1. Michael E

    Michael E Registered User

    Apr 14, 2005
    Ronda Spain
    My wife has Alzheimers - she sleeps a lot and worries that it is the medications that cause this. Yesterday I took her to the french doctor where we live here in La Rochelle - I response to her question he indicated that it was not the medications - she is on Deroxat 30mg Tiapridal 100mg and Aricept 10mg.

    We normally go to bed around 23-2400 and she seems to wake naturally at 12.30 ish most days. The french Doctor indicated this was about right... Just wondered what the experience or views of others is??
  2. thompsonsom

    thompsonsom Registered User

    Jul 4, 2004
    Hi Michael

    Mum in Law quite often goes to bed around 7.30-8pm and does not wake until 8am next morning and sometimes till 10am so i do think this is probably part of the illness, maybe there is less going on actively in the brain that normally wakes us up, who knows!

  3. janew

    janew Registered User

    Mar 28, 2005
    Hello Michael

    Yes, I do agree that it may be part of the illness. In my mums case I wondered whether she is busy all day with people around her that when she comes home there is just me, she finds it boring and she seems safe and secure in her own bed and surroundings. My mum tends to go to bed at 6p.m. and then gets up at 7a.m. the next morning. I do try to keep her busy and occupied because at the weekend she seems to always want to go to bed in the early afternoon.

    I am going to ask the doctor at her next appointment if he could give me any advice because when I saw Mum's consultant he suggested I ask the Doctor to take a blood sample to see if all was o.k.

    Best wishes Jane
  4. Michael E

    Michael E Registered User

    Apr 14, 2005
    Ronda Spain

    Jan hi,

    Thanks for that - it was what the doctor implied. The consultations are sometimes a little difficult (all in french) becuase with Monique sitting there - she does not accept anything is wrong but in princible will take the medication provided of course it is put out and she is reminded. Morning pills no problem = when she comes down around mid-day the coffee is always ready and she takes the pills fine = the night aricept is a bit more problimatic - sometimes I forget to remind her = can it be catching????
    Trouble is she asks me to wake her - if I do she mainly goes back to sleep for even longer than usual...
  5. Michael E

    Michael E Registered User

    Apr 14, 2005
    Ronda Spain

    Jane hi,

    Thanks for the reply - seems like it is 'normal' sleeping so much. My problem is to keep Monique occupied = we do not know many people here and some of the folks we got to know when we first arrived have worked out (or I told them) what the problem is and have dived for cover - do not blame them at all.

    We are collecting my new (old) boat from Plymouth in a few weeks and taking it down the canals to the Med - I am hoping Monique will enjoy watching the world go by and the casual friendships that arrive with this sort of voyaging. Just keeping my fingers crossed - she is so lonely and when you are trapped in this blasted short circuit it is very difficult to make new friends..

    Still you know all that I guess
  6. janew

    janew Registered User

    Mar 28, 2005
    Hi Michael

    Yes, you are right. At this time you certainly know who your friends are. I suppose I am very lucky as my mum has great friends and are always there at the end of the phone and give me support when needed. The girls I work with are also very supportive.

    Also, a group of us (3 actually) have mothers in the same position and we are going to try to have 'Tea & Cake' on a Saturday afternoon (every 3 weeks) to give 2 of us a break to go and have a bit of freedom.
    I don't know whether this will work as my mum is a bit possessive and seems to need me all the time (I think it comes from leaving her at Day Centres/Nursing Home when I am at work) - but it is worth a try!

    Hope you have a wonderful holiday Jane
  7. Norman

    Norman Registered User

    Oct 9, 2003
    Birmingham Hades
    Hi Jane w
    it's not only friends that vanish ,its also close family.
    The consolation is that the friends and family that you have left are true friends.
    I don't contribute to the theory that some people can't handle it (AD ) if they loved the person before, their love should survive.
    Norman :(
  8. danielle

    danielle Registered User

    Apr 9, 2005
    Friends and family......

    Hi Norman
    I'll second that - it is hard to understand how friends can walk away but harder to understand when family do :confused: But.......
    That's life i suppose and there aint a damn thing we can do.
    Take care Norman & Thanks for your support it really does mean a lot.
    Danni x
  9. Brucie

    Brucie Registered User

    Jan 31, 2004
    near London
    Hi Norman and Danni

    100% agree.

    It is like sifting through ones family and friends, when one of your family has dementia. The ones not worth anything just walk away, the ones who are true friends and family stick by.

