Hi,
At the start of covid my dad was diagnosed with terminal leukemia and alzheimers, and I became his carer.
Over these 2 years he seems to get worse every day e.g. Speech starting to slurr, struggling to use a knife and fork.
But what worries me most is he keeps his right hand clenched really tight to the point where when I tell him to open his hand and excersise it, his knuckles are painful.
Also I've noticed if he is left alone, watching TV or something, I will often return to see him in a sleep like state but with his eyes open just staring at something. As if he is fully in a world of his own or complete cognitive shut down, he often won't notice me return and if I talk to him it will startle him back to normal.
Are these common symptoms, does anyone else experience this?
I never used to get upset but for the last few months I cry daily.
I lost my mum to cancer a few years ago and I hate watching dad slowly dying also with nothing I can do to stop it..
His personality has changed quite a lot and things he has liked and done for years have changed now, it's like he's a different person.
Over the last few years life has changed massively, in February 2020 I was engaged, had just left a good job that took years to get too, had sold my property in the UK and was in the process of moving abroad, now all that is gone, and I'm full time carer and slowly running out of savings. What do other carers do to take their mind off things (non social), do you also get upset for no reason?
At the start of covid my dad was diagnosed with terminal leukemia and alzheimers, and I became his carer.
Over these 2 years he seems to get worse every day e.g. Speech starting to slurr, struggling to use a knife and fork.
But what worries me most is he keeps his right hand clenched really tight to the point where when I tell him to open his hand and excersise it, his knuckles are painful.
Also I've noticed if he is left alone, watching TV or something, I will often return to see him in a sleep like state but with his eyes open just staring at something. As if he is fully in a world of his own or complete cognitive shut down, he often won't notice me return and if I talk to him it will startle him back to normal.
Are these common symptoms, does anyone else experience this?
I never used to get upset but for the last few months I cry daily.
I lost my mum to cancer a few years ago and I hate watching dad slowly dying also with nothing I can do to stop it..
His personality has changed quite a lot and things he has liked and done for years have changed now, it's like he's a different person.
Over the last few years life has changed massively, in February 2020 I was engaged, had just left a good job that took years to get too, had sold my property in the UK and was in the process of moving abroad, now all that is gone, and I'm full time carer and slowly running out of savings. What do other carers do to take their mind off things (non social), do you also get upset for no reason?
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