We haven't got to that stage yet, but it's not going to be long I don't think. Worst of it is, that everyone keeps talking about social services and what they offer - well how about a call back for me!
I have just watched the programme.It only tells us what we already know and have seen and read before.
The mystery to me is why no one has formed a group to fight this wicked system.
Individuals have fought it why not a united front?
I don't mean an existing body like AS but a group set up and self funding by the members.
I know one answer is to use your vote at election time but that does not work.
Anybody know why a protest group has never been formed,or has it?
Yes I did eventually get funding for Dad after a long fight but unfortunatley he entered the NH end June and then was in and out of hospital and died 24th August.
Dad was granted 3 months FF NHS Care and that was only given on the account that he had caught MRSA in hospital and they told us it would be reviewed again in September when he would quite possibly lose it as he became "stable & Predictable" .
Thanks Helena for updating the link. I'm just reading through it.
Perhaps I'm being a bit thick, but I still find I have trouble distinguishing the difference between 'health care' and 'social care'. If I was in, say, a traffic accident and was unconscious for a while, I would still need to be fed and the 'other end' dealt with. I would still need to be washed. Are these all deemed to be 'social care'? However, I would need someone to do them for me because the accident, the 'health issue', would prevent me doing them for myself. And, of course, if you're in hospital after an accident, I can't recall anyone being asked to 'pay', or be assessed to see if they aught to pay, for being fed, watered, washed.
So ....... someone with dementia needs to be supervised, fed, washed, etc ........ but it is the disease that has caused this need ....... so why isn't it a health issue? The need for someone else to do these things is a consequence of the disease....... a health issue ........ a health need!
Also, having started to read the consultation document, I notice that on page 7, point 9, it says:
This Framework does not apply to individuals who are detained under the Mental Health Act 1983,
and who are the responsibility of the NHS under the provisions of this Act.
How is this not a 'get out clause'? I don't mean to be flippant, but the consequences of dementia ........ the aggressiveness, mental incapacity etc .......... seem like a candidate for classification under this Act???
........ and then the NHS pays for everything????
There is obviously something missing in my line of thought......... but it makes my blood boil to think of all the many thousands of people who have paid into this country for so many years ......... and when they need help they get treated terribly.
Hi Connie and Helena,
I don't post much .......but I read lots of everyone else's posts. I empathise with all of you as I saw so much of what you are actively coping with when my father in law was alive; he died in 2001. My Dad is still very much at the early stages; those who don't know him would probably not notice much wrong.
Nevertheless, this social care / health care distinction is still a total nonsense. It's the health problem that results in someone's daily needs having to be done by someone else. And my heart goes out to you Connie ...... I hope you enjoyed your friend's birthday.
I guess having our loved ones sectioned would be the answer ....... by the so-and-sos KNOW we wouldn't do that ......... got us by the short and curlies??
I feel a torrent of letters coming on .......... (but I also need to go to bed!!!!)
Seems to me you are better off if you do not own property or have savings.
Before she went into hospital my mums income was £208 per week,got full housing and council tax benefit and paid only £2.86 per week rent. My MIL who had some savings recieved only £68 per week and paid the full £76 per week rent on her bungalow meaning she lived off her savings for most of her elder years whereas if she had spent the money, gone on holidays, had a good time she would have had a similar income to my mum. Why do people scrimp and save and then seem to be penalised for doing so ?
( actually up until 12 months previously my mum had only been getting the basic state pension as I never realised she had never claimed all the benefits she was entitled to as many many elderly people do not.)
My brother and I considered buying mums 4 bedroom council house for her a few years ago but thankfully had the foresight to predict this situation as any value that might have been materialised would just have been eaten up by her care home costs.
My mum was admitted to a lovely care home last year where her fees are paid for by Social Services. She was placed in a nearly new care home only a few miles from where she had lived for 50 years we . It was reccomended to us by SS and we couldn't find anything better.My mum lived in a council house so had no property to sell and very few savings, her place was approved almost immediately.
After she left hospital and went to the care home her social worker asked me why I hadn't asked for respite care. I've said this on this forum before, quite simply I didn't know I could. If she'd had any resources we would have had to pay, if she didn't we wouldn't. Its all so unfair as owning a house doesn't mean you have any money.
I guess we 4 children could have financed her care but then what do we all pay 40% tax and huge NI contributions for !
My mum was assessed as needing nursing care because of her physical ailments but she could have managed all of that if not for her dementia. This health / social care division is truly maddening and virtually meaningless.
There is an employers campaign going on at the moment to allow tax credits for carers a bit like how they do now for parents. It would at least be a start to recognise the unpaid caring that saves government millions of pound every year.
The new national proposals for assessing NHS Continuing care are also out for consultation.
As much as you might love someone, caring 24/7 is a huge burden that often causes carers health to suffer. I looked after my mum for years before she went into hospital all through my own cancer treatment and chemotherapy but I could not have afforded to give up work to become her full time carer and even if I could there comes a time when you have to acknowledge that you would never be able to do everything that needs doing. Having my own family to care for as well probably stopped me.
Some days having mum in a care home feels like a failure other times I remind myself that it is a blessed relief. I can go and visit my mum now and put some effort into cheering her up without feeling worn down by all the physical caring.
I think respite care should be freely available in order to support carers without whom the NHS and Social services would be unworkable.
To anyone currently living the 24/7 keep posting, the humour and resourcefulness of people on TP never ceases to amaze and amuse me ( sorry for rambling, but I like to keep up with TP while I idle away my lunch break. Tssk time to idle now there's a luxury)
I find it totally and utterly despicable that someone like my Mother 90 who struggled to do 3 jobs in the 50s because she was left alone with 2 children and there was NO SOCIAL SECURITY ........she scrimped and scraped and has done all her life ..........managed to buy a tiny bungalow on a mortgage in 1968 and now faces having it all ripped away in care home fees
She paid the same tax and NI on a very low wage probably just the same as your Mother
If the care home does not rip it away that nasty mean minded Gordon Brown sure will in Inheritance tax
Tony Blair in his speech in 1997 stated
" I do not want my children to live in a country where the elderly are robbed of their homes to pay for care "