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Pip form

Raest

New member
Jan 15, 2022
3
0
My husband of 56 was diagnosed with Alzheimer’s this week. He has logopenic asphasia and we are to complete the Pip form tomorrow. Does anyone have a tips on the best way to do this. Also he had to stop driving as initially it was thought he had auto encephalitis but his consultant thinks he could drive with an assessment. We declared dementia to Dvla in November (neurologist advised us at that point. Sorry for all the questions
 

RosettaT

Registered User
Sep 9, 2018
694
0
Mid Lincs
Hi There, welcome to DTP.

I don't know bout PIP but Age UK helped us with filling in the Attendance Allowance form.
Did the DVLA withdraw his licence or did he just give up driving?
If the DVLA withdrew it, contact them and request an assessment, my OH contested his licence removal but it took 8 months for him to get the assessment and that was before Covid.
 

Long journey ahead

Registered User
Mar 28, 2020
132
0
Hi Raest, my advise completing the PIP firm is to explain in as much detail as you can the help he needs to do daily tasks. You need to concentrate on a bad day. Example being. Getting out of bed! Break it right down. What physicall help he needs and does he need encouraged.
it's upsetting don't it like this because it will bring it raw to you .
I would also apply to be his appointee so you can speak for him when you contact them.
good luck
 

Sarasa

Volunteer Host
Apr 13, 2018
4,147
0
Hi @Raest and welcome to Dementia Talking Point. This is a very friendly and supportive place and you'll get lots of help and advice here.
I'm sure others that have had to fill in the PIP form will be along shortly with advice as to the best way of filling it out, as it is something I have no familiarity with.
I wonder if the Rare Dementia Support would also be a useful place information and support.
 

Raest

New member
Jan 15, 2022
3
0
Thank you, DVLA didn’t withdraw it, but consultant thinks we can book an assessment ourselves and I have spoken to a company and they can do from March. As we have declared dementia to DVLA we don’t know if he is allowed to drive. I know they have such a backlog and I worry by the time we get it moving he will have declined further
 

canary

Registered User
Feb 25, 2014
16,684
0
South coast
I would get someone to help you fill it in - Age UK or CAB - as it is very, very easy to downplay the problems that he is having and also these organisation know the right phraseology to use when filling it in. You need to fill it in as if it were the very worst day from hell. I also found that OH didnt fit neatly into the different "boxes" and I was at a loss how to fill it in. Age UK are particularly helpful and will help people aged 55 or over.

If you get turned down - do appeal.
 

Long journey ahead

Registered User
Mar 28, 2020
132
0
I would get someone to help you fill it in - Age UK or CAB - as it is very, very easy to downplay the problems that he is having and also these organisation know the right phraseology to use when filling it in. You need to fill it in as if it were the very worst day from hell. I also found that OH didnt fit neatly into the different "boxes" and I was at a loss how to fill it in. Age UK are particularly helpful and will help people aged 55 or over.

If you get turned down - do appeal.
It also helps if you send copies of any medical procedures and therapies he has and a list of prescription from gp.
 

LynneMcV

Volunteer Moderator
May 9, 2012
4,165
0
south-east London
When I applied for PIP for my late husband the main advice I followed was to describe how things were on his worst days.

It is also important to repeat information on different pages where appropriate. I was told that the pages are separated so don't assume that the people reading the application know what has been written in every section - they only see information for the section they are reading - and I found that some information was relevant to more than one section.

I cobbled together as much of my husband's medical notes as I could to back up what I was saying - and gave permission for them to approach his GP if further proof was needed.

The important thing is that any information has to be directly about your husband's specific needs. That sounds obvious I know, but one assessor told me that some people send in general information sheets about dementia to back up their applications but that these are not taken into account - only information that can be verified as applying specifically to the applicant is assessed.

Good luck and I hope you receive a successful result.
 

jennifer1967

Registered User
Mar 15, 2020
7,780
0
Southampton
we had a nurse phoned to discuss my needs after the form was filled in and sent so she could write a report for the assessment who was very nice and helpful. i did mine with welfare rights man at city council. he also did my husbands attendance allowance as well.