Question Time for Carers

NotTooLate

Registered User
Jun 10, 2017
301
0
Alvechurch
toolate.blog
Hi @Sam Luvit

Although it is right for us all to keep mentally and physically active, it is not the panacea of dementia. No one knows why people develop dementia and without that knowledge then can be no solution.

Having said this, I do believe that there is a common thread and I think that the evidence suggest that it does have something to do with lifestyle, but this is impacted by underlying problems/damage to the brain. These are numerous, including such things as direct injury, illness, disease, drug related, depression, personal injury, genetic, blood flow, waste buildup in the brain, tumours, or cell degeneration due to age and the list goes on. I think diagnosing the underlying problems is paramount to dealing with any symptoms of dementia.

I think too often dementia is seen as a separate entirety, something that happens alone and is treated as such, or I should say not treated. If you don’t repair the hole in a bucket, it will continue to loose water, until it is all gone.

Thank you for the link. I’ve read this before, but it is like many papers, it goes around in circles, offering nothing and suggesting more research!

It basically sought to better understand whether seizures promote cognitive impairment and/or dementia, whether dementia causes seizures, or if common underlying pathophysiological mechanisms are responsible for both? It didn’t come up with any conclusions to help, other than there is possibility that all three are true.

Dementia is about the death of brain cells. The more brain cells that die, the more symptoms are evident. When you get to a point that there are not enough brain cells for the brain to function, rapid decline and death is the outcome. Scans do not prove dementia, they show where there once were brain cells. The brain becomes smaller by mass, because there are less brain cells, it does not really shrinkage. This follows your theory regarding fall, loss of loved one….

There have been cases where brains have been dissected and lot of brain damage has been evident, so the conclusion is that dementia, would have been obvious, but the donor had no signs of dementia prior death.

I agree with you about delaying dementia diagnosis, but I think that is simply because they are unable to do anything about it. However, I do worry about this, because while they will carry out blood, testing, scans and dementia related testing, all of which are taken to give a diagnosis, I don’t think enough is done on the person’s history. I have asked a few questions here and so far, from this very small sample, the majority of cases had an event in their life, before the first signs of dementia occurred.

As you state, the underlying medical conditions need to be addressed asap, before the dementia symptoms take over as the main and only concern.

I think most doctors are good at what they do, especially if they specialise. They should be aware of common traits, but they are looking at tick boxes. Tick enough and you have this, that, or the other…. maybe!? The more ticks the more the maybe bit is more likely! The problem comes when you don’t have enough ticks, or as in most cases, you have ticks all over the place!
What I have learnt so far, is people know. The patient suffering the symptoms of dementia, or the partner, or family member, or more often than not, all of them, that there is a problem. I would go further and say that people know the basic signs of dementia, to be able to say that is what you think it is! Unless a doctor can categorically state and show, that there is something else, they should listen and not keep putting it off. Trouble is, so many having problems, how would they cope? The number suffering dementia is growing, rapidly!

Keep up the cleaning! :rolleyes:
 

NotTooLate

Registered User
Jun 10, 2017
301
0
Alvechurch
toolate.blog
Hi @Agzy

The things you describe are more what I would think of as symptoms, in fact sound a lot like my own!

Was there any fall, illness, or depression that you can remember before these symptoms started to show?

Thanks for the link, sorry to say it didn’t work, but again, a big thank you for trying!

Stay safe and keep well!

Richard
 

NotTooLate

Registered User
Jun 10, 2017
301
0
Alvechurch
toolate.blog
Hi @Jan L

So, the problems could have gone back further and further. I think history is something not sought enough when looking into dementia. It seems to me that passed events and problems can have lasting consequences that show and cause problems in later life. These can be physical and/or mental problems. I would suggest any body that has concerns should go through their past and record all and every event that you can remember.

The eyesight loss is a strange one, but you would have thought the doctor could have given you something. This is where I get really ratty with a doctor, I cannot stand a shrug, a smile and that, ‘well I’m not really sure, but we can try this!’ I just ask for more! My parents’ would have been mortified by this.

It is easy for me to say, but regret, is best forgotten. It only serves to cause you pain. The pair of you seem to have been going through an horrendous time, but in 50 years there must have been so many good times. Pain seems too makes us forget so much.

As for rambling… I like the way you write… maybe a book is not a bad idea, but what will the theme be? Anything, but dementia… please! :oops:

Stay safe and keep well!

Richard
 

Agzy

Registered User
Nov 16, 2016
3,831
0
Moreton, Wirral. UK.
Hi @Agzy

The things you describe are more what I would think of as symptoms, in fact sound a lot like my own!

Was there any fall, illness, or depression that you can remember before these symptoms started to show?

Thanks for the link, sorry to say it didn’t work, but again, a big thank you for trying!

Stay safe and keep well!

Richard
Not depression but a couple of falls and head injuries but given all clear on scans
 

NotTooLate

Registered User
Jun 10, 2017
301
0
Alvechurch
toolate.blog
Hi @Agzy

Scans are not the be all and end all. It comes down to interpretation and that comes down to the expertise of the person looking at the scan and what they are looking for.

I not saying the fall was the cause, but I think there is always a cause.

Stay safe and keep well!

Richard
 

NotTooLate

Registered User
Jun 10, 2017
301
0
Alvechurch
toolate.blog
Seizure2
Fall6
Blow to the head4
Accident
loss of a loved one3
Illness1
Heart Attack3
Mental illness
Drugs issue
Drink issue
Depression5
None 4
Infection 1
Stroke3
Severe Pain1
nearly 88% of repossess noted events prior to the first signs, or symptoms of dementia.
 

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