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QT4C Week 4 - Now this one is different!

NotTooLate

Registered User
Jun 10, 2017
301
Alvechurch
toolate.blog
Question Time For Carers

Last week's question didn't get many responses, so I thought I would give you something different.

As I’ve mentioned before, a lot of research is going into trying to diagnose dementia, before the signs and symptoms ever start to appear.

This Week’s Question

If someone was told, results showed that they would most likely develop dementia in later life,
what would you tell them to do now?


Stay Safe and Keep Well!
Richard
 

Littlebear

Registered User
Jan 6, 2017
92
Travel, travel & more travel! We were lucky we did a lot of travel pre-diagnosis & some after. The memories sustain me & the photos do sometimes jog memories for my OH. Occasionally when we're watching TV he'll recognise a place we've visited & that seems to give him immense pleasure.
 

Jaded'n'faded

Registered User
Jan 23, 2019
718
High Peak
If I were told that, I would spend all my money or more likely give it to my children rather than them just get what's left when I die having paid (maybe) for years of care.

I'd also set up an Advance Directive so everyone knew exactly what my wishes were when things got bad. I'd make my will and set up LPA.

Sorry if that's not what you wanted to hear.

However... you said 'likely to develop dementia' which is not the same thing as definitely. I have read your other threads and thought about commenting but haven't so far. Whilst I appreciate you are researching dementia and looking for answers, there has always been the problem that dementia can be happening (i.e. changes in the brain) many years before symptoms start to show. You also asked about possible triggers: in my mum's case, the first definite sign I had that something wasn't right was maybe 15 years before she showed other signs. We regularly met up in Manchester and on this occasion mum confused the two main stations and got off the train at the wrong one. She couldn't work out where she was, why I wasn't there or what had gone wrong, blaming the train. I was quite alarmed but it really was a one-off at that point. Gradually over the next few years I noticed small things but really didn't think anything of it. (Well, I did - I started researching dementia and knew years before anyone else that's what was happening. But family were in denial and mum never saw her GP.)

The point I really wanted to make here is that if I had told my mother my concerns she would have told me I was being ridiculous and I expect anyone who knew her would agree. The signs were so small at first. Everyone makes 'little mistakes' from time to time - I certainly do but I really wouldn't appreciate it if someone told me (a family member for example) every time I misremembered something or repeated myself that I might be getting dementia and should be doing something about it.

I'm not sure there are answers to some of your questions. I don't think dementia always has a direct cause, though certainly some things make it more likely or make it worse. In mum's case, a fall and bump on the head (not serious though it later caused a chronic sub-dural haematoma) caused huge changes and took her from living independently and being generally OK, to needing 24/7 care.

The biggest risk factor for getting dementia is being very old. Like all our other organs, the brain ages and doesn't work as well as it used to. Same with hearts, bones, muscles. Some things we can treat - a hip replacement for example. But we can't fix brains. (Yet.)

If children got dementia you can bet we would have a cure by now. But it happens (mostly) to old people and - call me an old cynic but I don't think the pharmaceutical companies are very interested in keeping old people with dementia alive for a few extra years. Being extra cynical today, I'd add that the entire population aren't interested either because we do not value old people...
 

Agzy

Registered User
Nov 16, 2016
1,359
Moreton, Wirral. UK.
Fulfil as many dreams as possible and take lots of photographs and make slideshows of them with memorable music and informative text description such as names and dates.
 

Lawson58

Registered User
Aug 1, 2014
2,165
Victoria, Australia
I would tell them to arrange everything to cover possible eventualities first and the go out and enjoy every day as if it were your last.

Number 1: Advanced Care Directive is essential so that my children know if and when to take particular actions if I am unable to make those decisions for myself.

Number 2: Make a will and set up LPAs.

Number 3: Make sure your children or whoever have certified copies of the above and all essential details of legalities like property, insurance and all that stuff.

Number 4: Enjoy yourself and use up all your money to do it if needed.