Private brain scan today

Discussion in 'Memory concerns and seeking a diagnosis' started by El31, Jan 18, 2019.

  1. El31

    El31 Registered User

    May 21, 2018
    35
    My mum has booked herself a private brain scan today as doc recommended and she didn't want to wait. Do you had any idea if she will get results in same day or are they sent to gp?
     
  2. marionq

    marionq Registered User

    Apr 24, 2013
    5,226
    Female
    Scotland
    The people who do the scan don’t interpret it. They send it to the consultant or GP to talk it over with you.
     
  3. El31

    El31 Registered User

    May 21, 2018
    35
    Thank you
     
  4. El31

    El31 Registered User

    May 21, 2018
    35
    Apparently we will get results Monday or Tuesday from Gp
     
  5. SaraKate

    SaraKate Registered User

    Dec 29, 2018
    11
    Do post to let us know what the scan is like and how the report is given and how clear it is? My husband is due to see a neurologist and get a scan and I am worried that at the end of it all we wont have a clear diagnosis and, since he is denying anything is wrong, we'll be no further forward.
     
  6. El31

    El31 Registered User

    May 21, 2018
    35
    The MRI showed widespread mild small vessel damage, but apparently quite common for someone her age (69). The doctor has still referred her to the memory clinic though and I am hoping they will carry out more in depth investigations.
    My mum also says there is nothing wrong and thinks we are all mad but I just think if she could see and hear herself sometimes she would be mortified. I am happy that she is happy though and not worried, my uptight mum has turned in to a chilled out lady who eats chocolate and sweet things all day (something she would never have previously done)
    When is your husbands appointment and what are his symptoms if you don’t mind me asking
     
  7. karaokePete

    karaokePete Volunteer Host

    Jul 23, 2017
    4,087
    Male
    When my wife had an MRI scan done the results were the same as for your mum.

    A subsequent PET scan(more detailed than MRI) showed that damage plus brain wastage. It was the PET scan that brought the dementia diagnosis. The PET scan was done because the cognitive testing showed a greater problem than that which could be explained by the MRI result.

    I hope your mum will agree to the memory clinic visit and any subsequent investigations.
     
  8. El31

    El31 Registered User

    May 21, 2018
    35
    Yes she is agreeing to go and has said my dad can accompany her. I am worried dad won’t be completely honest but I have told him this is the best chance we have had so far to get a diagnosis so to be completely honest.
    Mums behaviour is getting more bizarre by the day, she told me 10 times in a row how she has a direct link to god because she was ill and she prayed and now she’s better. She is religious but she is obsessing over it. Mum also is obsessed with the drink schloer and tells me whenever I see her it’s her fave drink and dad joked that it had alcohol in it (mum doesn’t drink) and she just didn’t get that it was a joke when it clearly was. My dad has also had to take 2 days off work a month when they have my son as she just can’t cope and snaps at my son a lot. She also doesn’t cook good properly and my dad says most meat he gets is cold in the middle. I dread going round there as we just have nothing to talk about, it’s sad. I really hope they offer her a PET scan, was this done straight away or at next appointment ?
     
  9. El31

    El31 Registered User

    May 21, 2018
    35
    She also just stares sometimes and is very vacant. Sometimes I speak to her and she just doesn’t respond or changes the subject, she comes across really rude and I find it hard not to snap at her.
    I know I sound really mean but it’s very hard for me dealing with all these changes :(
     
  10. Kevinl

    Kevinl Registered User

    Aug 24, 2013
    4,627
    Salford
    I don't want to be pessimistic but my wife had an MRI scan, showed nothing, then another scan which I think was a PET scan, again nothing then finally a SPECT scan where you have to avoid contact with children for 24 hours after. Bottom line was a diagnosis of "early onset, mixed, atypical AZ" which tells you nothing.
    The consultant was happy to tell me that there appeared to be noting wrong on the scans while my wife was arguing with her own reflection in a window 6 feet away, nothing wrong with the scans maybe so it must be that reality is at fault.
    Diagnosing AZ isn't an exact science and even then it tells you nothing about what may or may not happen. People want to try and get certainty in an uncertain situation and maybe focusing on getting a diagnosis, if that's possible will only confirm the reality you're living with it won't point the way forward for you.
    Most likely is that if they diagnose AZ they'll discharge you back to GP care as there's nothing apart from medication that may help depending on the type, as you're going down the private route then be careful you can get back into the NHS system without all the tests having to be repeated as the NHS seems to be "resilient" to third party information or tests.
    K
     
  11. canary

    canary Registered User

    Feb 25, 2014
    8,198
    Female
    South coast
    @El31 - I would recommend that before you see anyone about your mums memory, that you write a letter outlining all your concerns: the eating of sweet things, the obsessing over Schloer, the religious obsessions/delusions, the inability to cook properly and any inappropriate social responses. Then send in the letter beforehand, or discretely pass it to a nurse when you come for the appointment.
     
