Expert Q&A: Rare dementias - Tues 3 March, 3-4pm
Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.
You can either post your question >here< or email them to us at email@example.com and we'll be happy to ask them on your behalf.
I seem to have missed this thread in the Forum @DesperateofDevon but it seems like you've been through hell for your Dad and he was a lucky man to have you as his daughter. You have lovely memories anyway so I hope they can sustain you through this sad time. xxxMy lovely TP family, thank you for the lovely thoughts & words.
I am strangely calm & thankful that Dad is no longer in the grips of dementia.
My Mum is amazingly strong of character & losing her soul mate must be unimaginable without the issues of dementia. Yet today the clarity of mind Mum presented was amazing. I’m sure some difficult days lie ahead but for today I comforted Mum; & then she comforted me her daughter.
The hardest thing wasn’t telling people,it was the delight on the faces & in the voices of those I visited & called to break the news. I never realised how much I’m Dads daughter - talking about Dads exploits
old work colleagues are sourcing fake plastic bananas
Dad had a banana everyday in his lunch box it was a running joke among his work mates to substitute itfor the fake one!
Another friend of Dads ( he crewed yachts & sailed - even making onto TV news !!) is digging out photos & newspaper clippings of one of Dads mercy mission dashes!
walking & drinking buddies have tales to curl your hair & leave you laughing holding your sides!
friends of Mums tell of random acts of kindness- Dad dug one lady a grave for her cat un-asked; after a 12 hour shift at work.
as for My lovely Aunty ( Dads sister ) I stared into the same colour eyes as Dad & felt loved & cherished; tears & laughter followed but more laughter than tears.
what a legacy Dad leaves behind, so tonight when I get home please raise a glass or cup of whatever & toast my lovely Dad- Peter with me. A gentle man .
much love to you all
Will be hopefully back on the forum in a couple of days
My Dad deserves his friends & extended family to be present & his extraordinary life to be remembered- along with his antics & humour! His love of Guinness & whiskey should be acknowledged at the wake
SOUNDS PERFECT @DesperateofDevonNo extravagance but I want to hear laughter & love above all this sadness!
Along with Eric Idle - always look on the bright side of life ! Dad was a huge monty python fan & his ministry of funny walks impressions convulsed me as a child!
QUOTE="DesperateofDevon, post: 1682444, member: 80872"]I am handing the executorship over to the lovely solicitor who sorted out the LPA. I’m done with forms etc & am going to just be the daughter.
Whilst I know I have the skills to be executor whenmy mum dies I know I will find it too emotionally draining and intend to do the same.No I’m not doing it - I’m handing it over to the solicitors, it’s too much & im exhausted 24/7
My Dad deserves his friends & extended family to be present & his extraordinary life to be remembered- along with his antics & humour! His love of Guinness & whiskey should be acknowledged at the wake- my Mum had lavish funerals for her Mum & Dad.
@DesperateofDevon ....handing it over is so brave. and a step a lot wish they could do but don't, and then dont cope. you are doing it right i am sure. its whats right for you. so step back and enjoy your happy memories and take tame to grieve your way. like everything in life we are all different, so well done you for being strong enough to step aside and stop the crash. you are passing it on to someone who does it as a job...... when there are other people around that can we should use them so we can do what we have to do .....if that makes sense. listening to your own body and tending your own needs will, i am sure, help with your next stage of this journey. and i hope your dad has a great Farewell and peace is found for you tooOH couldn’t understand wanting to hand over the executorship, the legalities of sorting it all out fall on my shoulders alone with mum not having capacity. So enough & I remain firm about this - it’s a simple probate but emotionally I’ve had it.
Today is a grey damp day - & reality & exhaustion have hit home.
I have two arts & crafts markets left - today & tomorrow & I am cancelling them. It’s too much ... the thought is overwhelming along with the physical & mental exhaustion.
so being brave is being put on hold
Thank you@DesperateofDevon you poor thing, such a shock for you to read. Nothing you said about his condition sounded like pneumonia, but they must have a reason to have determine this. Please just try to do as you say and let it go as you have fought hard enough, and this battle is now over. Do something kind for yourself and put it aside until the New Year when you have your meetings, and try to get some little enjoyment from the holidays.