1. patsy56

    patsy56 Registered User

    Jan 14, 2015
    839
    Fife Scotland
    Thank you I just want to cry
     
  2. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,789
    Female
    Dundee
    Sometimes that's just what we have to do Patsy. You know you'll always get support here.
     
  3. patsy56

    patsy56 Registered User

    Jan 14, 2015
    839
    Fife Scotland
    I know I am so glad I found you all, as I said in my very 1st post I realise I am no longer alone.
     
  4. Daddygee

    Daddygee Registered User

    Jan 12, 2015
    20
    West Sussex
    Hi Jessica
    My wife has had parkinsons for 13 years and developed dementia 3 years ago she is under the care of a neurologist and a memory psychologist.They put her on a drug called Rivastigmine in tablet form which made her ill like your husband,they stopped the tablets and replaced it with a transdermal patch which is replaced every 24 hours ,the patches have been very successful with no side effects.I hope this helps.
     
  5. patsy56

    patsy56 Registered User

    Jan 14, 2015
    839
    Fife Scotland
    I'm wondering if B's Parkinson's has now gone further, he follows me about, watching, and if he thinks of something it gets blown all out of proportion. EG we had the boiler serviced and now because he has gritty eyes and a runny nose he thinks it is broken, (I will call Monday just to make sure) but he forgets that every spring he gets pollen fever with the rape flowers and the fruit trees.

    My Q? is could he be heading for full blown dementia.
     
  6. nicoise

    nicoise Registered User

    Jun 29, 2010
    1,806
    My mum had Parkinson's, diagnosed for 7 years before she showed signs of Lewy Body Dementia, for which she was prescribed Exelon (Rivastigmine).

    The trouble with the medication for Parkinson's is that in itself can cause symptoms which are similar to that of Parkinson's, or even dementia. So it becomes difficult to differentiate between the problems caused by the disease - PD or dementia - or the medications.

    Unfortunately both progress degeneratively, but as to what level and how quickly it is difficult to predict.

    I found with my mum that her symptoms and abilities fluctuated - by the week, day or hour at times. I could never guarantee how any day would go, or what to expect.

    There does seem to be a common theme with any dementia that infections of any type, and however mild, can cause havoc with confusion and abilities. If you are noticing a sudden change in your husband, it might be worth seeing if you can have him tested for perhaps a urinary infection (common with PD due to the issues with bladder emptying etc anyway). Does your husband see a neurologist, or have a Parkinson's Nurse Specialist, for his PD? It might be worth trying to get an appointment to get his medication reviewed, or at least to be able to report these downturns and talk it over with someone qualified who might be able to help.
     
  7. patsy56

    patsy56 Registered User

    Jan 14, 2015
    839
    Fife Scotland
    We have an appointment july and yes he has good days and bad, but I can't say anything as I am bad cop.
     
  8. patsy56

    patsy56 Registered User

    Jan 14, 2015
    839
    Fife Scotland
    I have called gas board as he is getting snuffly and I am getting gritty eyes so maybe he is right
     
  9. patsy56

    patsy56 Registered User

    Jan 14, 2015
    839
    Fife Scotland
    turned out the house was too hot and I ad a cold coming on, we turned heating down and everything fine now.
     
  10. patsy56

    patsy56 Registered User

    Jan 14, 2015
    839
    Fife Scotland
    hello, just need a hugg and some reassurance here. B as you know has Parkinson's and has difficulty swallowing. He wasn't the reason I joined her it was mum. But in recent weeks B seems to be becoming a little more forgetful and has been awfully clingy. He has been getting in my way when I try to do things, and well I know he i strying to help but he is pushing me too hard. I am beginning to wonder if he is "sundowning" as when I get home from work he follows me about ( I work 10-3 now because of him) and I have little me time these days. I know that when I mention something about mum he just looks blank, not sure if he wonders if I am nagging. Also now and again he comes out with a comment that makes me think I am always the wrong one. Wondering is he in denial and how do I get him checked without any arguements.
     
  11. canary

    canary Registered User

    Feb 25, 2014
    10,719
    Female
    South coast
    When he next goes for a Parkinsons appointment (if he hasnt got one then make one) write a letter and give it to the receptionist when you book in and ask for the letter to go on the front of his records so that the doctor can see it. You can get dementia associated with Parkinsons so the doctor will have come across it before and will know how to deal with it, or who to refer to.
     
  12. patsy56

    patsy56 Registered User

    Jan 14, 2015
    839
    Fife Scotland
    We have an appointment in July, I will see what she says but it is difficult as at hospital and the doc there has the files. I don't want to write as it will show up. I also have the heart nurse with him later in july will see what she says from seeing him last year. But thank you canary
     
  13. patsy56

    patsy56 Registered User

    Jan 14, 2015
    839
    Fife Scotland
    OH is on Sinnemet Plus, but I need to see his doctor next month
     
  14. patsy56

    patsy56 Registered User

    Jan 14, 2015
    839
    Fife Scotland
    Hi, we have just come back from the Parkinson's clinic , it was ok, but at last or should I say thank goodness. OH just said to me "I think I have dementia."

    I don't know whether to laugh or cry, but at least he has admitted someting else is wrong with him.

    Now I will wait until it either gets worse or he wishes to see doc. But as they say with alcoholics, once you admit there is something wrong then that is the start.


    Thank you for reading.
     
  15. Daddygee

    Daddygee Registered User

    Jan 12, 2015
    20
    West Sussex
    Hello Jessica,
    My wife has had Parkinsons for 14 years and developed Dementia just over 3 years ago she was prescribed Rivastigmine in tablet form which gave her sickness and diarrohea the doctor changed the tablets for a transdermal patch of the same dose once every 24 hours and she is doing well with no side effects she has been on the patches for about 2 years.
    God Bless
     
  16. patsy56

    patsy56 Registered User

    Jan 14, 2015
    839
    Fife Scotland
    sitting here crying. We went to the doc yesterday re his depression and lack of appetite, the doc gave him Mirtazapine, he slept well last night but today he is just so sleepy, and light headed.

    Not sure what to do. I know it is an antidepressant but it can take time to kick in but he is so down today.

    Sorry I think I'd better go.
     
  17. canary

    canary Registered User

    Feb 25, 2014
    10,719
    Female
    South coast
    ((((hugs)))) patsy. Hang on in there.
    Anti-Ds often make you feel worse the first week you take them and then they can take 2 - 4 weeks before you start to see the affects.
     
  18. patsy56

    patsy56 Registered User

    Jan 14, 2015
    839
    Fife Scotland
    I don't think I can wait 2-4 weeks...............
     
  19. canary

    canary Registered User

    Feb 25, 2014
    10,719
    Female
    South coast
    Do you need to contact SS for emergency respite?.......
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.