1. Jinx

    Jinx Registered User

    Mar 13, 2014
    2,333
    Pontypool
    Es just catching up, so sorry you're in this situation and things are deteriorating so quickly. I hope you can get help very quickly. Thinking about you. xxx


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  2. truth24

    truth24 Registered User

    Oct 13, 2013
    5,726
    North Somerset
    Dear Es. Have just caught up and am so sorry that Nick has deteriorated so much recently. Well remember those times although at least Fred was mobile. Agree with other posters' suggestions. We had good advice from our Continence Service and they did provide pull ups FOC. I found the following company excellent for products you might find useful. Complete Care Shop, completecareshop.com. Got a lot of waterproof beddIng and other bits and pieces from them. Thinking of you both, my dear. Love. Verityxx
     
  3. bemused1

    bemused1 Registered User

    Mar 4, 2012
    3,403
    Thinking of you Es. We started the morning with a deluge of unmentionables. Fortunately we had one of our good carers. Just fingers crossed he isn't coming down with this dreadful flu. This is when the hoist and sheets come into their own
     
  4. sleepless

    sleepless Registered User

    Feb 19, 2010
    3,232
    Female
    The Sweet North
    Esmeralda, hope all is well with Nick and yourself?
    Thinking of you.
     
  5. Casbow

    Casbow Registered User

    Sep 3, 2013
    983
    Colchester
    Esmeralda

    I don't know what to say to you except I send you my love and my understanding only because I have worked in a care home and understand the difficulty of dealing with incontinence. My husband is incontinent sometimes and that is bad enough. My iove to you.xxxxx
     
  6. bemused1

    bemused1 Registered User

    Mar 4, 2012
    3,403
    Hoping the first day went OK. I remember the problem of only one toilet when our wetroom was done and hubs was only urine incontinent then. Fingers crossed
     
  7. thebes

    thebes Registered User

    Feb 10, 2014
    163
    London
    Just caught up, and sending lots of sympathetic thoughts. I agree with lots that has been said, we have been dealing with the incontinence and decreasing mobility for months now, though my OH is more able to move still than yours by the sound of it. From experience I would add I didn't find pull ups so helpful, got in an even worse mess when soiled as I found them hard to remove with contents. I get on better with the ' netty knickers ', as can whip the pad out quicker, not negotiating the wobbly legs and panic about falling. I increase the absorbency by using a booster pad inside the ordinary one at night, which often saves me a change of PJs and bedding. I found our continence clinic OK though I had to be very persistent to get the original appt.
    One unexpected consequence of my OH going onto a puréed diet 4 months ago, has been that his long battle with incontinece caused by constipation has resolved. His current mild daily laxative and that change Of diet has been enough to restore a regular habit, with some persistence encouragement from me, and he is more able torecognise when he needs to go. I now wonder if his increasiNg reluctance to eat or drink earlier in the Spring was an indicator That he could no longer physically process ordinary food.
    I hope you see your OT very soon and get real practical help with handling to save the
    wear and tear on you. As I said the other day in my own post, the rate of change is so hard to take, let alone t being able to react to the implications and marshal the next set of resources needed. Good luck with that, and look after yourself.
     
  8. sleepless

    sleepless Registered User

    Feb 19, 2010
    3,232
    Female
    The Sweet North
    Thebes, some very interesting info in your post, which I hope can help Esmeralda, and others.
    Can I just check something with you? Did you know that the pull-ups are perforated down the sides to enable easy removal?
    I must admit I don't use them often for my husband, but tearing them is a quick way to remove them, though nothing is easy with bowel incontinence I must admit. It's infrequent here just yet, but I do sympathise with everyone who deals with it on a daily basis.
     
  9. bemused1

    bemused1 Registered User

    Mar 4, 2012
    3,403
    Just one thing I found on the subject of incontinence. As hubs became truly immobile I found all in ones easier to use than pull ups. But these I have to buy. Pads became completely useless and pull ups just got tangled.
     
  10. Cat27

    Cat27 Volunteer Moderator

    Feb 27, 2015
    9,798
    Merseyside
    Hope you're ok Es?
     
  11. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    58,938
    Female
    Dundee
    I found the same with pull ups. They do rip off at the sides but that just caused an added problem. When I took them off my husband I then had to get trousers and shoes off him to put another pair on. Luckily our continence service supply the Tena flex all in ones. My argument with them is the absorbency they will provide. As they supply a basic number I buy the extra as what they supply does not see him through the night.
     
  12. sleepless

    sleepless Registered User

    Feb 19, 2010
    3,232
    Female
    The Sweet North
    Yes, I find putting the pull-ups on when hubby is dressed can be a pain, especially when out and about. Taking shoes and trousers off in disabled toilets -- there is room to move about, but often nowhere clean to put things, and the floors can be wet.......He usually wears pads and the stretchy pants supplied by the Continence Service (not the net ones)
     
  13. sleepless

    sleepless Registered User

    Feb 19, 2010
    3,232
    Female
    The Sweet North
    Esmeralda, hope you and Nick are alright?
     
  14. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,265
    Female
    near Folkestone
    Hiya Es popping in to send hugs and love to you both xxxxx


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  15. bemused1

    bemused1 Registered User

    Mar 4, 2012
    3,403
    Hope the wet rooms going well, no major clean ups required. My fingers are crossed, remember the fear well:eek:
     
  16. esmeralda

    esmeralda Registered User

    Nov 27, 2014
    3,072
    Devon
    Hi everyone, goodness I have so much good information here. Thanks so much.
    Sorry I haven't posted before now. Sleepless advised on how disruptive the building process is, and she was quite right. So very busy yesterday and today. Builders are very nice though and I have had a better day with Nick today. No difficult clean ups as yet and they are keeping the toilet available so I can empty the commode. 2 days down and eight to go! Fortunately there is a sink in the cellar which I can use for rising through clothes - not ideal but at least an alternative to the kitchen sink:eek::eek::eek:
    I was able to talk to the OT on the phone today and she is visiting tomorrow.
    So grateful to you all for your kindness, advice and concern.
    xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
    xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
     
  17. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,265
    Female
    near Folkestone
    Hello Es, so glad to hear you had a better day with Nick, despite all the upheaval of builders :) thinking of you both xxxxxx


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  18. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    58,938
    Female
    Dundee
    Goodness still 8 days to go!

    I hope the OT visit goes well and you have another good day with Nick. x
     
  19. truth24

    truth24 Registered User

    Oct 13, 2013
    5,726
    North Somerset
    Glad you had s better day, Es. Hope today is the same. Xxx
     
  20. bemused1

    bemused1 Registered User

    Mar 4, 2012
    3,403
    Sympathies for the building work Es. I found that builders have always been helpful and considerate once they know the situation. Glad Nick was better.
    Good luck with the ot. Word of advice, think how difficult things are when at their worst and tell it like it is. I know neither of you want this, but think if I have this at hand it will be there when I need it, but I don't have to on a good day.
    I don't know how good your ot is, but I find you need to tell them what you want. If you say what do you think I need they aren't so helpful.
    So, things to discuss and get an opinion on. Hospital bed, could help Nick get up and down because height adjustable.
    Hoist for days when you really struggle.
    Slide sheets (eg biotechsis) to help him move in bed.
    Commode/shower chair, if possible one that will go over the toilet. Useful if you can bowel train saves a huge amount of work.
    Don't be daunted by the list, but try to discuss ins and outs.Even if you don't need them atm its useful to get the ball rolling. The other big advantage is you can delay the invasion of carers .
    Hope that helps Es, be kind to yourself as well as Nick. I hope you get the help you need
     

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