  12. jugglingmum

    jugglingmum Registered User

    Jan 5, 2014
    4,646
    Female
    Chester
    I agree with KevinI - my mum's scan they said normal age related shrinkage, and didn't show any thing else. They didn't do any further scans, from reading TP these only seem to be done for those who are younger when symptoms start, my mother was 84 at diagnosis. She also did very well on the tests, scoring at a level at which indicated no issue whatsoever 27 out of 30.

    However by this stage with hindsight she had clearly not been right for 3 years, probably needed intervention to be kept safe for 18 months before the crisis, with odd little incidents going back 5 to 7 years.

    The diagnosis of Alz was made purely on the observations by brother provided to the nurse and consultant, and how she presented to the nurse who visited her on 2 separate occasions at my brother's house. Things like being unable to explain why she had turned her electricity off, and saying it was because they were stealing it, but then changing her story, were fairly clear indications that things weren't right to GP and memory clinic nurse.

    As canary recommends take a letter detailing everything and hand it over separately.

    From GP visit to diagnosis took 3 to 4 months, much of this with hindsight was spacing out times of nurse seeing her to see if her symptoms were stable or not, which I think is to eliminate other things and also to determine the type of dementia.

    To some extent the brain scan is more to rule out other issues than confirm dementia.

    If it is Alzheimers then medication is available, if it is deemed another type then no specific medication is available, although many PWD benefit from anxiety and depression medication as these symptoms are quite common.

    Sadly it is then a case of managing symptoms and behaviours, both for the benefit of the PWD and any immediate carers, such as your dad, who is clearly having to support your mum, and deal with her obsessions.

    My mum was diagnosed formally 5 years ago, and is still classified as in early stages, although there has been a slow deterioration in the 5 years.
     
  13. El31

    El31 Registered User

    May 21, 2018
    35
    Yes she doesn’t want me going with her, only dad. She thinks I am only pushing her for tests because of the job I do (adult social worker) but it’s not.. maybe I am more aware and brave to say something though.. I am the only girl and the boys will talk about her and worry but don’t say anything and my dad just wants a quiet life.
    I am going to ring the memory clinic in the next week or so and see if I can write a letter to them outlining my concerns.
    Thank you



     
  14. El31

    El31 Registered User

    May 21, 2018
    35
    Thanks for your reply Kevin.
    I’m really sorry to hear about your wife.
    I understand that another Scan might not show anything up, as apparently dementia needs to be quite advanced before it does show up. I would say mum has had symptoms for the past 4 years so this is still in the very early stages.
    Part of me wonders if I actually want a diagnosis , well I know for myself and the rest of the family I do because we are all getting annoyed at the changes so I guess if it was dementia we would have more patience, but at the same time I don’t want my mum to be upset if she’s diagnosed. I do actually wonder if she would believe the diagnosis. My mum only went private for the MRI, we are nhs for memory clinic



    QUOTE="Kevinl, post: 1611917, member: 38752"]I don't want to be pessimistic but my wife had an MRI scan, showed nothing, then another scan which I think was a PET scan, again nothing then finally a SPECT scan where you have to avoid contact with children for 24 hours after. Bottom line was a diagnosis of "early onset, mixed, atypical AZ" which tells you nothing.
    The consultant was happy to tell me that there appeared to be noting wrong on the scans while my wife was arguing with her own reflection in a window 6 feet away, nothing wrong with the scans maybe so it must be that reality is at fault.
    Diagnosing AZ isn't an exact science and even then it tells you nothing about what may or may not happen. People want to try and get certainty in an uncertain situation and maybe focusing on getting a diagnosis, if that's possible will only confirm the reality you're living with it won't point the way forward for you.
    Most likely is that if they diagnose AZ they'll discharge you back to GP care as there's nothing apart from medication that may help depending on the type, as you're going down the private route then be careful you can get back into the NHS system without all the tests having to be repeated as the NHS seems to be "resilient" to third party information or tests.
    K[/QUOTE]
     

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