Please could someone explain what anti-psychotic medication does?

CollegeGirl

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Jan 19, 2011
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... what anti-psychotic medication does? What is it used for in dementia patients?

Is it something that might calm down my mam's aggression and violence? I'm just a little confused - for a change! :eek:
 

Butter

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Jan 19, 2012
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Yes it might help in calming. I think it is prescribed for all sorts of symptoms - sometimes it is over-prescribed. But sometimes it is a solution.
 

Nebiroth

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Aug 20, 2006
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Anti-psychotics are used for a number of mental health problems. They are named because they are used to treat "psychosis" which is a blanket term and derives from Greek "psyche" (mind) and "osis" (abnormality)

Unfortunately, the name has connotations of the axe-wielding maniacs in horror movies but this is inaccurate.

Anti-psychotics are also known as neuroleptics or sometimes major tranquilisers (this separates them from the more familiar "tranquilisers" such as valium)

These drugs are used to treat a wide variety of symptoms, including hallucinations, delusions, paranoia, disordered thoughts. They are also useful in reducing anxiety and aggression.

They are suitable for long term use, since they cause far less problems of tolerance and dependence than drugs like valium do.
 

garnuft

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Sep 7, 2012
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For fairness I feel I must be mention that anti-psychotic drugs have a number of side-effects. In my opinion, I would measure the severity of the problem and weigh it against the contra-indications of the drug. One 'problem' can be solved only to create another. The chemicals of the brain are still a new science, it's trial and error. I err to the 'not-going-down-that-path' side, until more data is accumulated. Just my opinion.
 

stressed51

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Jan 3, 2012
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Anti psychotics

Hi collegegirl
Anti psychotics do get a bad press, but if it means you can have someone at home for a bit longer than surely they're worth it.They have helped with my OH delusions, paranoia,aggresion and anxiety. Anything that helps someone stop being scared and thinking everyone is plotting against them, stealing all their money and having affairs with up to 10 people at the same time (sometimes more!) Better for them and for their loved ones all round I'd say
 

garnuft

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Sep 7, 2012
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But, it is better for the nurses, doctors, carers than it is for the person? Is it easier for us to perceive that 'they' are being helped? I appreciate it's intolerable to live with a psychotic person. Better social care is the answer. I just question the reason, given that it is acknowledged that they accelerate Alzheimers, can cause sudden death, shorten life-expectancy....I wonder...are we curing 'our' pain as viewers/participants and not the affliction? Just my opinion.
 

BeckyJan

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Nov 28, 2005
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You may find this information useful. It is generally considered that there can be side effects particularly if used for more than 12 weeks. However my husband was on a mild does of Quetiapine for almost 3 years and he had no serious problems but it did help his anxiety (which in turn caused lots of falls and disorientation).

There have been campaigns to seriously reduce the number of prescriptions for anti psychotics and in some cases other treatments can be successful.

They helped us considerably but I do believe the prescription should not be automatic and needs to be reviewed regularly.
 

jan.s

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Sep 20, 2011
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Hi CollegeGirl
My husband has been on Risperidone for just a few weeks now, and it has really helped him. He is much calmer and more accepting of how things are - in my eyes he seems happier and settled. He is on a very low dose, and i would not agree to anything stronger. I don't want to see him dulled down, but just calmer and more relaxed.

I was very suspicious of these drugs before, thinking of them as chemical coshes, but the low dose seems to ave a good effect.

Hope this helps.
 

CollegeGirl

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Jan 19, 2011
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Hi everyone and thank you for your clarifications - all comments, both for and against, are very welcome because I know nothing at all about these meds.

I fully admit I'm trying to make my dad's life (as carer) more tolerable. My mam's aggression and violence towards him is getting worse daily and he keeps saying he wishes there was a magic pill that would calm her down. She's already on sedatives but these don't calm her aggression, they just make her sleepy at various times. He doesn't want to increase these - he doesn't want mam to become a zombie, he just wants her to stop fighting him. He's happy to do everything for her if she would only accept him doing it.

I think I'll let him know what you've all said, and see if he wishes to talk it over with mam's consultant. The problem is, he's not being fully open to the professionals because he thinks they'll section her again. This is something i've just found out.

Just remembered the link that BeckyJan posted, so just off to look at that.

Thanks again everyone, much appreciated.
 

Chemmy

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Nov 7, 2011
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But, it is better for the nurses, doctors, carers than it is for the person? Is it easier for us to perceive that 'they' are being helped? I appreciate it's intolerable to live with a psychotic person. Better social care is the answer. I just question the reason, given that it is acknowledged that they accelerate Alzheimers, can cause sudden death, shorten life-expectancy....I wonder...are we curing 'our' pain as viewers/participants and not the affliction? Just my opinion.

