Hi,
It been a really difficult week, Friday david's parents arrived for a brief visit after I had to tell them wednesday that David had been diagnosed with Picks. Luckily it was to see our daughter in her nativity play, ice broken by the show they behaved beautifully, not even commenting when I hid some of the goodies they had brought so David would not eat them all at once making himself sick in the process. They left Sunday - sighs of relief all round - his mother is now treating David as if he were about 4, but their hearts are in the right place and they are detirmend to work with me to give the best for David.
We "celebrated" by going to the cinema to see the golden compass - luckily it was a early show and not very busy so David's 6 trips to the bathroom didn't disturb too many people. I still however find his constant noises disturbing and am concerned what others may say - In time no doubt I become accustomed to this and will not be embarrased.
Then disaster, call by work to have another assessment by occupational health - I thought that we would have been able to avoid informing work of the diagnoses until we had the next tests or at least until the next sick note was due after Xmas. Several long phone calls later, I managed to get some free legal advise from some of his old friends who were still in practise and will be off for the appointment a little more optomistic.i have been advised that his work should not be able to do anything until there is a prognoses instead of the diagnoses that we currently have, this should give me a few more months to investigate my probable financial position. I have however been "mrs Angry" grumpy and sarcastic, angry at David for putting me in this position of total uncertainty and financial insecurity. This made me feel even worse as he hasn't a clue really what is going on and is remainig cheerful when he is up and awake. He was just such a capable companion, friend and adviser I miss the man that he was.
Work was just as problematic, and it was with relief that I went out at lunch today to meet friends and recieve their welcomed words of advise - I don't think I would be able to bare this without their support.
Now boasted by their encouragement I am ready to face the challenges of the rest of the week or at least tommorrow and am smiling at the love that they find to give. I hope that you all find some small thing to smile at today and are ready to face each problem positively.
It been a really difficult week, Friday david's parents arrived for a brief visit after I had to tell them wednesday that David had been diagnosed with Picks. Luckily it was to see our daughter in her nativity play, ice broken by the show they behaved beautifully, not even commenting when I hid some of the goodies they had brought so David would not eat them all at once making himself sick in the process. They left Sunday - sighs of relief all round - his mother is now treating David as if he were about 4, but their hearts are in the right place and they are detirmend to work with me to give the best for David.
We "celebrated" by going to the cinema to see the golden compass - luckily it was a early show and not very busy so David's 6 trips to the bathroom didn't disturb too many people. I still however find his constant noises disturbing and am concerned what others may say - In time no doubt I become accustomed to this and will not be embarrased.
Then disaster, call by work to have another assessment by occupational health - I thought that we would have been able to avoid informing work of the diagnoses until we had the next tests or at least until the next sick note was due after Xmas. Several long phone calls later, I managed to get some free legal advise from some of his old friends who were still in practise and will be off for the appointment a little more optomistic.i have been advised that his work should not be able to do anything until there is a prognoses instead of the diagnoses that we currently have, this should give me a few more months to investigate my probable financial position. I have however been "mrs Angry" grumpy and sarcastic, angry at David for putting me in this position of total uncertainty and financial insecurity. This made me feel even worse as he hasn't a clue really what is going on and is remainig cheerful when he is up and awake. He was just such a capable companion, friend and adviser I miss the man that he was.
Work was just as problematic, and it was with relief that I went out at lunch today to meet friends and recieve their welcomed words of advise - I don't think I would be able to bare this without their support.
Now boasted by their encouragement I am ready to face the challenges of the rest of the week or at least tommorrow and am smiling at the love that they find to give. I hope that you all find some small thing to smile at today and are ready to face each problem positively.