1. canary

    canary Registered User

    Feb 25, 2014
    9,632
    Female
    South coast
    The continence nurse called yesterday to see how it is going. I told her that I seemed to be able to do it OK and OH is compliant, but I was concerned about my back and what would happen if I was unable to do the catheterisation. She gave me an emergency phone number to call if I was unable to do it and she said she would ask her colleges about my back problem. She phoned me back again later to suggest a gardening stool that could be turned up-side down so that it was a kneeler with arm rests - one like this https://www.nrshealthcare.co.uk/household-aids/gardening-tools/garden-kneeler
    I think it will do the job and Ive ordered one (if it doesnt work I can always us it in the garden!)

    Today, though was my worst nightmare. OH had a seizure while I was doing the catheterisation :eek:. Fortunately Im well used to his seizures and know how to deal with them, so I just paused and carried on when I could, then put him to bed. I dare say that it would have hurt him while he was fitting, but he would not have been aware of it and having drained his bladder it meant that he could sleep peacefully. He has had a couple of more seizures today, so Ive been a bit on edge listening out for problems. So, Ive got through the worst case scenario and it was OK. Not good, but OK.

    I think that for now this is working. If something changes, like continued problems with my back, or OH no longer accepting me doing it then I will have to think again, but that is the way of dementia. If it works for now then that is the best we can hope for.
     
  2. Baby Bunty

    Baby Bunty Registered User

    Jan 24, 2018
    297
    Well done..but i still done understand why a nurse cant come morning and night to empty bladder..please take care off your.xx
     
  3. Patrioted

    Patrioted Registered User

    Jul 4, 2017
    23
    Simply refuse to do it. There is no law that
     
  4. Patrioted

    Patrioted Registered User

    Jul 4, 2017
    23
    Simply refuse to do it. There is no law requiring you to do it. They can ask or suggest but never require that of you. Tell them to find a professional to do it or you will report them.
     
  5. canary

    canary Registered User

    Feb 25, 2014
    9,632
    Female
    South coast
    Yes, I could refuse to do this, but it has been made very clear to me that if I cant/wont do this then the only other alternative is for OH to have a supra-pubic catheter done under a general aneasthetic and I want to avoid that. I am not sure what grounds you feel I could report them on.
     
  6. AliceA

    AliceA Registered User

    May 27, 2016
    2,136
    You seem in a Catch 22. However it could be the risk of an operation versus the risk to your health and your back may at some point work in favour of the operation.
    Sometimes a healthy (?!) advocate is more useful than a broken carer who can no longer care.
    I am so very sorry for you, sometimes it is hard to make a decisions. love Alice, xxx
     
  7. canary

    canary Registered User

    Feb 25, 2014
    9,632
    Female
    South coast
    Im not having problems with actually doing the catheterisation @AliceA and Im hoping the kneeler I have ordered will solve my back problem. It may be that at some stage in the future OH will have to have the operation, but as I said - for now its doable.
     
  8. AliceA

    AliceA Registered User

    May 27, 2016
    2,136
    Just take care of yourself. X
     

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