Dear All
I have just joined the forum and have found some very useful information on here from fellow members.
I was wondering whether anyone could give me some impartial advice please...to cut a long story short my Mother and myself look after my Grandmother who has vascular Dementia and at present is still living on her own,the situation has been like this for two years now.We do get some help from Social Services who give us 3 visits a day-a 20 min slot to get breakfast and to give medication and another 20 mins at lunchtime and then a 5 min visit at around 6pm to give more medication.We also had some input from The Community Nurses.
Although we are lucky to get this help I feel totally let down in one respect in as much as I'm finding SO many loopholes in the system and there is no one working in conjunction with one another ie SS pass the buck to The Community Nurses who then pass it back to SS and there we are in the middle.Are we just unlucky or is it like this for lots of us as carers for people with dementia.
Basically what each of them are saying is unless my Grandmother says 'Yes' when she is asked whether she would like extra help ie a care home or respite care then they cant do anymore to help us.the dementia can be so bad at times that she can only say either YES or NO to anything we say to her! We feel helpless and it seems that no one out there in the SS or Community Care wants to really help.Are we just unlucky?
Thank you all for listening!
Best Wishes to you all
Neil Randell
I have just joined the forum and have found some very useful information on here from fellow members.
I was wondering whether anyone could give me some impartial advice please...to cut a long story short my Mother and myself look after my Grandmother who has vascular Dementia and at present is still living on her own,the situation has been like this for two years now.We do get some help from Social Services who give us 3 visits a day-a 20 min slot to get breakfast and to give medication and another 20 mins at lunchtime and then a 5 min visit at around 6pm to give more medication.We also had some input from The Community Nurses.
Although we are lucky to get this help I feel totally let down in one respect in as much as I'm finding SO many loopholes in the system and there is no one working in conjunction with one another ie SS pass the buck to The Community Nurses who then pass it back to SS and there we are in the middle.Are we just unlucky or is it like this for lots of us as carers for people with dementia.
Basically what each of them are saying is unless my Grandmother says 'Yes' when she is asked whether she would like extra help ie a care home or respite care then they cant do anymore to help us.the dementia can be so bad at times that she can only say either YES or NO to anything we say to her! We feel helpless and it seems that no one out there in the SS or Community Care wants to really help.Are we just unlucky?
Thank you all for listening!
Best Wishes to you all
Neil Randell