Thanks I think you have expressed something there many of us try to do on a daily basis, let alone the privelage of being able to look back.On this forum there is a never ending flow of distressed accounts of individuals trying their utmost without any (or grossly inadequate) support to care for their loved one as dementia inevitably progresses and takes its toll. Unfortunately it is is only those of us who have been in this situation that really understand that the impact of dementia is just as dire on that caring individual. But in this era of "me too", amongst all this anguish and heartbreak, it is inspirational to read just how many people are doing, and will do, against all the ceaseless obstacles, their absolute utmost for their loved one throughout the dementia journey.
Thanks Nitram, the whole process has been rushed because of the deadline on 31st March, and the wording of the letter is not quite in line with what the guidance says:An appeal primarily based on failure to follow due process with incorrect assessment thrown in for good measure is often the best way to proceed.
Thanks, I can't help feeling now the emergency funding has come to end many people nationally will be finding this result. Anyway the only thing I can do is appeal, but I'm not doing it on my own....I'm now at a stage where I do feel completely done in with the whole journey, which has been one of constant fights to get mum the help she needs.might help
Making sense of CHC
Alzheimer's Society volunteers are supporting people through the complex process of continuing healthcare (CHC) appeals.www.alzheimers.org.uk
Thanks @Sarasa -mum is well cared for -as much as anyone could expect in an EMI unit. I do think its time they allowed the hairdresser in though -even if mum can't tolerate a perm as she use to have, at least a cut would go a long way.Your mum is looking very stylish and well cared for. Probably a good idea about hiring the law firm. Often things move in the right direction when the right legal language is used.