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Received letter from research team to test new drug for Mum

Discussion in 'I care for a person with dementia' started by SueShell, May 31, 2015.

  1. SueShell

    SueShell Registered User

    Sep 13, 2012
    403
    Orpington
    #1 SueShell, May 31, 2015
    Last edited: May 31, 2015
    Our local hospital group are doing some clinical trials on a new drug for hullucinations in AD sufferers. The recipients will either get the drug or a placebo and they would do blood and urine tests weekly for 12 weeks. However the drug isn't licensed yet and they would have to take Mum off her medications she is taking at the moment. I would have agreed but as Mums mood and appetite are now greatly improved and I didn't want to jeopardise her progress. I wrote a letter declining Mum to take part but wished them well, but that I would have preferred this money to go towards finding a cure rather than a drug to try and surpress part of the symptoms of this terrible disease which inevitably can't be halted towards the end of its awful journey.
     
  2. sistermillicent

    sistermillicent Registered User

    Jan 30, 2009
    2,951
    I think I would have done the same as you. Your poor mum has had enough suffering so to disrupt things now when she is comfortable would be rather harsh.
     
  3. angelface

    angelface Registered User

    Oct 8, 2011
    1,086
    london
    I think you are wise to refuse the drug trial, as those weekly blood tests would be distressing for mum.
     
  4. Beate

    Beate Registered User

    May 21, 2014
    11,715
    Female
    London
    We have just been invited for a drug trial where he'd have to undergo tests 31 times in the next three years. Apart from the fact that they seem to think his Alzheimer's is still mild, are they kidding me? No way would I subject him to that much hassle.
     
  5. LYN T

    LYN T Registered User

    Aug 30, 2012
    6,968
    Brixham Devon
    Sue, I really think that you have made the right decision. Your Mum is now settled and I think the routine must be good for her-no need to upset the apple cart. I also agree with you about the funding going towards research to find a cure.

    Love

    Lyn T XX
     

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