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Terry Pratchett has Alzheimer's

Discussion in 'Dementia-related news and campaigns' started by Sandy, Dec 12, 2007.

  1. Sandy

    Sandy Registered User

    Mar 23, 2005
  2. connie

    connie Registered User

    Mar 7, 2004
    Hi Sandy, thanks for the link. So sad, once again, whatever age.
  3. Lynne

    Lynne Registered User

    Jun 3, 2005
    At the risk of being hard-boiled about it ...

    Apart from initial dismay, my second thought was along the lines of "the more high-profile people who come out about it, the more likelihood there is of it being taken more seriously by the world at large" (by which I suppose I mean NHS, Govt. Ministers who control the purse strings etc.)
  4. Cymbaline

    Cymbaline Registered User

    Aug 23, 2007
    True. I saw a suggestion from a fan on a forum that fans should donate the price of a paperback to Alzheimer's research. I know that's not going to happen but it would be so great if they did. Every little bit helps.

    It might also help change the perception that Alzheimer's is an old person's disease.
  5. jenniferpa

    jenniferpa Volunteer Moderator

    Jun 27, 2006
    I always wonder what my response is when I hear such news. With the proviso that NO ONE should have to be diagnosed with this I swing wildly from hard-nosed (as in why not? so many other people get it) to shocked (such an awful thing to happen) to selfish (what - this is my favourite author - no more books??).

    I suppose I end up in a state of hopeful resignation. Resignation because until there's a cure, this will be news that thousands of families hear every day and hopeful because the more famous people that are diagnosed, the less hidden it is.
  6. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    ..............and the more intelligent the person is known to be, the less people will think of it as a `mental illness` of those with lower intellect, those whose brains have been allowed to be stagnate, the unprofessionals.

    I must admit to being guilty of the `if you don`t use it, you lose it`, brigade. :eek: I soon realized it might apply to muscles, but definitely not to the brain.
  7. IT_man

    IT_man Registered User

    Dec 10, 2006
    very sad

    one my fav authors and I have been a fan since the early 80's - loved Colour of Magic and just kept buying...

    My daughter just finished Wee Free Men and was also sad to hear this news.

    Saw a discussion about this on another forum and someone had posted a link to www.alzheimers.org.uk to allow people to find out more.

  8. Skye

    Skye Registered User

    Aug 29, 2006
    SW Scotland
    I love his own descriptive word for AD -- an 'embuggerance'.

    I don't think any of us would argue with that!
  9. Margarita

    Margarita Registered User

    Feb 17, 2006
    What is '' phantom stroke '' I know what a stroke is , also meaning
    of phantom , but why together .

    Does it mean he thought he had a stroke , but really it was down to having AZ ?

    Pardon me for if I sound ignorant .
  10. jenniferpa

    jenniferpa Volunteer Moderator

    Jun 27, 2006
    You and me both Maggie. I vaguely remember reading something about him being taken ill earlier in the year, but this is a term I am not familiar with.
  11. May

    May Registered User

    Oct 15, 2005
    Mine too, his books can be read on so many levels. As Jennifer said, I too swing between "oh how awful" and well why not? as thousands cope with this 'embuggerance'(I loved his description...)every day/week/year. More power to him for 'going public'. Such very sad news.
  12. I found this article from the Daily Mail which explains what he means by a phantom stroke.


    Basically, he had a stroke but didn't know it at the time. I remember being very interested in this article because this is what I believe has happened to my mum, though she still hasn't been officially diagnosed with anything.

    Terry Pratchett is my husband's favourite author, we're all very shocked and upset here, the list of sufferers just keeps growing :(
  13. Sydney

    Sydney Registered User

    Dec 20, 2007
    You underestimate TPs fans.Lots of people I know are doing this. I myself am here because I was looking for a place to donate. I usually donate money to HIV&Aids charities instead of sending christmas cards, but this year I am going to donate the same amount to Alzheimers research too.

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