    The surprising thing is when you discover which ones fit into which category. Jan's family walked, mine [even though split by divorce long ago] stuck by; some of Jan's close friends walked, some who were a real surprise, stuck by. Some people at my work, just thought of as colleagues, became true friends.

    Motto: the gold ain't always where you are looking for it!
  10. Nutty Nan

    Nutty Nan Registered User

    Nov 2, 2003
    Hi Norman, Danni and Brucie,
    How right you are, and how precious those people become who manage to join us on our weird and wonderful journey. Sometimes, just knowing that they are there helps me to keep going.
    However, I also have an additional little theory or two, especially for family members who keep their distance: they may feel inadequate in the face of those who put in so much (time and effort) and "manage so well", that they don't quite realise how much of a difference their own, additional, if less frequent, input would make. They may also feel a touch jealous when they sense the closeness between those who are involved on a daily basis with a person with AD. I am convinced that it is the daily, or at least very frequent/regular contact that makes communication and assistance easier. It takes a lot of practice to make the person with AD feel included, valued, important, to brush off their 'mistakes' and to go with the flow.
    All our lives would be so much easier if we could live in 'their' world, rather than trying to force them to fit into our scheme of things ...... (What's wrong with wearing a jumper back-to-front, carrying a toothbrush in your coat pocket because you like its colour, or eating your sandwich with a spoon?). If I am very honest I'd have to say that if it wasn't for the last few years of my life as a carer, I might not be quite so tolerant either.

    Kathy Rhodes wrote a poem 'To a Mongol Child', which partly fits our lives, too:

    "And as he grew, we never grieved
    To see how little he achieved,
    No praise he'd lose.
    His progress made in life's tough school
    We measured with a shorter rule

    Than scholars use.

    I can't believe he owed his day
    To some genetic disarray
    Wrongly conceived.
    He came into this world, and there
    He lived to teach us how to care.
    This he achieved".

    If we can learn to care, we benefit as much as the person we care for!
  11. Roz

    Roz Registered User

    Jun 20, 2003
    Sleeping Patterns

    My mother has Alzheimers and is on Aricept 10mg. She also seems to have a very disturbed sleep pattern, wakes during the night and then wakes early morning. She then seems tired during the day, so naps a lot which makes the cycle worse.

    Our consultant says sleep is not affected by the drugs, but I am not convinced by this.

    As my mum lives alone at the moment, and won't go to a day centre, it is hard to know how to stop her sleeping during the day.
  12. Norman

    Norman Registered User

    Oct 9, 2003
    Birmingham Hades
    I don't think sleep is affected by the drugs,my wife is on 10 mg Aricept.
    There is no pattern to her sleeping,some good nights ,some bad,and does not often sleep in the day,
    This is after 7 years.
    Only my opinion
  13. Lin

    Lin Registered User

    Mar 12, 2005

    My husband was on aricept 10mg , he did not sleep very well and my consultant said that some patients find their sleep pattern is disturbed so he said to change it to the morning , i did and his sleep got better, i just wished i had known this and i would have changed to mornings earlier but you just plug on hoping things will improve before you say anything.
  14. angela.robinson

    angela.robinson Registered User

    Dec 27, 2004
    hi .my JIMwas on aricept for 4 years and never had trouble sleeping ,he always took it at morning ,with every other medication.and i will keep repeating ,keep them on this medication as long as possible ,as the more i hear of people being taken off it ,the more i hear of the rapid deterioration,ANGELA
  15. linda_ann

    linda_ann Registered User

    Jul 23, 2005
    Liviing in France

    I was given your details by the administrator as you appear to be the only person living in France registered on this site. Would you be willing to discuss the medical cover and support you receive in France? You see I live in Normandy and my parents live in Berkshire. Mum has recently been diagnosed with alzheimers and Dad is finding it diffculte coping as he is not very moble now. I would like them to come over to live near me, I am an only child, but am afriad she will not receive the support she will need. Any comments would be very much appreciated
  16. Brucie

    Brucie Registered User

    Jan 31, 2004
    near London
    Hi Linda

    ...just to clarify: I'm just a carer, like yourself, not an administrator. I do help with hosting the forum, but while I may do a wee bit of admin here, I hold no post of administrator.

    I remembered this thread from a while ago and thus recommended it to you.

