1. dmc

    dmc Registered User

    Mar 13, 2006
    hello everyone.

    Ive been wondering if anyone on TP has gone for a second opinion?

    and if so how do you go about it?

    Im not happy with mums diagnosis and would love to get a second opinion but

    just dont know how to do it?

    I have been to my own GP and she said she would write to the consultant but

    nothing has come of that.

    Either she didnt write or he chose to ignore it :confused:

    any advice would be helpfull

    many thanks

    donna x
  2. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    Hello Donna.

    To get a second opinion you need to ask your GP to refer you to a consultant other than the one you have seen. The GP does the referral, not the first consultant.

    Hope you are well.

    Love xx
  3. Tender Face

    Tender Face Account Closed

    Mar 14, 2006
    NW England
    Hi Donna. My general understanding of 'second opinions' is that they are generated through a GP. Problem with dementia is that consultant psycho-geriatricians are generally quite thin on the ground ..... and so securing even a 'first opinion' can be a battle - or at least a test of patience to secure one.

    My understanding is that your mum is quite young and, like many here, may not fall into 'geriatric' care - in which case - what type of consultancy are we looking at here?

    I'm sorry, I don't know the answers ....... just hope someone comes along soon who can help you more with practical advice,

    Hugs and loves, Karen, x
  4. dmc

    dmc Registered User

    Mar 13, 2006
    thankyou both for you replies xx

    Ive been to my GP and asked for a second opinion and she did say she would write but nothing happened?

    i know i need to go back and ask again so thats my next move, but if there is another way anyone knows about as in going private??

    would i need to see my GP about a private consultation?

    thanks again

    donna xxx
  5. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    Yes, you still need a referral from your GP for a private consultation.
  6. alfjess

    alfjess Registered User

    Jul 10, 2006
    south lanarkshire
    Hi DMC

    You do need referal from your GP to a consultant, but if you know the name of a consultant you would like to use then your GP should refer you to the consultant of your choice.

    Do you know anyone who has already had a second opinion?

    I haven't had to do this with my parents, but I should think there is maybe a list somewhere, like the Law society when you are looking for a specialist solicitor.

    Take care
  7. Brucie

    Brucie Registered User

    Jan 31, 2004
    near London
    this was certainly the case with my Jan.

    She was 50 and they sent us all around the rigging before we ever got to the right consultant because, of course, she neither fitted the profile for a geriatric consultant, nor was she of an age to get dementia [huh!] so that wasn't even considered as a possible condition.

    Given the proportionally high number of young onset people on TP methinks some rethinking on the part of all concerned is necessary in the area of demographics.
  8. Cate

    Cate Registered User

    Jul 2, 2006
    Newport, Gwent
    Hi Donna

    First of all I would write to Rhondda Cynnon Taff Health Board and request a copy of your mums medical records from the hospital, as you know I work for Gwent NHS Trust, and they charge £50:00, and I think thats the maximum. The letter will have to be signed by dad as mums next of kin, but with freedom of information they cannot refuse.

    Once you have these, you can then see what has been done, not done, said and not said, and what if any, diagnosis they have come up with. I think this is your first starting point. If there are any parts of the records you cannot read say due to bad hand writing, you are within your rights to ask for a typed transcription of these sections.

    I would go through the notes carefully, this will give you a good indication of what tests have been carried out, and more to the point, what hasn't been carried out.

    Armed with this information, you can then go back to your GP and state because you are not happy with X Y and Z, you are asking for a second opinion.

    I am very surprised mum has never been referred to UHW, and I think this would be your next step.

    If you need any help, you know all you have to do is shout.


    Cate xxxxxx
  9. cariad

    cariad Registered User

    Sep 29, 2007
    hi, put it in writing to your G.P that you want a second opinion and send the letter by recorded delivery. It's worth a try.
  10. Margarita

    Margarita Registered User

    Feb 17, 2006
    #10 Margarita, Oct 14, 2007
    Last edited: Oct 14, 2007

    Seeing that you mother doctor taking a long time, as I remember you asking this question a very long time ago , sounds like the only way forward now is Complaints.

    But you can forewarn Doctor if you like

    Write in letter to doctor ...giving doctor a time limit to do referral for second opinion, from date of your letter to doctor . if its not done by the date you given make the Complaint..... photo cope all letter to doctor
  11. Margaret W

    Margaret W Registered User

    Apr 28, 2007
    North Derbyshire
    Hi dmc,

    I wonder what you are not happy with - either that your mum has been diagnosed with dementia and you don't agree, or has NOT been diagnosed with dementia? In our case it was the latter, and we knew it wasn't correct. I would have sought a second opinion if it were not for the fact that the police found her in the street at 2 a.m. waiting for a bus to town.

    Once the police are involved, things tend to move, but it was a dangerous situation for mum to have been in, and I wish I'd sought the second opinion earlier.

    Good luck with your quest. Do what you think is right.

  12. dmc

    dmc Registered User

    Mar 13, 2006
    Hello all

    many thanks for all the replies,

    Im at the moment talking to my dad as i think if he asked for the second opinion we might get somewhere, as ive already brought the subject up with my doctor.


    My mum's dementia was brought on as she suffered brain damage when she had a heart attack and was starved of oxygen. that was july 2004
    Her consultant told us in february of 2006 that she had a very progressive form of dementia similar to CJD and she would not last the year out.
    the following september during another meeting the consultant told us that mum had proved them wrong and that he couldnt tell us now how long she had left or what type of dementia she has!
    that is a short version of mums situation, perhaps a second opinion wouldnt be able to tell us any more than we already know but i feel we owe it to my mum to try and find out a bit more.
    donna x

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