Online research survey for carers and those living with dementia

[Countryboy]

Just a quick note to say that @Mloughnane has permission to post re their research.

Hi Izzy over past years I have taken part in several dementia studies and took part in one at the beginning of this month via phone call with a person doing a PDH at a medical college and would help with this study but I’m always cautious probably paranoid about downloading any links to computer I note your comment saying Mloughnane has permission.

Obviously can answerer questions here on TP but note confident to do that through the link
Countryboy

 

[Mloughnane]

Thank you to everyone who has taken part in our survey, we really appreciate your effort and time. Also thank you to everyone on here who has been sharing their experiences. I really value the opportunity to hear from you all. We are still looking for more people to participate in the survey. If you get a chance, take a look at the description and see if it seems right for you and your situation. Thank you!

 

[Mloughnane]

Hi Izzy over past years I have taken part in several dementia studies and took part in one at the beginning of this month via phone call with a person doing a PDH at a medical college and would help with this study but I’m always cautious probably paranoid about downloading any links to computer I note your comment saying Mloughnane has permission.

Obviously can answerer questions here on TP but note confident to do that through the link
Countryboy

Hello, just wanted to help with this if I can. There is a link in the original post, which will redirect those interested to the study description and the survey itself. There is nothing that needs to be downloaded, and the link is affiliated with our University and Qualtrics (survey) software which is fully protected and has ethical approval. Hope this helps!

 

[Mloughnane]

Hi Everyone,

As a part of my PhD dissertation, I am running a voluntary and anonymous survey to collect information from persons living with dementia and their carers regarding their experiences with the speech-language related management of dementia. Responses will help us gather information on the current clinical environment and practices with persons living with dementia as well as the barriers and facilitators they may face to the speech-language related management of dementia.

We are asking that those interested please consider completing this survey and also pass on this survey to others who fit the following criteria:
Individual living with dementia

• Individual currently living with dementia
• Have received formal dementia diagnosis from a GP, dementia specialist, or other licensed professional
• Currently reside in the U.K.

Informal Carer

• Currently provide or have previously provided care to the individual living with dementia (e.g., helping with appointments, finances, medicine, any kind of daily activities, etc.)
• Unpaid for caregiving services
• Have/had regular contact with person living with dementia during time of care (more than once per typical week)
• Currently live in the U.K.

We estimate that this survey will take about 45-60 minutes to complete. It is made up of two sections, one to be completed by the person living with dementia, and one to be completed by the informal caregiver. The questions include multiple choice, multiple answer, and fill-in the blank options. All responses will remain anonymous. This study has received ethical approval from Indiana University.

Please see the link below for direct access to the survey as well as additional information:

https://iu.co1.qualtrics.com/jfe/form/SV_eW0sa817OH7UZj7

I am happy to answer any questions you may have or discuss any of this further.

Thank you so much for your time and consideration of our research!

Megan

We are still looking for more people to participate! Thank you to everyone who has taken part in our survey so far, we really appreciate your effort and time. Also thank you to everyone on here who has been sharing their experiences. I really value the opportunity to hear from you all. Thank you!

 

[Mloughnane]

We are almost finished collecting responses for our survey! If you have a few minutes we would really appreciate hearing from as many people as possible. Also, if you had started the survey but not finished it at any point, you can click the same link in the original post and it will take you directly to where you left off. Thank you to everyone who shared their experiences with us!