Probe after man wrongly diagnosed with Alzheimer's disease
Alex Preston says he wants answers after being told he had the illness for seven years.
www.bbc.co.uk
Probe after man wrongly diagnosed with Alzheimer's disease
- Thread starter nitram
- Start date
Considering the fight that most of us have to go through to get a diagnosis - especially for early onset - the whole thing sounds extremely strange to me.
well...I cant believe seeing this here today. I had come on to ask the question.... 'Is it possible to get wrong diagnosis!' I am beginning to wonder if the person I am/was carer for really has dementia. Or certainly not at the level he had been suggesting. i am ata a loss and feel totally hoodwinked and taken for a mug
Ive been following your posts @silver'lantern . What makes you now think that he has been wrongly diagnosed?
really? you follow my posts .... thank you for showing an interest. at this stage i dont really want to go into full details so publicly. i was just looking through to see if there were any possibility. i am jut a bit deflated at the moment. but basically his sudden ability to go about everyday life now i have said i will no longer be his carer.
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It is quite sad for that poor man and doubly sad that his wife died before he was told it was a misdiagnosis. But unfortunately doctors do make mistakes, as everyone does. My uncle was told haemorrhoids were causing the blood in his stool. It was colon cancer and by the time he was correctly diagnosed, it was too late. The same thing happened to my FIL - he had had prostate cancer and when he complained of pains in his neck and back, he was told it was arthritis. Again, too late.
In an ideal world no one would make such mistakes. This is not an ideal world.
In an ideal world no one would make such mistakes. This is not an ideal world.
The particular unit where this man was diagnosed is nurse led. This is where I took my mum, the nurse does the tests and interviews, shows notes to doctor who prescribes……we never saw a doctor!
My husband was originally diagnosed with atypical Alzheimer’s on 8th July, 2014. In December last year he was considered by the consultant to be non diagnosed. I believe that my husband has some form of dementia and I have always thought that the consultant didn’t really know what was wrong in all the years he was treating him. He has had extensive testing twice, three years apart, by a highly qualified neuropsychologist and that revealed worsening cognitive defects.
I am quite miffed by the whole thing. I feel incredibly sorry for that poor man.
Was this the case in 2014? A lot can happen in 8 years.
The thing I find strangest is the way that he says that his life was curtailed because of the diagnosis. A diagnosis of dementia does not automatically mean that you cant do things - people with dementia can still pursue hobbies, go on holiday, drive and even work. It just depends on abilities. Why didnt the wife notice that he was not deteriorating?
I realise a lot can happen in 8 years, just wondered what latest CQC inspection said.
Maybe he appeared to be deteriorating and improved during the pandemic
But when the pandemic hit, he said he heard less from the hospital and was able to get on with life without having anyone around to reinforce this false diagnosis.
"Friends would ring me and say 'you seems like you're doing well' and I thought it was just them being nice," he said.
Also his medication appears to have had an adverse effect
"Since I've come off the medication I've become a completely different person - I now want answers."
Maybe he appeared to be deteriorating and improved during the pandemic
But when the pandemic hit, he said he heard less from the hospital and was able to get on with life without having anyone around to reinforce this false diagnosis.
"Friends would ring me and say 'you seems like you're doing well' and I thought it was just them being nice," he said.
Also his medication appears to have had an adverse effect
"Since I've come off the medication I've become a completely different person - I now want answers."
