Dear All,
I've not been on TP for some weeks now, as I've been trying to cope with my own sickness. (I've been neglecting my health for far too long now).
We have just had my husband's first 'official' MID birthday. Still only a young 46.
I could not be more sad right now.
These past few weeks have seen a lot of downhills, and so little of the uphill moments that we used to get.
Memory is now deteriorating fast.... with very little 'recovery'. Anger and accusations escalating... Violent outbursts more frequent.... etc etc.
Recovery (if at all) a lot longer...
Have had more cognitive tests for husband at psychologists..... He remembers nothing of them at all. Can no longer say what the day...date...time...how old he is...... NOT A CLUE. Nor, is he in the slightest bit bothered about not knowing.
His planning / mapping skills are non-existent.
Now needs to be TAKEN to the toilet when out, rather than point him in the right direction.
Before if the distance was very close, he could walk-ish ( STROKE style) over to the the loo's...
Now, even if you can see the toilet door ... it just is not registering....
He's started not recognising neighbours who stop to say hello, when we are out on a little walk....
Also been in for the day with Neuro docs... didn't really do much...and could really have been done in Out Patients.
Not really aware that it was his birthday...despite cards up. Food / cake gifts etc...
His family unusually sent small gifts. Not much... T-shirt etc... They didn't really mean much to him at all. 'Made him' write thank you cards... he didn't know what for....
Frequency of me being accused of neglect is increasing.
More regularly get accused of the not giving medication...food...washing etc...
I'm shattered....to the extreme... AND FEEL SO SAD AND SORRY FOR MYSELF....
Trying my best to get SW to agree respite..... ASAP. She's looking at the BUDGET...!!
Got a letter on the go for me to give them in respite... just so they know
'what he's like on a normal day'.... It's quite detailed.
What concerns me is that he will seem OK/ better in respite, and not as 'picky'
or repetative... etc...
He won't be able to wander and search through cupboards etc....
He won't have his 'home' around him to 'worry' about. Nor will he be able to
'get himself' agitated by his familiar surroundings of the home.
I do know that he will be VERY ANGRY with me for putting him in respite, and I don't know how to cope with the back-lash of that...
Any thoughts on coping with that would be appreciated....
Thanks for letting me let off steam..
Take care
DaisyG
I've not been on TP for some weeks now, as I've been trying to cope with my own sickness. (I've been neglecting my health for far too long now).
We have just had my husband's first 'official' MID birthday. Still only a young 46.
I could not be more sad right now.
These past few weeks have seen a lot of downhills, and so little of the uphill moments that we used to get.
Memory is now deteriorating fast.... with very little 'recovery'. Anger and accusations escalating... Violent outbursts more frequent.... etc etc.
Recovery (if at all) a lot longer...
Have had more cognitive tests for husband at psychologists..... He remembers nothing of them at all. Can no longer say what the day...date...time...how old he is...... NOT A CLUE. Nor, is he in the slightest bit bothered about not knowing.
His planning / mapping skills are non-existent.
Now needs to be TAKEN to the toilet when out, rather than point him in the right direction.
Before if the distance was very close, he could walk-ish ( STROKE style) over to the the loo's...
Now, even if you can see the toilet door ... it just is not registering....
He's started not recognising neighbours who stop to say hello, when we are out on a little walk....
Also been in for the day with Neuro docs... didn't really do much...and could really have been done in Out Patients.
Not really aware that it was his birthday...despite cards up. Food / cake gifts etc...
His family unusually sent small gifts. Not much... T-shirt etc... They didn't really mean much to him at all. 'Made him' write thank you cards... he didn't know what for....
Frequency of me being accused of neglect is increasing.
More regularly get accused of the not giving medication...food...washing etc...
I'm shattered....to the extreme... AND FEEL SO SAD AND SORRY FOR MYSELF....
Trying my best to get SW to agree respite..... ASAP. She's looking at the BUDGET...!!
Got a letter on the go for me to give them in respite... just so they know
'what he's like on a normal day'.... It's quite detailed.
What concerns me is that he will seem OK/ better in respite, and not as 'picky'
or repetative... etc...
He won't be able to wander and search through cupboards etc....
He won't have his 'home' around him to 'worry' about. Nor will he be able to
'get himself' agitated by his familiar surroundings of the home.
I do know that he will be VERY ANGRY with me for putting him in respite, and I don't know how to cope with the back-lash of that...
Any thoughts on coping with that would be appreciated....
Thanks for letting me let off steam..
Take care
DaisyG