Same but different!

[Caz60]

Hi everyone,I read all the posts mostly everyday and everyone has a different situation.While we are lucky ,at the moment we sleep very good each night until the dreaded morning.
Every morning without fail I wake up to see my hubby in tears and agony of stomach pain and pressure in his head.His words are usually I feel rotten or I feel terrible .He shakes all over and I just comfort him have a cup of tea and toast and tablets.
Eventually it eases just a bit and then we carry .We have visited doctors for scans and tried every possible medication,(he is currently on Mementine) may I ad he's been like this for 6 years.It all started with instant anxiety and has never gone away.
I just don't know what to do for him he is or was midway into LBD.
Is anyone else suffering in this way?

 

[truth24]

Welcome Caz. Wish I could offer you some comfort other than to offer a big hug. Hope they can find something to help your husband's soon. Best wishes.

 

[Caz60]

Welcome Caz. Wish I could offer you some comfort other than to offer a big hug. Hope they can find something to help your husband's soon. Best wishes.

Thankyou ,so much .Its a lovely day here in Blackpool and I feel so sad .But as always we will survive another horrible day .Thanks again for your reply .x

 

[esmeralda]

Very sorry for you and your husband in this dreadful situation Caz. You've obviously tried everything you can think of, and the relentlessness must be so hard to cope with.
I can't offer any advice I'm afraid but perhaps there will be others on here who have had similar problems. Sending you both love and good wishes. Es
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[Caz60]

Very sorry for you and your husband in this dreadful situation Caz. You've obviously tried everything you can think of, and the relentlessness must be so hard to cope with.
I can't offer any advice I'm afraid but perhaps there will be others on here who have had similar problems. Sending you both love and good wishes. Es
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Thankyou for your reply and comfort it's invaluable.Things are a little easier now it's almost lunchtime,it does pass thankfully but it takes the wind out of your sails doesn't
it.Ive had a cry and a moan now it's time to get on with it .Hope you all have a good day
Love caz x

 

[Diannie]

Hi Caz60. I have just read your post. I am new to this forum but have just read your story. My husband has been taking Donepezil for over a year with no problems. However a couple of months ago his Consultant has prescribed Memantane. Within 2 weeks he started experiencing all the side effects you mention. My question was whether any one else had experience of this drug. In desperation I decided to stop him taking them after 6 weeks and within the last 2 weeks all the bad side effects have disappeared.


Sent from my iPad using Talking Point

 

[esmeralda]

It must be really hard to know what to do for the best for both of you, Caz and Diannie.
Hope your husband is starting to feel a little better by now Caz. Do keep posting on TP if it helps, there's always someone around. Love and hugs, Es
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[Caz60]

It must be really hard to know what to do for the best for both of you, Caz and Diannie.
Hope your husband is starting to feel a little better by now Caz. Do keep posting on TP if it helps, there's always someone around. Love and hugs, Es
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Hi everyone',At the moment my hubby is down to 10mgs each morning and the clinic have advised to give the change over time to settle down ,around 3weeks .
I must admit he is feeling a little better of a morning for the last three days,he has even laughed .So all we can do is wait and persevere for a bit longer and really hope that he can have a level of life that we know is the best he can be .
I know all drugs for Dementia are controversial but if he gets some quality for a little longer that would be great .
I will keep in touch because any information regarding Mementine for others can be helpful ,take care all of you and thanks for the care .caz xx