    Best regards
  17. Michael E

    Michael E Registered User

    Apr 14, 2005
    Ronda Spain
    #17 Michael E, Aug 23, 2005
    Last edited: Aug 23, 2005
    Living in France

    Linda hi,
    Been away and only got back this evening. Will be delighted to help with
    whatever info you want - just ask specific questions...

    You need to become a Resident to clock into the French System. Basically you
    go to the Prefecture with your parents passports (and your own) and say you
    wish to become a resident of France and fill out a few forms with your
    French address (which should be your primary residence but nobody checks)
    and a few days later you get a French ID residents card. This clocks you
    into the Social Security system - they want an 'on your honour' statement of
    your earnings - pensions etc. If you are paying your tax in the UK then of
    course you do not pay it in France EXCEPT you have to pay the social
    security payments for ever (not stopping at retirement age) These are on a
    sliding scale but as far as I can see the top of the scale is around £10,000
    a year. The payments you make (can be monthly) for a couple are about
    £1,000 - £1100 a year.

    For this you get treatment and help far in excess of that provided by the
    NHS in UK. The French will give you a vital card for each person. This is
    simply a way of simplifying the accounts system. If you make your SS
    payments by standing order from a French bank account then they will credit
    your account monthly with your benefits.... Visiting a GP is 20 Euro. A
    specialist - neurologist - 35 I think and the brain scan X-rays are about
    £120. You have to pay these fees up front but then the system reimburses
    you. Normally you are reimbursed 65-75% depending on item. As my wife has AD
    she is considered to have a 'sickness of long duration' and
    everything -brain scans, x-rays, blood tests, neurologist, hospital, drugs -
    the lot is reimbursed 100%. The treatments cost nothing at all. You can have
    specialist 'brain exercising people give 'help' once or twice a week FOC.
    Normally you can visit your GP with a few hours notice and the neurologist a
    couple of weeks - brain scans 10 days or so.....

    So having become a resident and making your parents residents you get your
    ID card and social security umber and card. Find a GP that speaks some
    English unless your French is good - the GP will then send your parent to a
    neurologist for a final diagnosis - when that is done you will go back to
    your GP who will inform the SS that it is "un malady de long duree" and from
    then on all is free except you have to pay the fees up front and have them
    reimbursed within 7 days. the Drugs - Aricept etc will be handed you FOC by
    the chemist as the Vital card will inform them your parent is entitled to
    free drugs. Wonderful system and they will also provide help to carers so
    they can have 'time off' now and then.....

    Let me know what else you want? I have
    to be a bit circumspect as my wife prefers not to acknowledge she has
    Alzheimer's and refers to it as a slight memory problem - sometimes she does
    not know who I am!!!!

    I think the French are very organised and provide a first class system. My impression is it is far more caring than the UK system but there is a bit of a language barrier unless you speak French.


    Please visit my web site if you have time
  18. Myrtle

    Myrtle Registered User

    Oct 14, 2005
    Wets Yorkshire
    Sleeping problems

    My father has only slept for 2 hours a night for the last 3 weeks. This is usually between 9 & 11 PM. Then he wakes my mother every half hour or so until its a decent time to get up. He keeps saying he will die if somebody doesnt feed him. My mother is now very tired and stressed. She is 76 yrs old. My father is 75 yrs old. We have tried many things and wondered if anyone could come up with some more suggestions please.
  19. Norman

    Norman Registered User

    Oct 9, 2003
    Birmingham Hades
  20. blue sea

    blue sea Registered User

    Aug 24, 2005
    Hi Myrtle

    I had very similar problems with dad not sleeping when I cared for him. In the end that was one of the main reasons for him going into residential care. He wanted to go to bed earlier and earlier - 5 or 6 pm sometimes, couldn't dissuade him. He would sleep a couple of hours and then get up. Would continue like that throughout the night, getting dressed each time and trying to leave the house. I have to say the medication the GP prescribed was absolutely no use at all. Suggest trying to get a psychiatric referral. A CPN (community psychiatric nurse) might be able to adapt medication in consultaton with consultant to improve things. It's strange but some people with dementia seem to sleep a lot, others, probably in the minority, sleep hardly at all. The latter becomes so stressful for carers to deal with because it's so impossible to cope when your own sleep is so disturbed. Perhaps asking for your dad to have some temporary respite care in a home every few weeks would help your mum? Your mum is entitled to a carer's assessment of her needs from social services. After all her health is just as important as your dad's and this must be a huge strain on her.

    Thinking of you
    Blue sea

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