Hi. I'm really upset tonight over a tissue box!!!!
Mum lives with me and I have no idea of what stage she is, but basically she cannot do anything for herself now regarding showering and toileting, is incontinent at night but rarely in the day, has very little recollection of the past but often surpises me what she remembers day to day and is unable to make a cup of tea or anything anymore. However, she can have reasonable conversations although she does get her words muddled at times, still sings, enjoys going out and socialising as long as I am with her but she won't go out to a day centre or Salvation Army lunches or Over 60's without me so I am with her all the time and am her sole carer. That is not a problem as I was a carer before she came to live with me until earlier this year, and gave up work to look after her and at the moment do not need any outside help. She is easy to be with and has never been any real trouble.
However, tonight after putting her to bed earlier than usual, I was on the computer when she called me upstairs and was really distressed. All it was about was that her tissue box had fallen on the floor from the bedside table and she couldn't reach it. She then got all silly and started sobbing, well grizzling really, and being really difficult, not aggressive exactly but not at all like her normal passive self. This is not a side I have seen of her before and I have always thought myself lucky as how she is so easy to be with (although she sometimes gets upset about getting up some mornings and having a shower) and it's really upset me.
Have we reached some sort of turning point in this dreadful illness? I'm feeling really bad as although I truly have the patience of a saint, I got a bit annoyed and told her it was only a tissue box, the problem was sorted and to stop being silly and I was going back downstairs. I feel I was a bit tough on her which I've never had to be before but she got herself in such a state.
Mum lives with me and I have no idea of what stage she is, but basically she cannot do anything for herself now regarding showering and toileting, is incontinent at night but rarely in the day, has very little recollection of the past but often surpises me what she remembers day to day and is unable to make a cup of tea or anything anymore. However, she can have reasonable conversations although she does get her words muddled at times, still sings, enjoys going out and socialising as long as I am with her but she won't go out to a day centre or Salvation Army lunches or Over 60's without me so I am with her all the time and am her sole carer. That is not a problem as I was a carer before she came to live with me until earlier this year, and gave up work to look after her and at the moment do not need any outside help. She is easy to be with and has never been any real trouble.
However, tonight after putting her to bed earlier than usual, I was on the computer when she called me upstairs and was really distressed. All it was about was that her tissue box had fallen on the floor from the bedside table and she couldn't reach it. She then got all silly and started sobbing, well grizzling really, and being really difficult, not aggressive exactly but not at all like her normal passive self. This is not a side I have seen of her before and I have always thought myself lucky as how she is so easy to be with (although she sometimes gets upset about getting up some mornings and having a shower) and it's really upset me.
Have we reached some sort of turning point in this dreadful illness? I'm feeling really bad as although I truly have the patience of a saint, I got a bit annoyed and told her it was only a tissue box, the problem was sorted and to stop being silly and I was going back downstairs. I feel I was a bit tough on her which I've never had to be before but she got herself in such a state.
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