Hi Lulu
My Mum is going thro' a bad patch of 'sundowning' at the moment, we've only had two evenings in the past month free of it.. She asks to go home, (this seems to be a common denominator, I didn't realise that) doesn't recognise my Dad(they've been married 55 yrs) and asks where he is, sometimes doesn't recognise me. She accuses us of keeping her a prisoner and wants to go out, and is generally very agitated,stressed and upset. This came on at the change of BST the end of last year.It usually takes us 3 to 4 hrs to sit out the traumas, and every attack is different in the way we have to cope with it. She wasn't diagnosed until late last year, so it seems different in every patient. The CPN has had the doctor prescribe Promazine, which sometimes keeps her more calm but at others seems to make no difference. I agree with Barraf, the professionals don't seem to attach much importance to it, but in my eyes this is the thing that I see doing the most damage to my Dad as he is constantly'walking on eggshells' and it takes it's toll.
The only thing I can recommend is don't take anything to heart that's said in one of these phases, try to stay calm and act normal , not easy I know.
Hang on in there, your not on your own.