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Online study investigating dementia and its impact on Black families


New member
Nov 29, 2021
Researchers at King’s College London are seeking participants for an online study investigating dementia and its impact on Black families.

The study aims to find out:
  • How family carers of people with dementia from Black communities perceive or make sense of dementia in a relative.
  • How this relates to their wellbeing, if at all.
This is an important area of research given the numbers of people from Black communities who are affected by dementia but also have less access to specialist support. We know very little about how family carers from these communities perceive and experience dementia, but research suggests that they are more likely to be isolated from mainstream services.

Who can participate?
  • Adults from a Black* ethnic minority background who provide care or support to a family member or close other with dementia.
* in accordance with government recording categories on ethnicity, in this study, Black ethnicity refers to those that describe themselves as being Black African, Caribbean, British or of any other Black (including mixed Black) background.

What is involved?

The study involves completing one online survey about your understanding of dementia, your wellbeing and your coping styles. You will also be asked to provide some background information about yourself and the person you care for (such as your age, gender, ethnicity and relationship to the person with dementia).

The survey should take approximately 50-60 minutes to complete.

Participant payment

All participants will be offered a £10 voucher for their time.

How to take part

To take part, click the link below:


For more information about the study, please contact: tanisha.de_souza@kcl.ac.uk


  • Research poster_290392_v2.1.pdf
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