I'm curious what you mean by 'better social care'? Carers (professionals and relatives) have rights too and the right not to be physically assaulted or generally bullied is one of them.

My mum was on anti-psychotics for a while back in 2004 -2006 and she's still around today, a much more mellow soul. But back then, I felt that her life would be better if she was not viewed with apprehension and perhaps distaste by the care staff (she did take a swing at one of them). It's not easy to like someone who is unpleasant and paranoid, especially if you haven't known them long. She was my much-loved mother but I didn't like her very much back them either.

And what would have been the sense in her sitting there (or stalking the corridors), day after day, brooding and unhappy? I wouldn't want that for myself.

Personally, I'd rather be helped to sleep my way through any aggressive stage and if I didn't come out the other side, so be it.
 

Nebiroth

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Aug 20, 2006
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I think it's important to note that whilst there can be side-effects, there are very often not, or where there are, they are mild and can often be dealt with by adjusting the type of drug used or the dosage. Obviously there are cases where the treatment turns out to be unsuitable - either not giving the required benefit, or producing intolerable side-effects. But this is actually rare. Death as a side-effect is exceptionally rare - malignant serotonin syndrome is lethal if it is not detected and treated but it is very unusual and recognisable (and anti-psychotics are avoided if someone has Lewy Body Dementia, as the syndrome is a much higher risk in such patients). There is a slight but currently unknow increased risk for stroke in patients with dementia - but the risk is small to start with - so even a risk doubled (which it isn't) is a small one if it starts at less than 1% anyway.

It's true that the brain remains a mysterious organ. However, medicine is full of long established, safe and effective treatment where no one knows the exact way they work. What the drugs do is very well known even though the precise functioning of the brain is not.

I strongly feel there is a place for these drugs if appropriately used. Most of the horror stories involve their inappropriate use - usually in a care home situation with residents heavily drugged into passive or sedated states for convenience.

I do not agree that the only answer is "better social care". Carers, professional and otherwise, have rights too. It is impossible to live with someone who is highly paranoid, delusional or agressive. It not only renders a very poor quality of life for the carers, it does the same for the caree as well. You do not have a quality of life where you are plagued with constant paranoid beliefs or frightening hallucinations, spend all your time in a state of anxiety or end up lashing out at everyone around you. You are miserable, you make those around miserable, you make it impossible for them to provide the needed care. These drugs can make the difference between remaining at home or going into a secure care facility because you become a danger to yourself or those around you. The former option is surely the better for everyone.
 

garnuft

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Sep 7, 2012
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I don't know what I mean by better social care Chemmy. I can see from all the answers that these drugs do 'improve' the lives of the person with the condition and those around them. I suppose I feel sad that not enough is being done to stop the deterioration rather just handling the symptoms as it ravages it's way through a person. If it were children there would be massive funds handed to it, specialist carers receiving a good wage and having status, more input than a bloomin memory clinic appointment, scan and left to get on with it, waiting from the next stage. I suppose I should shut up on this topic as I don't know enough about it and if my Mam becomes aggressive and distressed, there's a good chance I'll grasp onto them like a life raft. I just wish there were more options. Youi'll be pleased to know I will shut me mouth on this subject from now on.
 

CollegeGirl

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Jan 19, 2011
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Ooops, didn't mean to start a debate/argument!

Please don't anyone feel that they can't voice their opinion.

Personally I feel that better social care isn't THE answer, but nevertheless it is very desirable in an ideal world. I think ALL options should be available to EVERYONE, easily without having to fight, so that the right solution can be found for every individual circumstance. I think that would be called Utopia. :rolleyes:

In my parents' case, I don't think it would help because dad suffers whenever they are alone together, so it would only be if and when mam were to go into a home that his life in this respect would improve. However, the aggression may well be then directed towards the professional carers, and that would also be unacceptable.

So I wondered if anti-psychotics would help. Dad wants to improve mam's life and his own. He doesn't want mam to be drugged up to the eyeballs, in a fug or catatonic, or anything else drastic like that. He just wants them to be able to live together amiably with no nastiness, aggression or violence. I think that's a basic human right for both of them. It can't do mam any good to be in this frame of mind, it must be awful for her. After a period of violence, she sometimes apologises but she doesn't know what she's apologising for because she can't remember, but this must be quite frightening for her so then she gets agitated about it and it all starts again. It's not good for either of them.

Thanks for everyone's input!
 
