1. Expert Q&A: Living well as a carer - Thurs 29 August, 3-4pm

    As a carer for a person living with dementia, the needs of the person you care for will often come before your own. You may experience a range of difficult emotions and you may not have the time to do all the things you need to do. Caring can have a big impact on both your mental and physical health, as well as your overall wellbeing.

    Angelo, our Knowledge Officer (Wellbeing) is our expert on this topic. He will be here to answer your questions on Thursday 29 August between 3-4pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

Terry Pratchet donates $1million for AZ research

Discussion in 'Dementia-related news and campaigns' started by Mameeskye, Mar 13, 2008.

  1. Mameeskye

    Mameeskye Registered User

    Aug 9, 2007
    1,669
    NZ
  2. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    Hi, he was speaking on the Jeremy Vine show on Radio 2 today.

    Caught the interview. He sounded so positive.

    Agree Memmenskye, let hope it does just that.
     
  3. kiytyn

    kiytyn Registered User

    Mar 7, 2008
    16
    ramsey, isle of man
    i was so upset to hear about his diagnoses last year. the man's a genius, and i'm a big fan. judging by that interview he's going to approach his illness with the same worldly-wise wit that has made his books best sellers. all praise to pratchett.
     
  4. gigi

    gigi Registered User

    Nov 16, 2007
    7,788
    East Midlands
    Have just seen him on the news..the Telegraph ran an article today...in which he states that in most cases ..alongside the sufferer you will find a spouse suffering too..(sorry..don't know how to show you the link..:eek:)

    A brave man..
     
  5. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    A point to be raised

    Not sure if it was something he (Terry Pratchet) said, or a point that was raised after his interview today.

    'Alzheimer's' is not very fashionable, i.e. flavour of the month.
    Why? people do not die of AD, more with the disease.

    Not true. Is it not time we started to challenge this?

    Couple of people who responded to the J.Vine program brought up the same reaction.

    We have to challenge the public awareness, which should filter through to the powers that be, that like 'cancer, "ALZHEIMEIR'S kills".
     
  6. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    On other thing that Terry Pratchet did say was:

    "Any monies he has will only help cushion his disease and the inevitable outcome. Nothing will stop/cure him?"

    Where ARE WE GOING WRONG?
     
  7. Chris

    Chris Registered User

    May 20, 2003
    243
    Terry Pratchet's donation to research

    Hi Connie and everyone

    Terry Pratchet has donated half a million pounds (One million dollars) to the Alzheimer's Research Trust, based in Cambridge. This is a much respected research organisation in the UK that the Alzheimer's Society has and I think , is , partnering with on one or two projects.

    Why then, in the various parts of the main Alzheimer's Society website reporting on Terry Pratchet today, has the name Alzheimer's Research Trust been omitted ? Maybe you could find out Connie please ?

    At the moment readers may put 2 and 2 together at the way the reports on Terry Pratchets generous donation to "research" have been crafted on this website , and think that it is the Alzheimer's Society he has supported. Is this intentional ? if not, why not mention and give credit to the Alzheimer's Research Trust?

    Not until all organisations work together - in a total and holistic way, will we get anywhere. Endless empire building and creation of a monopoly (as we have seen in other areas of life) will not serve us well, in my opinion.
     
  8. nemesisis

    nemesisis Registered User

    May 25, 2006
    100
    huge thanks

    its so great that a well known person such as he is, is willing to campaign on behalf of us all suffering with a person we love suffering with this. And the fact that he has admitted that he has also been diagnosed with Alzheimers (how many well known people have done that?) He is a very brave man and I am sure we all support and applaud him
     
  9. Chris

    Chris Registered User

    May 20, 2003
    243
     
  10. Kate P

    Kate P Registered User

    Jul 6, 2007
    565
    Merseyside
    I too find it so frustrating that the general belief is that dementia does not kill people.

    I don't blame these people because I didn't know that it did until it happened to our family but it does need to come out into the general domain - dementia does kill.

    I've started telling people this when they make comment on it - my mum started her dementia at 56 - she has FTD which means her maximum life span is ten years - that will only make her 66. Right now she's in perfect physical health and the thing that will kill her is the dementia - as we understand it most likely she will not be able to swallow anymore and will die from complications from that.

    Why isn't it more widely known - it is a very hush, hush sort or illness that no one wants to talk about.
     
  11. janjan

    janjan Registered User

    Jan 27, 2006
    229
    Birmingham
    What's the matter with people, arhhhhh.
    My dad would have been dead a long time ago if there had not have been carer's and his nursing staff and all the lovely hard working caring staff to look after him.
    Are people under the illusion that when you have dementia you aren't really having your mind wiped of all your memory of ,EVERYTHING.
    Including. Which room is it you do your cooking?
    What is it that you cook on?
    How do you work your cooker?
    How can a body function if you are unable to eat? luckily mom looked after him, before he had to go into a nursing home over a year ago. It gets me so mad, people don't want to know.
    I'm sorry to hear about Terry Pratchet. I've read so many of his books, and the money he has donated will be of help for the AZ researching. Such a shame a brilliant writer, such wit. :(
     

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