Please read: Talking Point updates

Discussion in 'Welcome and how to use Dementia Talking Point' started by KatherineW, Jul 15, 2013.

  1. Saffie

    Saffie Registered User

    Mar 26, 2011
    22,501
    Female
    Near Southampton
    I'm in a quandry as I'm not sure where to post about a worry I have.
    a)It is to do with medication but not medication for dementia specifically.
    b) If I post under the title of My partner has dementia, others who might be able to help won't see it. Previously I would just have posted under the support forum.
    c) Loo's and my thread is in the Tea room and I don't feel there's much point posting it there. It isn't visited often as it is.
    d)He was described as having 'severe' dementia by the hospital when he went into a home over 2 years ago but I don't know what stage he is at because he has vascular dementia. So by severe, I assume later stage but he's not dying and my query could apply to other stages too.
    I keep looking up and down the list of forums and just want an answer but where do I put it! In the meantime, I have been awake most of the night worrying! Guess I'll just have to take a stab at a forum!
     
  2. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,442
    Female
    Dundee
  3. nitram

    nitram Registered User

    Apr 6, 2011
    18,929
    Male
    North Manchester
    "...I'm in a quandary as I'm not sure where to post about a worry I have..."

    If you wish to start a thread and you think the subject is relavant to multiple forums you can choose one forum for the post and then post a link to that post in the other forum(s).

    To avoid fragmentation all responses should be made to the post and not the link.
    Instead of just posting a link you could post:-

    See <link>
    Please respond in forum containing post
     
  4. Saffie

    Saffie Registered User

    Mar 26, 2011
    22,501
    Female
    Near Southampton
    Thanks Izzy and nitram. I've been looking at the threads in the different forums for guidance. The 'Later stage' seems to be very much more actual approaching end of life so was going for the 'Middle stage' of dementia forum but see a thread there about someone who hasn't even been diagnosed yet! How on earth is that 'middle stage' ?! Even more confusing!
     
  5. nitram

    nitram Registered User

    Apr 6, 2011
    18,929
    Male
    North Manchester
    "...was going for the 'Middle stage' of dementia forum but see a thread there about someone who hasn't even been diagnosed yet! How on earth is that 'middle stage' ?! Even more confusing!..."

    Education by mod action required?
     
  6. Noorza

    Noorza Registered User

    Jun 8, 2012
    6,570

    That's the thing with dementia, Mum had all of the symptoms, was probably in mid stages but refused to let the Memory man see her because he mentioned the possibility of Alzheimers and Dementia on his first assessment.

    He couldn't diagnose as she only saw him once, but she was doing things like screaming her chops off in a hospital ward causing upset to the other patients.

    So there we were with all of the symptoms, all of the chaos but no diagnosis at all though it was as plain as the nose on your face.
     
  7. Saffie

    Saffie Registered User

    Mar 26, 2011
    22,501
    Female
    Near Southampton
    #67 Saffie, Jul 24, 2013
    Last edited: Jul 24, 2013
    Not the one to which I was referring! but then, who am I to judge ? What might seem early to some might seem middle to others and so on. Tthat's the problem . I can understand that the very end stage should be separate and probabaly Just diagnosed but really think the rest should be together under one heading.

    Anyway, I've decided to keep to the familiar and have posted on my usual thread - well, Loo's and mine of course!
     
  8. sue38

    sue38 Registered User

    Mar 6, 2007
    10,856
    Wigan, Lancs
    It's wherever you feel most comfortable posting Saffie. If you post in one forum, and then think it would be better in another forum, the mods will be happy to move it for you.

    I'm not sure if this will be the case, although time will tell. Like many people I tend to click on Most Recent Posts and don't search by forum. If I see a question, say about medication, that I think I can help with or have experience of I wouldn't hesitate to post no matter which forum it's in.
     
  9. I've only just found my way here. When I followed my bookmark to TP, I got to my usual board to find large black message saying "FORUM CLOSING SOON", with a message about using "one of the new forums, as appropriate", but no indication what they were or how to find them. I managed not to notice the very discreet little box labelled "Announcement", which refers to "talking point updates". I looked to see if there was a Sticky message announcing changes: no.

    Please put a sticky message, to help those of us who don't notice the very discreet little announcement box. I posted a message asking about the closing, but it was moved to a board where it doesn't seem the least bit useful.

