1. Our next Q&A session is on the topic of Christmas and dementia.This time we want our Q&A to involve our resident experts, you! Share tips and advice on navigating Christmas here in this thread.

    Pop by and post your questions or if you prefer you can email your question to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.
  1. Spamar

    Spamar Registered User

    Oct 5, 2013
    6,992
    Suffolk
    Still in hospital til at least Tuesday. I’ve got cancer of the R kidney. Bit of a shock, but fits all the symptoms. They have a meeting on Monday to sort out what they’re going to do all patients. Yesterday I had a 9 hour infusion of iron compounds the most boring thing ever!

    Things are moving so fast, I’m getting confused!

    Step dau coming today, will be interestingly. She was crying on the phone yesterday, I told her I was the only one allowed to cry!














     
  2. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,937
    Female
    Dundee
    I’m so sorry to hear your news @Spamar. Wishing you strength.
     
  3. Spamar

    Spamar Registered User

    Oct 5, 2013
    6,992
    Suffolk
    Thanks Izzy
     
  4. jugglingmum

    jugglingmum Registered User

    Jan 5, 2014
    5,314
    Female
    Chester
    Such a shock. I'm thinking of you. Thank you for posting . Xxxx and ((((((hugs))))))))
     
  5. 2jays

    2jays Registered User

    Jun 4, 2010
    11,598
    West Midlands
    So sorry to hear your news :(

    Thinking of you xxxxxxx
     
  6. Marcelle123

    Marcelle123 Registered User

    Nov 9, 2015
    4,399
    Yorkshire
    Very sorry to hear your news, @Spamar. Thinking of you. xxxxxxx
     
  7. charlie10

    charlie10 Registered User

    Dec 20, 2018
    376
    Thinking of you @Spamar......Kia Kaha
     
  8. jugglingmum

    jugglingmum Registered User

    Jan 5, 2014
    5,314
    Female
    Chester
    I hope step dau's visit has been good and not too many tears from either of you. Xxx

    Sat at a skoda garage having collected new car waiting for buyer of mine to meet me here. I feel boring buying the same as before and not even new but we just need a workhorse to get up and down motorways for fencing competitions. Sold to a cyclist via Facebook.

    Now need to get round to selling our vw t4. Then replace that with a small round town run around which is cheapish for dau to go on insurance.

    Dau is enjoying freshers week which really seems to be a fortnight. Her liver is certainly working hard.

    Dau is racing near kendal on Sunday so home on sat. Son is fencing in Camden on sat. I'm doing round trip on train on sat.
     
  9. Cat27

    Cat27 Volunteer Moderator

    Feb 27, 2015
    10,343
    Merseyside
    I’m so sorry @Spamar. Thinking of you.
     
  10. reedysue

    reedysue Registered User

    Nov 4, 2014
    4,643
    Scotland
    So sorry to hear you news @Spamar, thinking of you x
     
  11. DesperateofDevon

    DesperateofDevon Registered User

    Jul 7, 2019
    1,900
    Oh lovely, not the best news but hopefully the other kidney is fully functioning & will be happy to lose the dodgy one & take on the responsibility!

    It’s a shock but naming how you feel & identitying the cause gives you choices & options. I have great hope that you will be soon on the road to recovery & planning your next trip/ adventure!

    Sending hugs & best wishes!

    Such a shock this news, but with your fortitude I have faith that this is just another of life’s hurdles; we are cheering you on in your sprint up to it!

    Much love
    Xxx
     
  12. Bunpoots

    Bunpoots Registered User

    Apr 1, 2016
    3,332
    Nottinghamshire
    I only visit this thread occasionally @Spamar so I was shocked to read your news. I hope everything goes well for you.
     
  13. canary

    canary Registered User

    Feb 25, 2014
    10,783
    Female
    South coast
    (((((((((((((((((((((((((((((((((((((((((((((((((((hugs))))))))))))))))))))))))))))))))))))
     
  14. Spamar

    Spamar Registered User

    Oct 5, 2013
    6,992
    Suffolk
    Next news been put off til tomorrow (meeting moved)
     
  15. jugglingmum

    jugglingmum Registered User

    Jan 5, 2014
    5,314
    Female
    Chester
    I'm sorry the meeting has been moved, such a blow when you are wanting to know what will happen.
     
  16. Spamar

    Spamar Registered User

    Oct 5, 2013
    6,992
    Suffolk
    I’m beginning to think this is just a form of torture!
     
  17. Amelie5a

    Amelie5a Registered User

    Nov 5, 2014
    91
    Scotland
    I can only begin to imagine how you feel - all psyched up for some answers about something so overwhelming . And then you don't get them - delayed for another 24 hours.

    Thinking of you today and hoping that not only do you get some answers, you feel you're getting a bit of control back too.
     
  18. Marcelle123

    Marcelle123 Registered User

    Nov 9, 2015
    4,399
    Yorkshire
    I'm so sorry the meeting has been put off - has it gone ahead today?
    Thinking of you, and hoping there's no more tortured waiting & that there's some news that is a reassuring surprise. xxx
     
  19. Spamar

    Spamar Registered User

    Oct 5, 2013
    6,992
    Suffolk
    #10039 Spamar, Oct 8, 2019
    Last edited: Oct 8, 2019
    Oh yes, they found an additional form!

    1 meeting goes ahead, but doesn’t start till lunchtime

    2 I don’t get any results until late afternoon. Those are that the op will go ahead as complete removal of right kidney........

    3 but I must see the actual surgeon for detail, and he is around!

    4 actual surgeon hoves into view. Yes, he is going to remove kidney, but by laparoscopic necroscopy. For those of you old enough to remember, that used to take Fallopian tubes out that way as a form of sterilisation you fill the abdomen with C02, not always nice.

    5 have to go to clinic first, so have get and reply to clinic letter.

    6 go to clinic

    7 date for op

    8 op

    And how long will all that that?
     
  20. Amelie5a

    Amelie5a Registered User

    Nov 5, 2014
    91
    Scotland
    Was anyone able to answer your question about how long it will all take?
    Given they’ve had you in their clutches for over a week, I can see why you’d question having to go to a clinic before getting a date for the op which they already know you need.

    This is what I hate so much about medical journeys.... you psych yourself up for one lot of information, only to find it just generates more questions and delays.

    On the brighter side, do you get to go home soon?
     

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