I was asked the question today ' If there had been a Carers Information Pack available when my husband was first diagnosed what would I have wanted to know and how much '
There was literally no information available and certainly no one to talk to and that was 12 years ago.
I would however love to know what you all feel and what information should be available .Do you feel that we should be made more aware of the progression of the disease so that its not such a shock or should that information only be available as the disease progresses.
Pat
There was literally no information available and certainly no one to talk to and that was 12 years ago.
I would however love to know what you all feel and what information should be available .Do you feel that we should be made more aware of the progression of the disease so that its not such a shock or should that information only be available as the disease progresses.
Pat