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zigandzag

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Mar 24, 2012
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Hi College Girl - my mum is still sectioned - she has been in the unit for 9 weeks now. My mum was very very anxious and verbally and physically agressive which is why she ended up being sectioned. It really was a nightmare for us all.

She was also paranoid too.

I cried buckets when I walked out of the unit as I thought I had lost her to the system for good.

The hospital prescribed her anti-psychotic drugs (low dose) and the change in her behaviour has been staggering. She is much much calmer in herself, the agression and anxiety has gone. Like you I was worried that she was going to turn into a zombie but she hasn't.

Don't get me wrong she is still not well - but I can tell that she is calmer and happier in herself. She has only been on them for a few weeks so we haven't experienced any side effects yet - and I pray that none will appear.

Personally speaking I knew what Dementia was but I just thought if affected the memory - I didn't (at first) know what other symptons there were to this dreadful disease.

I wrote a 5 page letter to the hospital explaining everything that my mum was doing/saying and they recognised the symptons and prescribed the drugs.

I know we are not out of the woods for sure - but I am grateful (for now) that this part of the illness is under control (for now).

I know I cant stop this disease eating away at my mum but my aim is to improve her quality of life and being calmer (without being a zombie) has to be good for her and me and my dad.

Why dont you print off all the comments on here and show them to your dad?

We are now preparing for my mum to come home - without these drugs that was never ever going to happen.

Sending you and your dad best wishes x
 

CollegeGirl

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Jan 19, 2011
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Thank you Z&Z, that's so very helpful, thanks for sharing your positive experience, I'm so glad it's worked for you and your mum and dad. I hope all goes well with her coming home. This is all we're wishing for, a peaceful(ish) life. xx
 

Shash7677

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Sep 15, 2012
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Hi Collegegirl,

What has been prescribed? Is it risperodone or something like Halaperidol? Both are anti psychotics.

I'm a googler, I'd look at all the side effects, the pro's and the CPN's and clarify exactly why these are being used and not something like lorazepam. I won't say diazepam due to the dependency factors.

My mums psychiatrist has always said that anti psychotics are not a long term treatment but in my opinion if the help and the benefits outweigh the risks then why shouldn't they be used.

Sharon
 

stanleypj

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Dec 8, 2011
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I think the Society's fact-sheet that BeckyJan posted a link to sounds authoritative and sensible. Reading it makes you realise that prescribing ant-psychotics for people with dementia would never be the easy solution that might be imagined.
 

CollegeGirl

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Jan 19, 2011
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North East England
Hi Sharon - mam's not on any of these sorts of drugs at the moment. It's just something that I wondered might help and dad is going to talk about it to the consultant when he can get an appointment.

Hi Stanley - I read the fact sheet, and the possible side effects do sound very worrying and daunting. I'm sure it's not something the consultant would prescribe lightly, and it isn't something I'd consider an easy solution, I agree. But I just wanted my dad to be aware that there are such medications available - it may be that they're totally unsuitable for my mam, in which case we wouldn't want them to be prescribed. But then again, just maybe they would be suitable and it might help dad to keep mam at home for longer in a reasonable environment for them both, which is what he desperately wants. We really have no idea until he chats about it to the consultant.

Thanks again everyone for your thoughts - it's very much appreciated!
 

stanleypj

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Dec 8, 2011
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North West
You're obviously approaching this with due caution CollegeGirl. But not all specialists have done in the past as the factsheet makes clear.

And even this year the NHS Information Centre published the results of an audit of prescriptions of antipsychotic drugs by GP practices in England showing that' there was strong regional variation, with rates of prescribing of antipsychotic drugs up to six times higher in some areas than in others. This indicating the need for ongoing local action to ensure that everyone's prescription for antipsychotic drugs is reviewed so that only those people with dementia who benefit are kept on antipsychotics.' This policy sounds very obvious, but clearly isn't being followed everywhere.
 

jan.s

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Sep 20, 2011
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I have to say, I had to fight to get anything prescribed for my husband. I had always been against such medication, because I saw it as a chemical cosh. Having seen how much better he is with the new meds, I would never hesitate. I know his care was poor before, but he is like a new man; he's not held back by the stresses he was clearly under. It must be so difficult to make sense of a world when you cannot understand it, but then to have hallucinations "interfering" in you life as well, I think I too would be fighting them.

The consultant held out as long as he could, which I do appreciate, but eventually we agreed that it was in R's best interests. As I have said before he is in a very low dose, but it's just enough to keep him calm. It makes his life better and mine too, because he is so much happier when I see him.

Jan x