Is there any way to prevent fits of coughing and sneezing during or after eating and is there any known cause.
Is there any connection with the above and aspiration pneumonia.
Hi. I have noticed that mum (81) coughs a lot straight after eating and not at other times so she doesn't have a cold. Is this part of bvtFTD? Thank you.
Hi, my question is about the SALT team. They are there to provide a very vital service to struggling dementia patients and yet 2 months have passed and my poor grandmother has not been seen. The g.p first put her on a soft diet when the referral was first made middle of June and has now had to update this to puréed and still no visit! What can I do about hurrying this along? She is now struggling to swallow medication too but they’ve said it’ll be about 2 weeks from now. It’s not fair.
Just to add on to this question, what can the SALT team actually do?
Obviously Akiki thinks her grandmother is missing out by not seeing the SALT people but my wife's been seen by them twice and all they've ever done is the same as granny's GP, soft diet, then a pureed diet, thickened drinks and the like and as far as I can see all the people seen by them in the home get the same treatment.
So my question is, is there actually do beyond these obvious steps, medication, treatment of some sort...basically anything more than the obvious?
The GP has checked my wife for anything physical like tonsils (or whatever) and there's nothing physically wrong with her so what do the SALT team bring to the table (forgive the pun)?.
K
My Mum is the same, she says "I'm never hungry" and only eats something if put in front of her. She was diagnosed with vascular dementia 3-4 years ago. She has lost her ability to locate food in the fridge, prepare or heat food in the microwave, so even if she were feeling hungry, she wouldn't eat. She loves chopping up fruit, vegetables, e.g. carrots, and leaving them to stand in water and go off! Once a week she has Meals on Wheels, a home-made meal brought to her door, hurrah!My mum lives alone but seems to forget to eat or drink? I ring her in the morning and have to tell her to make a cup of tea? She says she isn't hungry. Does anyone else have this? She has always "watched her weight" and basically dieted all her life, so I'm not sure if it's the vascular dementia or just her choice? I'm weighing her to see if she's losing weight.
Mum keeps complaining of a "frog in her throat" and seems to constantly trying to clear it. She has no trouble eating or drinking. Diagnosed two years ago with vascular dementia. She also has underactive thyroid
My wife is always looking for something to eat - she doesn't eat a lot but often; seems within an hour of breakfast she wants lunch, it drives me crazy! She has gained weight, but denies this. Is this simply an effect of Alzheimer's?
My mum lives alone but seems to forget to eat or drink? I ring her in the morning and have to tell her to make a cup of tea? She says she isn't hungry. Does anyone else have this? She has always "watched her weight" and basically dieted all her life, so I'm not sure if it's the vascular dementia or just her choice? I'm weighing her to see if she's losing weight.
My mum lives alone but seems to forget to eat or drink? I ring her in the morning and have to tell her to make a cup of tea? She says she isn't hungry. Does anyone else have this? She has always "watched her weight" and basically dieted all her life, so I'm not sure if it's the vascular dementia or just her choice? I'm weighing her to see if she's losing weight.
My Mum lives on her own & has the same issues. She has a Meals on Wheels delivered once a week which is a Godsend, wish this was more often. I order from 'Cook' which specialises in frozen ready meals made with fresh ingredients as if from home. The meals are designed to be microwaved from frozen in 5 minutes My Mum loves them, and always has a jar of Mango chutney at hand in case she wants to add some extra flavour!Mum still lives on her own and seems fine making simple things like breakfast and sandwiches etc but cannot cook a hot meal. She finds the cooker and cooking instructions too difficult to follow.Any recommendations for services that deliver hot meals? If we can get her to agree to them !!
Hello
My Mum is in the later stages of dementia and has been on a pureed diet of late, but has now started to refuse, or maybe lost the ability to open her mouth. Trying to get anything into her is painstakingly slow... she has regular shots of 'procal', which obviously give her some nutrients, but I'm struggling at the mo... any help or suggestions welcome?
Hi Mark - sorry if I'm not posting as I should, I haven't used the forum previously. My mum has Parkinson's as well as dementia and I frequently find that she clamps her teeth together so that I can't get the spout of her drinking cup into her mouth or any food either. I was told it's a sort of primal reaction to not wanting to receive food and drink. Some days she has such a low amount of fluids. Any thoughts on how to encourage her to open her mouth would be very gratefully received. We try things like giving her fluids via ice cream but could really do with having a breakthrough on the closed teeth issue. Many thanks
Mum still lives on her own and seems fine making simple things like breakfast and sandwiches etc but cannot cook a hot meal. She finds the cooker and cooking instructions too difficult to follow.Any recommendations for services that deliver hot meals? If we can get her to agree to them !!
@Charie1 The same thing happened to my mum in the early stages. It was one of the reasons I asked for a care needs assessment from Social Services. They created a care package of three visits a day as well as respite care. The carers give meds , prepare microwaved meals and make sandwiches and drinks. (She was also unable to tell them what she would do if she was ill, as she didn't know how to ask for help)
My problem is the opposite of what most people seem to have, I can't stop my husband eating. Straight after a large meal he's asking if there's anything to eat. I tell him he's just eaten his dinner and he insists he's had nothing to eat. Even showing him his empty plate doesn't work. This has been going on for almost 3 months. Our GP has had blood tests done and everything is ok. She thinks he is just forgetting that he's eaten and suggested I write everything he's eaten down so he can read it. I've tried doing that but he still hunts for food. He's driving me mad looking for food all day, all the kitchen cupboards opening and shutting continuously I've even found him eating stock cubes!
He is 81 and was diagnosed 6 years ago with Alzheimer's/mixed but has never had a scan.
How to deal with swallowing tablets and drinking. Clearly need to drink to swallow tablets. Dad can drink (with thickening powder/fluid in his drinks) and can eat soft food but Dad can no longer do the two together with regard taking tablets. It has been like that now for about the last 2 weeks - although saying that he did manage to swallow two this morning OK. Most of the time we just crush them but dont have dr approval and know the tablets are not licenced in that form but it is either crush them or Dad doesn't take them at all. Any suggestions apart from speaking with the GP (unfortunately our GP not very good!).
My husband constantly complains that his food is either too sweet or too salty even though I no longer use any seasoning in his food and he no longer eats desserts. It's a constant battle to get him to drink fluids, half an inch of a small cup of tea is a result.
We've had this question from Jenny over email:
HI
My Mum has Alzeimers. She doesnt cook anymore and when I visit she has a fridge full of chocolate trifle jam tarts cakes.
In the cupboard there are mars bars, biscuits all things unhealthy and sweet. Her partner takes her shopping and this is what they both buy. He is type 1 diabetic and 84, and she is 73.
I am worried because she is putting on weight, doesnot go walking at all as has painful knee joints, and will add to problems later.
Is the sweet tooth normal in Alzeimers as she never used to have anything like this and would always eat healthily?
thank you
Jenny