Hello everyone - I'm new to the site.
My mother was diagnosed and placed into care 10 years ago now and we can no longer fund her care.
She has houses, which I have now started to sell - however I am still trying to get some state funding under the Continuing Health Care act. I have an appointment for an assessment in October, however the Home Manager keeps saying that in my mums case the disease has progressed with 'predictability' which seems to be a word used to suggest we won't be able to receive any continuing care funding. I understand her Social needs comes under the fact she is doubly incontinent, cannot feed herself, bath herself, see, hear or any of these things, but apparently that is not enough. I need to have evidence that she has had an infection or needs medical intervention of some kind. Over the last ten years we've paid over £400,000 privately for her care. The Public Guardian Office and Court of Protection have done nothing to help, just drain our resources and time, and I have very little faith in the state. I wish my mum had died with grace and dignity intact - but she didn't. I hate myself for saying that.
I'd love to know if there is anyone else currently trying to get Continuing Health Care. I originally made my claim before September 2013, so hope to put in a back dated claim and recoup some of our costs, it would be great to have a dialogue with others in the same situation.
Any help would be greatly appreciated. We all need support while our parents live in this condition.
Mariella
My mother was diagnosed and placed into care 10 years ago now and we can no longer fund her care.
She has houses, which I have now started to sell - however I am still trying to get some state funding under the Continuing Health Care act. I have an appointment for an assessment in October, however the Home Manager keeps saying that in my mums case the disease has progressed with 'predictability' which seems to be a word used to suggest we won't be able to receive any continuing care funding. I understand her Social needs comes under the fact she is doubly incontinent, cannot feed herself, bath herself, see, hear or any of these things, but apparently that is not enough. I need to have evidence that she has had an infection or needs medical intervention of some kind. Over the last ten years we've paid over £400,000 privately for her care. The Public Guardian Office and Court of Protection have done nothing to help, just drain our resources and time, and I have very little faith in the state. I wish my mum had died with grace and dignity intact - but she didn't. I hate myself for saying that.
I'd love to know if there is anyone else currently trying to get Continuing Health Care. I originally made my claim before September 2013, so hope to put in a back dated claim and recoup some of our costs, it would be great to have a dialogue with others in the same situation.
Any help would be greatly appreciated. We all need support while our parents live in this condition.
Mariella