Hi, I have just joined this group today.
I have never come across anyone in my situation so was hoping maybe someone on here would understand or have a similar circumstance?
My Mum was diagnosed with Semantic Dementia aged 61 (she is now 64) which has been extremely difficult, she had to leave her job, stop driving etc. She has recently stopped eating as she says it’s too painful and the food/drink won’t go down / I feel like I’m forever in touch with doctors as something always seems wrong with her every day she complains of a different pain in different areas ?
I don’t live with my Mum although luckily she is very close by, however my Mum has full custody of my Nephew (since he was 4 he is now 12). So not only do I have to help my Mum, I also have to help him. I literally never stop with calls/meetings - doctors/GP/hospital/social workers/benefits for Mum, Young Carers/school/social workers for my Nephew. I have a contact from Adult Carers who is wonderful - but I am absolutely exhausted. I’m 42 and feel like I’m 92 at the minute and trying to hold down a full time job? I love my mum so much and watching her deteriorate is horrific, in just 3 years the decline is bad, I wasn’t prepared for it to be this quick.
Does anyone have a situation like this where I have 2 vulnerable people in a house not living with me, but who I have to try and care for? Any help/advice would be gratefully received ? x
I have never come across anyone in my situation so was hoping maybe someone on here would understand or have a similar circumstance?
My Mum was diagnosed with Semantic Dementia aged 61 (she is now 64) which has been extremely difficult, she had to leave her job, stop driving etc. She has recently stopped eating as she says it’s too painful and the food/drink won’t go down / I feel like I’m forever in touch with doctors as something always seems wrong with her every day she complains of a different pain in different areas ?
I don’t live with my Mum although luckily she is very close by, however my Mum has full custody of my Nephew (since he was 4 he is now 12). So not only do I have to help my Mum, I also have to help him. I literally never stop with calls/meetings - doctors/GP/hospital/social workers/benefits for Mum, Young Carers/school/social workers for my Nephew. I have a contact from Adult Carers who is wonderful - but I am absolutely exhausted. I’m 42 and feel like I’m 92 at the minute and trying to hold down a full time job? I love my mum so much and watching her deteriorate is horrific, in just 3 years the decline is bad, I wasn’t prepared for it to be this quick.
Does anyone have a situation like this where I have 2 vulnerable people in a house not living with me, but who I have to try and care for? Any help/advice would be gratefully received ? x