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Poor thing...

Carabosse

Registered User
Jan 10, 2013
1,699
0
I have just come back from seeing my mum, and she isn't well. As soon as i went into her room in the respite place i could hear the crepitations and though oh no not another chest infection as she has just finished AB's a day ago for the last one. This was different her ankles were swollen and it never dawned on me this was cardiac, all my training went out the window all i could see was another chest infection, anyway, to cut a long story short mum has fluid on both lungs, now i am beginning to worry as she has been in cardiac failure a few times and i don't like seeing her suffering like that.
I took the souvenaid (got it yesterday) over for them to give mum, had to call my Dr to fax over permission for her to be given it!
 

Carabosse

Registered User
Jan 10, 2013
1,699
0
Thanks, i called over about 5 mins ago, she is a bit settled but still having breathing problems which will make her confused and tired, they will start the new dose of medication tomorrow, i just hope she doesn't go into cardiac failure.
 

turbo

Registered User
Aug 1, 2007
3,852
0
Hello Carabosse, what a worrying situation. I hope you have better news about your mum soon.


turbo
 

Carabosse

Registered User
Jan 10, 2013
1,699
0
Thanks, but at the moment i'm on tender hooks waiting for the phone to go saying mum has deteriorated and has been taken to hospital in cardiac failure, and her hooked up to the monitors and drips (not nice to see). I feel so helpless that i can't do anything to help her, when i was over she was wanting to come home (she will be in a few days, i hope).
 

jeany123

Registered User
Mar 24, 2012
19,035
0
71
Durham
Sorry about your mum I am thinking of you both and hope it won't be as bad as you imagine ,

Jeany x
 

Carabosse

Registered User
Jan 10, 2013
1,699
0
Thanks everyone, appreciate it.
I got a phone call this morning saying mum wasn't good, and that the respite place had phoned MedDocs for advice. The nurse also said that she would look in on mum again soon and if she wasn't happy she would call them back, so that was ok put my mobile back down and tried to go back to sleep, obviously that wasn't going to happen with my mind racing thinking they should be doing this, or that. I called them back asking if she should maybe be in hospital hooked up to a cardiac monitor and an iv drip and some oxygen, but i know if the fluid comes off to quick her BP will go through the floor, the nurse (who was on the phone to me at the time) looked in on mum and said she was sleeping, but if she gets worse she will either call the MedDocs or if she has to will dial 999.
Have just called over to see how mum is, they say she is still sleeping and they don't want to disturb her as she didn't have a good night. The nurse said she noticed i asked if she could be admitted to hospital, i said yes as going by what happened last time mum might be better there, anyway, she is due to see the Dr when she arrives and will see what they say. The thing that is troubling me is that if the Drs say no and she is treated at the respite place if she deteriorates will they try and do what they can or just make her comfortable, as i have said she has been through this before and come through it, hence the reason i want them to do everything (i think the nurse knows that but can't be sure). I think i might give my own Dr a call and see what he says?
 

Carabosse

Registered User
Jan 10, 2013
1,699
0
Update... mum is due to come home in a few days, but the nurse says she isn't fit and we want to extent respite for a week or two, whats wrong with that? The SW has said mum either comes home or is admitted to hospital as they won't extend her respite, she is in CF for christs sake, moving her could kill her..... what the hell do i do?
 

leslee

Registered User
Oct 9, 2009
275
0
Tyne and Wear
I'm going to tell my Mam's useless nurse and SW that I'm contacting Mam's local councillor and MP. I'm also thinking of dropping the name of our local paper into the conversation. The only good it'll do me is to put the fear of god into the incompetent prats. But it may make them sit up and listen in you case. Put everything in writing and tell them that you'll hold them personally responsible if your Mam deteriorates as a result of their decisions.
 

Carabosse

Registered User
Jan 10, 2013
1,699
0
I might just do that... Its the SW dept thats the problem the respite place and nurses there are great, no problems there....I was thinking of calling my solicitor in the morning and see about a court order, but maybe thats going too far?
 

leslee

Registered User
Oct 9, 2009
275
0
Tyne and Wear
I might just do that... Its the SW dept thats the problem the respite place and nurses there are great, no problems there....I was thinking of calling my solicitor in the morning and see about a court order, but maybe thats going too far?

I'd try anything. A solicitor's letter might do the trick.

Hope you get sorted. It's like our parents are just names on a list to them, not real people.
 

Carabosse

Registered User
Jan 10, 2013
1,699
0
I know, so much for trying to keep people in their own homes as long as possible, the SW dept here seem to be adamant she needs to be in a home, even though i'm more that willing to look after mum they don't seem to hear that, or rather they don't want to.
All i can say is thanks to them i have been in tears most of the evening and have a migraine!
 

jasmineflower

Registered User
Aug 27, 2012
335
0
Hi Carabosse

I found this on a NHS website. I don't know whether any of this wording would strengthen your case:

The NHS has a duty to fund a range of services including:

rehabilitation and palliative (relieving but not curing) care;
in-patient care under specialist supervision in a hospital or nursing home for people who need it because:
they have complex or intensive health care needs
they need to use specialist health care equipment under the supervision of specialist NHS staff;
they have a rapidly degenerating or unstable condition requiring specialist medical or nursing supervision.
respite care, particularly for people:
who have complex or intensive health care needs and require specialist nursing or medial supervision or assessment during respite care;

who could benefit from active rehabilitation;
receiving palliative care in their own homes but who are in need of respite.

I'm no expert, but might be worth a shot.
Jenny
 

Carabosse

Registered User
Jan 10, 2013
1,699
0
I will try anything, i have been looking at the Adults with Incapacity (Scotland) Act 2000 where it states that:
'..all decisions on behalf of the person with impaired capacity must take into account the views of others with an interest in the welfare of the adult'
So i suppose that means the SW dept must take into account the views of the medical staff who say mum is unwell to go home just now. I called the helpline for Alzheimer Scotlaand who said its down the medical staff who have the final say, but they weren't too sure.
I suppose i better call my solicitor in the morning for clarification.