Hi can anyone enlighten me on their experiences with the affects of paracetamol and lewy body dementia. I have read some forums on this sight regarding an article some time ago in the 'daily telegraph' and it appears it was discovered by accident that it controls anxiety and aggression in Alzheimer's. The person I am currently caring for (I will not release any personal details, in respect of the 'data protection act' and the individual) has lewy body dementia and recently has had so much arthritic pain the doctor has prescribed liquid paracetamol but there has been a sudden change in the persons pattern, and the affect of the paracetamol appears to suddenly drain all energy from the person, almost like being intoxicated, and more confused making cognitive ability, and response very poor, and the person lethargic roughly a 50% drop in cognition. I am not sure at this point but it would appear also the persons hallucinations have increased and sleep pattern more disrupted.
I am new at this sight as of today, I am a carer studying dementia.
Can anyone share or help me with this?
I look forward to reading your reply's.
Hi!
I care for my dad and he has dementia with lewybodies.
Pain is something that we have been battling with for many months.
Firstly as long as we remember that people with dementia still feel pain is important. You'd be suprised what some people think!
I recall somewhere reading about paracetamol. I be learned never to believe what I read instantly..and to for my own opinions and do my own research.
I'm always mindful that no two persons dementia journey is alike therefore the chances the likely hood of a pain killer affecting lots of people in the same way.
For us paracetamol didn't help my dad's pain and to be honest couldn't accurately say whether his pain killers affected his cognitive or lucidity as he has tias.
Cocodamols on the other hand with part codeine in had a real affect On making him light headed and zonked him on occasions. It was weighing up whether the pain outweighed the risk factors.
This no longer helped the pain.. (I was very concerned that my dad s dealing and feeling pain were made worse as he comprehends and judges things through his emotional side of his brain the amygdala. (See dementia friends sessions ).
Our gp didn't seem to be able to comprehend that and continued to prescribe 8 tramadols a day. This took him elsewhere and still pain wasn't completely gone.!
The consultant psychiatrist said that this wasn't recommended!
Hallelujah sense!
Sorry I know the message wasn't about all other meds but I didn't want others to go through what we have.
Pain for us is reactive and we treat with our logic to sort the emotions we are feeling. With most dementias they cant!!
When my dad's occupied and enjoying doing something he's more oblivious to his pain and reacts less emotionally to it. If his mood is lower he's distressed when in pain.
Look at the situation around the pain
I'm not medically trained and only talking about my dad. But after 7yrs of being his carer I've studied as much as I can to help him.
Best wishes