So many of us in the same boat

Discussion in 'I care for a person with dementia' started by Bassetlaw Badge, Jun 7, 2015.

  1. Bassetlaw Badge

    Bassetlaw Badge Registered User

    Oct 30, 2012
    51
    Hi all,

    Yet another day/weekend/week dominated by an illness I don't have myself and I came on here to have a vent. But so many of us seem to be in the same place! There should be a little button on here like on Facebook that says 'I hear ya!'.

    Although I understand (or don't understand as the case may be) the complexities of this condition and I'm not expecting some miracle 'cure', doesn't it astound you that in this day and age there is literally nothing anyone can do and no one to help?

    All these people who do what they do out of love and it's heartbreaking. :(
     
  2. Concerned J

    Concerned J Registered User

    Jun 15, 2014
    66
    London
    I want to press the like button. I agree with you entirely
    J xx
     
  3. Kjn

    Kjn Registered User

    Jul 27, 2013
    5,835
    Yes , like:D
     
  4. Spamar

    Spamar Registered User

    Oct 5, 2013
    6,968
    Suffolk
  5. Quilty

    Quilty Registered User

    Aug 28, 2014
    1,056
    GLASGOW
    In the dark moments I imagine being a carer like a long walk in the darkness. I can see figures beside me, in front of me and behind me. I dont know these people but just knowing that I am not alone gives me the strength to continue.

    This journey will end some day but I wont be the same person I was when we started. I will be older, worn and wise in a way I never wanted to be. But I know that holding the hand of the person I love and walking was all I could do. For me, not walking with them was NEVER an option. So I keep walking fueled by love and the memories of the past. Im glad I can only see a little way ahead. I only focus on the next few steps. Eventually we will get to the light and we will say goodbye.

    Im feeling so strange tonight, and no, alcohol is not involved. I feel so melancholy. Too much time to think today. To all you TPers out there keep walking and stay strong. We need each other so much. Thanks for being there.
     
  6. 2jays

    2jays Registered User

    Jun 4, 2010
    11,603
    West Midlands
    Rule 1) Stop thinking others on TP have it worse than you

    Rule 2) remember everyone who is a part of TP has it hard.

    Rule 3) remember someone's easy.... Is another someone's hard

    Rule 4) always vent on TP when you need to vent ..... cos holding it in ain't good and you never know, by venting you are helping another who needs to vent too

    xxx


    Sent from my iPhone using Talking Point
     
  7. Bassetlaw Badge

    Bassetlaw Badge Registered User

    Oct 30, 2012
    51
    'like'

    You are all amazing - all praise be to TP - for without it I wouldn't have anyone to talk to about it.

    The first rule about dementia - you don't talk about dementia.

    Thank you all for being there......
     
  8. Suzanna1969

    Suzanna1969 Registered User

    Mar 28, 2015
    346
    Essex
    Like muchly.
     
  9. Sheepteach

    Sheepteach Registered User

    Sep 4, 2011
    161
    Somerset
    2jays - amazing answer :)
     
  10. reedysue

    reedysue Registered User

    Nov 4, 2014
    4,604
    Scotland
  11. 2jays

    2jays Registered User

    Jun 4, 2010
    11,603
    West Midlands
    The first rule about dementia you don't talk about dementia???

    Not on here

    ALWAYS talk. Someone will know/understand/been there/may have an answer....but will always have loads of support for your situation

    Doesn't matter what the subject is regarding dementia... Be it constipation and it feels like you've been given the Crown Jewels once "they've gone" or even more personal issues like... "He/she wants sex but I'm uncomfortable about it"

    It's good to talk xxxx


    Sent from my iPhone using Talking Point
     
  12. Loopiloo

    Loopiloo Registered User

    May 10, 2010
    6,119
    Female
    Scotland
    Wonderful posts from Quilty and 2jays.

    Thank you.

    Loo xxx
     
  13. lizzybean

    lizzybean Registered User

    Feb 3, 2014
    1,398
    Lancashire
    Like this also. Always wise is 2jays.
     
  14. mousehold

    mousehold Registered User

    Mar 25, 2015
    27
    Norfolk
    what a great thread!
     
  15. Maldives13

    Maldives13 Registered User

    Feb 4, 2014
    164
    Love what you have all said, especially quilty. I feel that so much. Thank you x
     
  16. patsy56

    patsy56 Registered User

    Jan 14, 2015
    840
    Fife Scotland
    Like yes we are in this together
     
  17. Summerheather

    Summerheather Registered User

    Feb 22, 2015
    160
    Don't ever be afraid to discuss anything - the first time I came here I vented about how I wished my Mum had cancer instead of Alzheimer's - there would have been nowhere else that would have understood why I say something so awful.
     
  18. Lilac Blossom

    Lilac Blossom Registered User

    Oct 6, 2014
    520
    Scotland
    Thanks to everyone who has posted - Keep walking, I like that xx
     
  19. nannylondon

    nannylondon Registered User

    Apr 7, 2014
    2,476
    London
    How I agree I think only on TP can I truly be honest about how I feel.and not be judged as we are all in the same position one way or the other xx
     
  20. Sad Misty

    Sad Misty Registered User

    Jun 8, 2015
    31
    #20 Sad Misty, Jun 8, 2015
    Last edited: Jun 11, 2015
    Although it defenetly can be tough the only thing we can do is try to be Strong fore our close person /family member etc..... dear i know its not easy but this is the best way we can help them by letting them know we do care and we will be here as best we can al the way
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.