1. Expert Q&A: Protecting a person with dementia from financial abuse - Weds 26 June, 3:30-4:30 pm

    Financial abuse can have serious consequences for a person with dementia. Find out how to protect a person with dementia from financial abuse.

    Sam, our Knowledge Officer (Legal and Welfare Rights) is our expert on this topic. She will be here to answer your questions on Wednesday 26 June between 3:30 - 4:30 pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

  1. Louise

    Louise Registered User

    Dec 19, 2004
    22
    PEMBROKESHIRE
    __ ROSE HAVE THORNS__

    AGE> SIMPLY A WAY OF MEASURING TIME
    FIRE> IT KEEPS US WARM,BUT, IF YOU GET TO CLOSE IT BURNS
    NETTLES> BOIL THEM UP, YOU CAN EAT THEM, THEY'RE GOOD FOR YOU FULL OF VITS, TOUCH A NETTLE GENTLY AND IT WILL STING YOU
    TWO SIDES TO EVERY COIN
    DIFFERENT MEANINGS TO EVERY WORD
    BEHIND THE WALL IS SOMETHING ELSE
    I LIKE CHOCOLATE> TOO MUCH MAKES YOU FAT
    TIME TICKS ON> YOU CAN'T TURN IT BACK
    I'M GOING BLIND> YET MY HEARING IS GETTING BETTER
    I'M GETTING OLD> NOW I KNOW MORE
    I LOVE LIFE> I'M AFRAID OF DYING
    I'M CONFUSED> WHY?

    I'm 75 yrs of age and i'm ready to go home to see my mother- she's waiting for me, with my dinner ready and i'm going to see her.
    I'm going to see her. I'm taking a photo of myself when i was about 5yrs old, she'll be so pleased to see me.
    I need to get there now, so don't try and stop me, because if you do i'll get really cross.
    You think i'm mad and i've lost my marbles.
    But, i know why i'm going! Because i can't come back
    I CAN'T BE ALL THAT I'VE BEEN BEFORE and I CAN'T BE ALL THAT YOU WANT ME TO BE.
    I'M going, i'm on a mission, and when i get out of the door i'm on my way. I'm running now , i need to get there quickly, because i'm frightened. I don't understand why people are trying to stop me, but, i wish somebody could.
    If only i could get back to where i started from, maybe, i could remember where i belong. My reasoning has gone and i don't know where i want to go or where i'm coming from.
    I can't get dressed in the morning because i don't know what to wear. I don't know where i'm going or for what reason,so, why should i bother.
    Are my clothes alright? I don't know. Somebody tell me what to wear! Somebody dress me! I can't do this anymore.
    What are these things in my mouth, they feel like aliens, i think i'll get rid of these > SO I DO!!!
    I don't want to eat, why are people feeding me all the time.
    '****** off!!' i say 'What are you doing?'
    'Leave me alone, who the hell do you think you are?!!!'

    Nobody is listening to me now, i just can't tell them what i want and if i try to, nobody understands. They won't take me home, and that is all i want, to go home.
    Thay tell me what to do, but they don't hear me. No one understands why i need to see my mother. I do, i think they're scared now. Scared i might get lost or hurt myself, so thay don't know what to do.

    I am lost and so are they. WE HAVE A PROBLEM!!!!!

    I am getting worse. I can't remember my husbands name or why i'm married to him. I can't remember my childrens names or my grandchildren, who all mean't so much to me.
    I was proud, and took great care of my appearance, but now, that means so little to me. I can't remember what matches or looks good. In fact i can't remember much at all about anything.

    People say things to me, i can't understand what they say. I listen but it won't go in, so than i can't reply.
    I can smile, i know their faces, they seem familiar, but i'm not sure who they are.
    I know i know them, because they're affectionate towards me and they say nice things that make me smile and even laugh. Sometimes i even sing to them. But i wish i could find something, someone, anything, but i can't. I'm incapable of relating to anything or anyone.

    I don't want a bath. I don't want my hair done. I don't want to be dressed or undressed. I don't want food or drink. But i still want to go home.

    The others they just want me to stay where i am> SO I DO
    The others just want me to be safe where i am> SO I DO
    The others don't really know me anymore because
    i've changed> SO I DO

    Do you know what i am ?????????????

    I AM A PERSON WITH ALZHEIMER'S, WHO CANNOT MAKE DECISIONS, WHO CANNOT THINK, WHO CANNOT REMEMBER OR REASON, BUT, I CAN STILL RECOGNISE!!!!
    SO, DON'T FEEL BAD ABOUT ME GOING INTO A NURSING HOME, BECAUSE, IF I COULD THINK, REMEMBER, AND MAKE DECISIONS I WOULD HAVE DONE EXACTLY WHAT YOU DID, AND FELT EXACTLY THE SAME WAY. WE ARE HUMAN, ALL OF US, IF YOU CAN'T GET BACK TO WHERE YOU CAME FROM BECAUSE YOU CAN'T GO BACK, THEN ALL YOU CAN DO IS GO FORTH,
    JUST LIKE ME!!!!!!!!!

    Written by Louise Dec 2004
     
  2. Brucie

    Brucie Registered User

    Jan 31, 2004
    12,413
    near London
    Hello Louise,

    Stunning.

    Thanks, you are very perceptive and put it into words so amazingly well.
     
  3. Louise

    Louise Registered User

    Dec 19, 2004
    22
    PEMBROKESHIRE
    Brucie,
    thankyou, i've been very hesitant about posting this thread, i really don't want to upset anyone. But when we are in the woods and can't see anything but the trees, its really difficult to step outside and look in. Just lately i feel like i've been on a voyage of discovery
    Quote' When we walk to the edge of all the light we have
    and take the step into the darkness of the unknown,
    we must believe that one of two things must happen:
    there will be something solid for us to stand on, or we
    will be taught to fly.' by Patrick Overton.
     
  4. Nutty Nan

    Nutty Nan Registered User

    Nov 2, 2003
    785
    Buckinghamshire
    Louise, you are wonderful, your words are so touching, and your quote has been one of my favourites for a long time.
    Lots of love, Carmen
     
  5. Sheila

    Sheila Registered User

    Oct 23, 2003
    2,259
    West Sussex
    Dear Louise, your powers of observation and your ability to write it down are wonderful. You said so much about how the sufferer feels in the way they would say it if they could. Well done, I am sure it will help us all to see through their eyes a little more. Love She. XX
     
  6. barraf

    barraf Registered User

    Mar 27, 2004
    308
    Huddersfield
    Dear Louise

    What a beautiful piece, a true observance of an Alzheimer's sufferer.

    Do you mind if I print it and take it to my support group, where I am sure it would be well received.

    Barraf
     
  7. Louise

    Louise Registered User

    Dec 19, 2004
    22
    PEMBROKESHIRE
    Barraf,
    By all means, if you think it will help with the support group, use it. To take a moment and see through eyes of the one who cannot say, may just give some answers and understanding
    Let me know how it goes
    Take care love Louise xxx
     
  8. Jude

    Jude Registered User

    Dear Louise,

    Beautifully written and so very moving. Thank you.

    Jude
     

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