1. Q&A: Medication - Thurs 22nd November, 3-4pm

    Do you have questions about medication and drug treatments for dementia? There's no drug to cure dementia yet, but it's often possible to relieve some symptoms.

    Our next expert Q&A will be hosted by Simon from our Knowledge Services team. He will be answering your questions on Thursday 22nd November from 3-4pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.


Discussion in 'Welcome and how to use Talking Point' started by nikkiat744, Jul 13, 2018.

  1. nikkiat744

    nikkiat744 New member

    Jul 13, 2018
    Hi all,

    My dad has been in care now for 6 weeks as we could no longer manage his 24/7 care at home. He has frontal lobe dementia, vascular dementia, alzheimers and now parkinsons. He has gone down hill fast now and can no longer walk or feed himself and is doubly incontinent. he hallucinates a lot some of which are ok and make him laugh, others that are horrible where he thinks he has killed someone. He also gets very emotional and is in tears but cant tell me why. I feel that I could cope better if I had some answers/clarity on a couple of things. I worry that he is upset because he is in the care home and not at home with us. I also worry about if he knows how long it is since he saw me, ie 10 minutes ago or 2 days ago, I don't know if the part of his brain that deals with his emotions is still able to function.
    If anyone has any medical knowledge in this I would be grateful.
    Many Thanks
  2. Beate

    Beate Registered User

    May 21, 2014
    He might be upset about that or about something else, but it's no good getting yourself upset about it as I'm pretty sure it was in his best interest to go into a care home. He will most likely settle.
    Perception of time goes so it's perfectly possible that he has no idea what day it is or when he last saw you. I knew a lady in a nursing home who had a big family that were visiting her every day. Every time they did she would accuse them of never visiting her. She simply forgot all visits instantly.
    When I went to counselling I was told that if I was worrying about something I couldn't change then it was best to try and let it go, otherwise it would eat me from within.
  3. nae sporran

    nae sporran Volunteer Host

    Oct 29, 2014
    Welcome to TP nikkiat744. There's many on here more knowledgeable than I am, but the Alzheimer's Society website has a good resource on https://www.alzheimers.org.uk/about-dementia/types-dementia which may help you.
    They have a helpline on 0300 222 11 22 where you can get more information.
    Helpline opening hours:
    Monday to Wednesday 9am – 8pm
    Thursday and Friday 9am – 5pm
    Saturday and Sunday 10am – 4pm
  4. nikkiat744

    nikkiat744 New member

    Jul 13, 2018
    Thankyou, we go everyday, I feel guilty if I know he hasn't had someone there for even 1 day. I worry that he is just sat there feeling so alone and that's why hes upset. I don't know if he still has the capacity to think that he is alone or not.

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