included a link to a consultant who said that actually it is often pretty difficult to diagnose early on, it's only as the illness progresses that you see definite signs on tests and scans. So trying for early diagnosis is a bit of a double edged sword really. My mother was initially told there was nothing wrong with her and to come back in a year, but within 9 months she had deteriorated enough that she returned to the memory clinic and the tests showed clear problems.
     
  6. scb

    scb New member

    Jun 27, 2019
    2
    Thank you everyone- I was beginning to think I was imagining these developments- I’m resolved to keep the journal as you suggest.
     
  7. hillyjay

    hillyjay Registered User

    Jun 14, 2019
    56
    Initially my husband did well on tests even though I knew something was wrong. After all, we live with the person, don’t we? Eventually his scans showed deterioration ‘commensurate with Alzheimer’s in its initial stages’ however I’d suspected that for quite a while.

    5 years down the line and he is still pretty good and most people who don’t know him well don’t realise he has a problem. I should be grateful, I know, for the slow progress up to now but maybe that’s in part due to him getting put on meds at a very early stage. I agree with others who have suggested keeping a log. I did this and it helped in getting a diagnosis.
     
  8. Sirena

    Sirena Registered User

    Feb 27, 2018
    1,327
    Female
    My mother has Alzheimers yet was never put on any medication. Donepezil was not offered, Memantine was later suggested but after ruminating about it for a year they decided against it.
     
  9. Countryboy

    Countryboy Registered User

    Mar 17, 2005
    1,405
    Male
    Cornwall
    hi I have dementia and did extremely well on most of the various MMSE assessment test let’s face it if you know the answer or subject you should be ok , even now after 20 years I imagine I would get a fairly high score my diagnoses was confirmed after having PET & SPECT brain scans but I’m dancing along fine no worries
     
  10. hillyjay

    hillyjay Registered User

    Jun 14, 2019
    56
    Hi countryboy, it’s good to hear you are getting along fine with no worries. It gives others hope that things need not necessarily be bleak. Best wishes to you.
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.