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Regular check ups after cognitive impairment diagnosis?

Discussion in 'Recently diagnosed and early stages of dementia' started by El31, Oct 5, 2019.

  1. El31

    El31 Registered User

    May 21, 2018
    48
    So my mum has a cognitive impairment diagnosis since feb this year.. she has been deteriorating for past 5 years and she is just becoming more and more odd by the day. Her memory is still there but it’s her behaviours and brain scan which led to diagnosis. Anyway, dad is struggling massively, infact we all are and are struggling to be around her without snapping which I don’t want to do but it’s so hard sometimes. I was just wondering how often you should be checked after your first brain scan and diagnosis ? I feel she needs to have a brain scan once a year which we will happily pay for privately but I don’t know if this is the norm. She has deteriorated since her diagnosis and we are just waiting for them to say it’s dementia now , but all the while her memory is there they can’t diagnose dementia apparently
     
  2. canary

    canary Registered User

    Feb 25, 2014
    10,536
    Female
    South coast
    That is not actually true.
    There are several types of dementia in which memory problems do not appear until much later in the disease. The two most common of these are Frontotemporal Dementia and behaviour variant Alzheimers. Go to the GP and get a referral back to the memory clinic. When you get the appointment make sure that the doctor is aware of the behavioural changes, because there are no tests for this, so if they dont know then they may not pick up on the problem. If you do not want to say things in front of her then make sure that you write a letter outlining the problems and make sure that the clinic receives it before her appointment. I do this and quite often hand the letter discretely to the nurse before the appointment.
     
  3. El31

    El31 Registered User

    May 21, 2018
    48
    Thank you so much for your comment, yes I was aware of frontal lobe dementia but I thought it would have showed on the scan? Maybe not. The scan showed small vessel damage and when I spoke to the memory clinic on the phone before I took her to the appointment they openly told me that if they were going by the scan and behaviours I describe then it’s definitely vascular dementia but she got 98% in the memory test, dad and I couldn’t bloody believe it
     
  4. canary

    canary Registered User

    Feb 25, 2014
    10,536
    Female
    South coast
    The symptoms of vascular dementia depend entirely on where the blood vessels are affecting the brain. If the frontal lobes are affected then there will be similar symptoms to FTD. About 50% of people with cognitive impairment have their diagnosis changed to dementia within a year, so if there is continued decline it is worth going back
     
  5. El31

    El31 Registered User

    May 21, 2018
    48
    Thank you very much. I have googled it and her symptoms do point towards that.
    I will try and persuade her to go back
     
  6. Sirena

    Sirena Registered User

    Feb 27, 2018
    1,651
    Female
    You can certainly ask for another referral when her symptoms worsen. My mother was diagnosed with MCI but within 9 months her symptoms has worsened to the extent I got her another referral to the memory clinic and by that point her test scores indicated dementia. She only ever had one scan, fairly late in the process. Scans aren't necessarily that useful as someone can have bad symptoms and little damage showing, or vice versa.
     
  7. AliceA

    AliceA Registered User

    May 27, 2016
    2,417
    A new GP requested a further assessment and was told no, the illness is progressive. The 2015 one was sufficient.
    She wanted to know but was unable to.
    I am going on behaviours but these can alter from day to day and hour to hour.
     
  8. daddyg

    daddyg New member

    Oct 12, 2019
    2
    I have been diagnosed with cognitive memory loss,at my local memory clinic about 18 months ago.Just waiting for another appointment as wife says I had a met down 12 days ago.
     

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