I have had the conversation with my children about when the need for permanent care might arise. He is not at that time yet but only because I have managed to put some home care in place. Last week I was at the end of my tether, but struggled through. Wherever the person is being cared for, the disease progresses and we all worry about the symptoms, I know I do as I wonder if I am doing the right thing by him. It won’t be long before his mobility is even worse than it is now, and then what? A bedridden person is very difficult to care for alone and I couldn’t manage that. So you are doing the right thing by your wife.Sorry that you are going through this too. It's so difficult to watch their decline.
I am dreading these next few weeks, not only for the possibility of further deterioration but also the whole process of assessments, best interest meetings etc.
I would dearly love to have my wife back at home, but unless her mobility improves, I cannot see me being able to cope and I do not think that it would be in either of our best interests.