Reality bites-this is not how I thought it would be

Discussion in 'I care for a person with dementia' started by tre, Dec 8, 2015.

  1. canary

    canary Registered User

    Feb 25, 2014
    11,111
    Female
    South coast
    (((hugs)))) tre
    I hope they can get the syringe driver sorted out quickly.
     
  2. Beetroot

    Beetroot Registered User

    Aug 19, 2015
    362
    I nursed my husband at home to the end. It's tough, exhausting and heart breaking, but you will never regret it; I found that was a comfort of sorts. Thinking of you.
     
  3. LadyA

    LadyA Registered User

    Oct 19, 2009
    13,552
    Ireland
    Oh, tre. I'm so sorry this has happened so quickly. You're a brave and strong lady, and I'm sure your courage and strength won't fail you now. We are all here, holding you in our arms, when you need us. xx
     
  4. Amy in the US

    Amy in the US Registered User

    Feb 28, 2015
    4,619
    USA
    Tre, you and David are in my thoughts. Remember we are always here.
     
  5. CeliaThePoet

    CeliaThePoet Registered User

    Dec 7, 2013
    614
    Buffalo, NY, USA
    Thinking of you in these strange hours. Hoping you're okay.
     
  6. disi

    disi Registered User

    You are in my prayers and thinking of you both with love. xx
     
  7. bemused1

    bemused1 Registered User

    Mar 4, 2012
    3,402
    Thinking of you both xxx
     
  8. tre

    tre Registered User

    Sep 23, 2008
    1,353
    Herts
    David has made it through the night. His elder son is flying in from Spain this morning and he younger son drove up yesterday. Hospice overnight nurse was really comforting but there is no cover tonight but I will manage.
    Thank you all for being there
    Tre
     
  9. jeany123

    jeany123 Registered User

    Mar 24, 2012
    19,036
    Durham
    I will be thinking of you today tre, Im pleased the hospice nurse was there during the night for you both,

    Jeany x
     
  10. pony-mad

    pony-mad Registered User

    May 23, 2014
    1,073
    Mid-Wales
    You are in my thoughts.
    Sending love and strength x


    Sent from my iPhone using Talking Point
     
  11. sleepless

    sleepless Registered User

    Feb 19, 2010
    3,223
    Female
    The Sweet North
    Tre, thank you for letting us know.
    Thinking of you. xx
     
  12. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    70,151
    Kent
    It`s good you have family support tre as well as the hospice at home care. I feel for you.
     
  13. stanleypj

    stanleypj Registered User

    Dec 8, 2011
    10,707
    North West
    Yes, glad you have family and professional support tre. Thinking of you both.
     
  14. Cat27

    Cat27 Volunteer Moderator

    Feb 27, 2015
    10,582
    Merseyside
    You are in my thoughts xx
     
  15. sleepless

    sleepless Registered User

    Feb 19, 2010
    3,223
    Female
    The Sweet North
    Thinking of you tre, and hoping that David is comfortable and peaceful. xx

    This message does not need a reply, tre.
    We are here, and so many of us have you in our thoughts.
     
  16. bemused1

    bemused1 Registered User

    Mar 4, 2012
    3,402
    Thank you for keeping us up to date.
    Thinking of you both, I hope tonight will pass smoothly.
     
  17. angecmc

    angecmc Registered User

    Dec 25, 2012
    2,108
    hertfordshire
    Thinking of you, hope tonight is ok xx

    Ange
     
  18. nannylondon

    nannylondon Registered User

    Apr 7, 2014
    2,475
    London
    Thinking of you Tre glad your sons will.be there to support you xxxx
     
  19. nellbelles

    nellbelles Volunteer Host

    Nov 6, 2008
    8,519
    leicester
    Wishing you all a peaceful night, love and hugs. x
     
  20. tre

    tre Registered User

    Sep 23, 2008
    1,353
    Herts
    David died at 5.22pm yesterday afternoon at home peacefully in bed . I was holding his hand and his two sons, sister and brother-in-law were also here with him.
    I cannot believe it has all happened so fast.
    David was registered as a tissue donor for the Queen Square Brain Bank for Neurological Disorders which he decided he wanted to do years back when he was first diagnosed. We both worked in medicinal research. He hoped, as do I , that although nothing could be done to make him better, that by doing this it may in some small way help the progress to better understanding and a cure or prevention of dementias in the future. This is David to the last-always wanting to do something for others. He was a very special and much loved man and I could not have found a more loving, faithful, generous and honest husband. The last words he said to me, a couple of days before he died were "I love you". He will leave an enormous empty hole in my life but I feel very lucky for the time we had together.
    Tre
     

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