Sleepless Nights…

Sunshine2*

Registered User
May 16, 2019
131
0
Yes this does sound like aphasia - often called "word salad" because all the sounds are tossed up together. It might not be the start of him entirely losing speech though. Mum did this a few times when she was tired and confused, or when she had an infection, but she retained some speech right up to the end.
Hello,

Thank you for your help regarding this.

At least this time he wasn’t annoyed that I couldn’t understand him, as he was when it happened a few years back. He really didn’t know that I couldn’t understand a word that he was saying.

Thank you.
 

Sunshine2*

Registered User
May 16, 2019
131
0
Hello, Sunshine2. Having just spent half an hour getting my husband onto the toilet I am exhausted and frustrated, so I can't imagine how you have coped all these years!
As others have said, please be very firm with your doctor and tell them you can't cope and he needs residential care. If anything happened to you he'd have to go anyway. Good luck.
Hello,

Thank you for your help.

We have the ‘Best Interests’ meeting next week.
 

Sunshine2*

Registered User
May 16, 2019
131
0
Good Morning,
Sending best wishes to you all.

We had the ‘Best Interests’ meeting mid September, a care home placement was suggested, however, I didn’t hear anything further and I mentioned my husband was going into respite care for a couple of weeks and I wanted to see family run a half-marathon in aid of The Alzheimer’s Society.

Within a few days of his respite stay, he’d had a fall and banged his head on their radiator resulting in a one inch cut to the side of his head. Apparently, a telephone call was made to their usual team and photos sent, they said to keep an eye on him for any possible problems, but an ambulance was not requested.

A few days after the fall, he had two massive seizures, a short time apart and this time an ambulance was called and he has now been in hospital for over two weeks.

I wasn’t told about the fall in the respite place until I had a call with them regarding his hospital admission. Surely, someone who’s previously had a brain haemorrhage, has epilepsy (but no seizures since 1997), has MS & MS Dementia and is on aspirin as a suspected stroke was suggested some years back, should have been thoroughly checked by a Dr. and a possible hospital admission??

He was able to get about with his Zimmer frame at home.

I had an appointment visiting slot at the hospital and just burst into tears. He had no speech, was nil by mouth (tubes through his nose), his right side (arm, hand, leg & foot wasn’t moving at all), so he was full hoist too and was just staring at the ceiling. I was worried it was a stroke, it wasn’t.

Gradually, the odd word came, in time he was able to focus on people. There is slight movement in his right side, but he remains with ‘full hoist’ which was awful to see him being moved this way.

We had a Best Interests meeting and we discussed his eating with various specialists (after tests), three options; but we know he would want to eat again, so they are trying him on a soft food diet.

I have requested as much physio as possible with a view to possibly getting him to a standing position with help and a Zimmer frame.
Obviously, it’s not known what strength he has left in his arm and leg. I just hope there’s some progress next week, as mobility helps so much.

I’ve looked after him so well for 31 years and for all this to happen in the space of a few days respite care, is heartbreaking.

I am very grateful for all the hospital care.

I wondered if anyone has dealt with something similar?

Take care and thanks for helping.
 

Violet Jane

Registered User
Aug 23, 2021
2,041
0
I’m shocked that an ambulance was not called, particularly as he had a head injury and in view of his medical history. I support an elderly friend who lives at home with carer visits and whenever she has had a fall / is found on the ground the carer calls an ambulance. Sometimes the paramedics have not deemed it necessary to take her in but generally she has been taken in and that’s sometimes been with no obvious injuries.
 

MartinWL

Registered User
Jun 12, 2020
2,025
0
67
London
Sadly this is another btale ( we read more than a few here) of a heroic struggle against illness that has to come to an end. The carer is no use if they make themselves ill. The best interests meeting recommended a care home and that seems to be the only option.
 

Claire250

Registered User
Sep 25, 2021
22
0
Oh @Sunshine2* however do you cope? I've only had a few weeks of sleep deprivation and it's taking its toll on me. I just want to echo what others here have said to please get whatever help you can. You must be a very strong willed person to have kept going so long. I hope you can get the help you so deserve.