1. sharpy

    sharpy Registered User

    Feb 10, 2015
    14
    My mum has lewy body dementia and parkinsons is a major part of it. My mum is very shaky and her balance is not great, she has fallen over at home. The parkinsons side seems much worse than the confusion and forgetfulness side of the dementia. My dad who cares for her is thinking of moving to sheltered housing sooner rather than later. He thinks it will be easier in the long run as there will be help on hand if needed especially if he needed to pop out he would know that mum is ok. Its hard for my dad aswell as my mum, everytime i see him he looks tired and bedraggled but there are people around him who love him and mum including me. Sorry to ramble on.
     
  2. henfenywfach

    henfenywfach Registered User

    May 23, 2013
    332
    rct
    Hi!. My dad has lewy body dementia..and has the tremors and lack of balance and blood pressure dropping etc..it can change from minute to minute..i can confirm that.
    Im my dads carer as hes my mums carer..his moods and abilities change continously..he also has the hallucinations delusions.sleep disorder..sight perceptions seriously affected as in cant see 3d or bus stops doors tables etc..

    If you havent read the factsheet on it i would suggest you do it will help.
    My dads memory and abilities side is affected enough to cause him considerable issues...but i still take him to groups ..choir craft pottery etc run by the alzheimers society.

    I would say that when considering a new home that sight perceptions and sufficient care will be required...in most situations...not just supported care mainly because the dlb includes alzheimers symptoms and parkinsonian symptoms...its progressive .and even if your mum is not needing daily nursing care..the probability is that she will...get the social services assessments now...so that your prepared...
    Sorry for being blunt obviously every persons journey is different...
    I would suggest doing dementia friends session...and keep typing...i find it a great help..fair play to your dad hes thinking ahead ..i take my hat off to him...my mum will never accept my dads needing care other than family...so i afraid it ll be crisis point for us in the future..
    Best wishes


    Sent from my GT-I9505 using Talking Point mobile app
     
  3. nicoise

    nicoise Registered User

    Jun 29, 2010
    1,806
    If your Dad can find a place that is on one level and ground floor, with easy access for a physically challenged person, along with the "sheltered" aspects for peace of mind and possibly company for him as well as your Mum, that sounds like a really good idea.

    My PD and LBD mum wouldn't move from her three storey town house; she got a stair lift, and a ramp to the front door, but there were still steps to negotiate, and she became a prisoner in her own home pretty much.
     
  4. stanleypj

    stanleypj Registered User

    Dec 8, 2011
    10,675
    North West
    A very difficult situation - as if dementia wasn't bad enough. Is your mum on any medication for the Parkinson's symptoms?
     
  5. sharpy

    sharpy Registered User

    Feb 10, 2015
    14
    Yes my mum is on medication for her parkinsons and she is regularly seen by the specialist doctors. She has been prescribed new medication which will help her parkinson symptoms more than before hopefully.
     

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