    And talking about Stickies: there aren't any at the top of "I care for a person with dementia". Surely the existing stickies from the old main board should be copied over there? I'm particularly interested in the fate of the list of abbreviations I've nurtured over the years (though less so recently, I confess), as I think it's useful for carers (and probably for the users of other boards).

    Haven't yet explored the other changes, though I don't spend a lot of time browsing the boards at present: Mother is amazingly stable (12 years on Aricept!), and life goes on in its weird and stressful way. Pam
     
  10. Saffie

    Saffie Registered User

    Mar 26, 2011
    22,501
    Female
    Near Southampton
    Thanks Sue. Yes, I go to Recent Posts too but I've been surprised by the number of people who say they don't so just wanted opinions of others. I scan up from the earliest Recent posts to the newest, posting when it seems appropriate to do so. Takes me ages and so I have to limit myself or i'd be here all day! I've been here most of the morning already!
     
  11. Margaret938

    Margaret938 Registered User

    This is what I have been doing Jeany, mainly because I was not sure of what else to do, and it works for me.
    Margaret
     
  12. stanleypj

    stanleypj Registered User

    Dec 8, 2011
    10,650
    North West
    Personally, I think it is a great pity that we've lost the concept of 'support for people with dementia and their carers'. The inclusiveness of that title and some of the threads was so refreshing in a world where the 'them' and 'us' approach is ubiquitous.

    I hope some way might be found to regularly remind all members of the reality that some members are people with dementia and that they are able and willing to share their experience and wisdom with us.
     
  13. limafoxtrot

    limafoxtrot Registered User

    Aug 7, 2011
    288
    Uk Expat
    I always used to go to the forum I was interested in, mainly I nearly always 'support for people with dementia and their carers'.

    Lima
     
  14. Kathphlox

    Kathphlox Registered User

    Dec 16, 2009
    1,091
    Bolton
    I have to agree Stanley.. it's not a good concept, but we will struggle on regardless ;)
     
  15. KatherineW

    KatherineW Volunteer Moderator

    Oct 2, 2007
    12,655
    London
    Hi Stanley

    Thanks for your comments. I agree that having people with dementia and their carers posting in the same areas of the forum can be immensely valuable, and we'd never want to lose this.

    Several of the sub-forums in Support from other members (as well as most of the other areas of TP - e.g. 'Information and Resources' and the Tea Room) are still aimed at both people with dementia and their carers, for example:

    • Younger people with dementia and their carers
    • Lesbian and gay people with dementia and their carers
    • Memory concerns and seeking a diagnosis
    • Recently diagnosed
    • Mid-stages of dementia: support and care
    I hope this helps.

    Best wishes,
     
  16. limafoxtrot

    limafoxtrot Registered User

    Aug 7, 2011
    288
    Uk Expat
    #76 limafoxtrot, Jul 27, 2013
    Last edited: Jul 27, 2013
    Funnily enough Stanley, the forum still with the most people viewing with at the moment (61 people) even though its in "archive" & closing soon is 'support for people with dementia and their carers'.

    Lima
     
  17. Robstick

    Robstick Registered User

    May 4, 2013
    67
    To Admins re threads

    Hi

    Will current threads on "CLOSING SOON: Support for people with dementia and their carers" be moved to other forums when this forum is closed?
     
  18. jenniferpa

    jenniferpa Volunteer Moderator

    Jun 27, 2006
    39,433
    Hi there. Yes, active threads will be moved. In fact quite a lot have already been moved. Threads that are not currently active will not be moved by default, but a member can ask that the thread is moved and we will move it.

    For more details see here http://forum.alzheimers.org.uk/showthread.php?59561-Please-read-Talking-Point-updates
     
  19. Robstick

    Robstick Registered User

    May 4, 2013
    67
    Thanks for your help :D
     
  20. lin1

    lin1 Registered User

    Jan 14, 2010
    9,322
    Female
    East Kent
    Hi
    I have just spotted something, which I think could be improved

    when I click on, my contacts and inbox, in the drop down box it says inbox, thats fine but to check if you have any new messages,unless you have signed up to be notified while on TP, you actually have to go into your inbox to see if their are any new messages

    before the changes
    you didnt have to go into your inbox, if I recall correctly, when the cursor hovered over messages or whatever it was called , (sorry to be so vague) you were informed whether or not their were any new messages, without having to go into your inbox
     

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