• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

Question ABout Time and getting lost


Registered User
Jan 26, 2016
IFor those of you who reached the point of occasionally getting lost out walking or driving, how long has this gone one while you've still been able to either live alone (withorwithout help) or be left at home alone by spouse for hours or even a day or so? I'm trying to get idea of roughly range of time this stage of Alz might last. Any help with be appreciated.

The Chewtor

Registered User
Feb 6, 2016
Gillingham, Kent
Lost. NO. Just in the wrong place

Hi Bill, I cannot really be any help as only just beginning my own journey but Friday just gone was the first time I found myself at the wrong place and did not really know what to do. I have been very slowly going down hill for the last 7 years but it is noticeably getting faster over last 6 months. not been lost yet but just wanted to let you know have read your post and am now more aware of the potential problem so thanks



Registered User
Jun 27, 2012
My mother used to get lost while driving for more than 10 years. Then she stopped driving. I remember she showing me her city map and how she used it when lost.


Registered User
Apr 26, 2014
Dunstable, Bedfordshire
Hi Bill
I have mixed vascular dementia and Alzheimer's. I was diagnosed with vascular dementia about 2 years ago. Going blank and not knowing where I am was one of the first symptoms. I still get this. About every 2 weeks I have to show some kind person my medi tag who calls my wife.
Sorry this isn't more hopeful John