1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

  1. chakras

    chakras Registered User

    Jan 24, 2012
    16
    Have posted a few topics as trying to get to grips with things this week.

    Mum got out of hospital at start of week.

    She has vascular dementia

    She has no mobility and can only really shuffle and needs supported. She cannot use hands at all so all assisted feeding.

    She also has Heart issues etc.

    She is not great today and cant hold her head up properly. says neck and head are sore and I notice since she got out of hospital there are times when she wants to say something but cant find the words. Other times ok.

    Has lost quite a lot of weight over the months and sometimes has difficulty swallowing. Today she said she could not cough.

    I am resolute about home care, but I am trying to get to grips with where we are in the road of dementia if that makes sense?
     
  2. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,596
    Kent
    Hello chakras

    I would think your mother is in the later stages of her dementia. In life expectancy terms this means little but if the swallowing difficulties increase it will mean a lot.

    There are quite a few theories of the stages of dementia but so many stages overlap and so many people are different , I think it`s better to stay with Early, Middle, Late and End of life.

    My husband had no mobility for 4 years. He was hoisted in and out of bed and sat in the living room of his care home during the day.
    He had very limited language, big word finding difficulties and was able to understand more than he could say.
    He also had swallowing difficulties, was unable to feed himself and was fed soft food.

    Your mother does seem able to make her needs known even though she has some word finding difficulties. I suppose it depends what time of the day it is.

    I hope this is of some help.
     
  3. chakras

    chakras Registered User

    Jan 24, 2012
    16
    Many thanks for your reply.

    The swallowing is now and then and is more kind of taking food down the wrong way of that makes sense.

    I kind of go through phases. Will we get through this year....if we do, I am not sure we will get through next.
     
  4. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,596
    Kent
    Please try not to look so far ahead. I know it`s easier said than done but no one has any idea how the days will pan out never mind the months or years.

    It`s such a big responsibility but we can only do as much as we can. Please do not hesitate to ask for help.
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.