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Discussion in 'I care for a person with dementia' started by Reds, Jul 4, 2015.
How can a social worker help? My husband has Alzheimer's at 62.
If you get a good one they can be your best friend. We were given one very late, around the beginning of the 6th year following diagnosis. He came and did an assessment of my husbands needs and the following week came to assess how caring was affecting me and what help I needed.
He suggested day care and actually came with us to have a look. The lady said yes my husband could go once a week, he said I needed at least two days and she agreed that. 9 months later my husband was in an assessment unit.
When my husband was taken into an assessment unit following three crises he came there with me and sat in on all our meetings. When we were told my husband could no longer be cared for at home he was there again for us and supplied us with a list of care homes in our area. We had contact with him right up to the day my husband went into full time care.
So if you do get a good one use them, they are a connection to Social Services and will have knowledge of what is available out there to help you. I hope you get a good and supportive Social Worker but be prepared to have to chase sometimes, most of them cover the job part time, spending time in another area part of the week.
Jaymors advice is good. SWs like us all come in different types. Some are more helpful than others. Keep a note of their name, phone number and organisation and location because over the period of his illness you will have many others to deal with and it is very confusing.
Contacting them is often difficult when you have to go through a reception number so if they give you a direct number hang on to it. Your need for contacts will grow over the years.
They can help you access services such as carers, respite, day care, occupational therapists who will get you accessories you may need such as bath lifts, they can point you in the right direction, they can suggest things to you or answer questions, they can and will take over in an emergency, for example if you were hospitalised suddenly and your husband was alone.....
give it a try. my dad was reluctant and resistant but he got a good one and appreciates her.
Like everyone else has said..you get good and bad ones..
My dad has dementia and i care for him. He lives with my mum but hes been her carer for years.
I never make a policy of asking what they can do to help..or you ll get the budget..people in need of more than yourself talk. I told them what id like them to try and help us with..long rail at garden..alarms (fall) ..day centres (my dads centre is postive vibrant and ).
My dads perceptions are bad..so i asked for the sensory team to come look at the house see if they could suggest things to benefit my dad. Theyve put lighting in to help him.
If you seem to be doing everything yourself without help..its harder to get help later on. ..
With dementia being progressive..things will change..and if help needed or respite needed ..they can help...keep in touch because if you have a regular sw it can help by not having to explain it all again to a new one.
Just remember its whats best for you and your loved one is important..not whats best for them..
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belive me . I have had a good s/worker . Help to get pip for my wife . Help me to get care mony has i now look after my wife full time had to give up work.arange for carer to look after my wife so i couls have a brak game of snooker and a pnt call out to have a chat .
I am in Herts too. I have found some SWs helpful and others frankly useless but I would give it a try. My husband had signs at 64 but we did not get a diagnosis until he was 67. This was some time back. He is now 75.
Ther is now an early onset group in Herts but as you no doubt know it is a big county. The best support seems to be in the Stevenage and St Albans areas and the worst around Royston and Buntingford.
I have found Carers in Herts extremely helpful and would suggest you talk to them. They will also help you know what support you can expect from a SW.
Thank you for all the replies and very interesting/helpful.
The best sw is your advocate and voice. I always made a point of saying thank you for any help given. They have so much on their plate and rarely get thanks. Ours has been a life saver.
Depends on your expectations and what you need. Our experience with social workers has been appalling. As a friend of mine explained (& her mum had dementia), if you are ok today they don't think about tomorrow or the day after and will do nothing for you or your family. For us, each SW has raced to find my mum has capacity & as soon as she refuses anything they suggest they back off and leave us to our own devices. I had hope the change in the Care Act so they have to think of my well being as her carer but haven't seen any change. It took a charity to force them to even do an assessment of me and certainly no social worker advised about carer's allowance or attendance allowance.
I still think you're better off alerting them to your situation but I think you're better off with Age UK or Alzheimer's Society as signposters of what you can do and perhaps the local carers' organisation. Whatever -- good luck.
Mum's social worker has been amazing. In the earlier stages there wasn't much that she could do but at least I had her number etc. With mum's more recent deterioration and increasing lack of independence she has sorted out carers (mum is self-funding), monitored them, popped in to check on mum, liaised with the hospital to ensure that mum was re-assessed before discharge, liaised with district nurses, advised on miscellaneous issues etc. She also (and very importantly) calmed the doctor down when she was trying to insist that mum needed to go into a care home immediately. She's been great. Seriously brilliant. I'd say get one on board asap as it's usually in a crisis that you need them and it's easier if you're already in the system.
My wife 73 has had Alzheimer's since aged 59. You need social worker for assistance assessment. Also in your town there should be a Carers Association office. Advice free - inf and help on caring and on benefits, medical issues for patient and yourself. Very important and very helpful. Best wishes.
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