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We all get slight chnages as we get older and our heart is one of those changes, but in some more than others. Its another complication to add to the list . Any management of heart failure with medication also means the risk of falls, but equally not managing means the risk of collapse and fall as well as discomfort. I had a long chat with the GP and agreed to trial bumetanide to offload any strain on the heart, but essentially heart failure means just that -a failing heart, the only long term solution is transplant, which of course would not be appropriate for anyone at this stage in their lives. Anyway we agreed the most important thing for mum is that she is not distressed or in any discomfort, so thats the aim. It also changes the game a bit in terms of what will ultimately be life limiting -HF or dementia?I can't believe it's two years. And sorry to hear the confirmation of heart failure - I know you've thought this for a long time. Can anything be done or is it just One More Thing...?
Thanks, its true I am never short of words, but to be honest what I have found in the research has made me feel angry and also unable to articulate the rest of the article without being overly contrite -its about finding the right fix and pitch and to be frank I am sick of hearing about finite resources, efficiency of care provision and cost effectiveness because it creates a huge big paradox for people with dementia when they need acute care. The very thing that has become a target (efficiency) is the very thing that does PWD no good at all. I have spent today trying to justify my fidnings and by chance found Goodharts law further emplified by an eminent Cambridge Prof Marilyn Strathem, so I have tomorrow left to now re-write and hand in to the board by 22nd Dec as a prelim to a fully funded PhD