For info, there was a similar petition earlier this year and the government posted a lengthy response which stated that the needs of carers will be considered within the (continually delayed) Green Paper: https://petition.parliament.uk/petitions/234864

 

@Cazzita I don't know why they can ignore it - but it feels to me like it hasn't reached a tipping point yet - that moment when something becomes too big to be ignored. We need to keep plugging MPs and campaigning, but maybe we need more too. Direct action maybe?? Like fathers4justice, or extinction rebellion....

 

Signed

 

Are you entitled to carers

Actually someone caring for PWD in their own homes are working 24/7. If someone was working those hours in a care home they would say it was illegal but we are expected to it! I don’t even get carers allowance, it’s beyond disgusting!

 

The council tax that I pay is the best part of 1 weeks payment of carers allowance,and yes the hours are long,maybe it's a good job that I haven't got the time to leave the house to spend the money that I haven't got.

 

Yes, let's we do need a rebellion but with PWDs to look after, that would be hard. We need to think of something original

 

I feel your pain and anger, it is SO disgusting that they can treat carers like this. A damn disgrace and I hate the political parties for ignoring us

 

This makes me want to cry It's all so unfair x

 

Yes, no wonder they are appalled and one fine day it may happen to them too. Fantastic response!

 

This petition is losing pace! We all need to rally are friends & family! If there’s anyone you can think of get them to sign it! Don’t think someone else is doing it for you please be active! Without the necessary 100,000 signatures it will never see the light of day and nothing will change! How about adding the link to every message you respond too?

 

A long with that a lot of people that aren't carers haven't got a clue how stressful and tiring it can be,I have a friend that visits my home to see me and mum that I look after and he laughed and said"You've got a really hard life here haven't you"insinuating that, I had it easy and all that I had to do was sit with my mum and watch tv,as that's what we did when he visisted in that snap shot of time.
I know he wouldn't last a week doing what I do,he lives alone and is self absorbed and hasn't ever had to consider anyone else,I had to bite my tongue when he said that.

 

@witts1973 I bumped into a girl I used to work with and she said 'How lovely it must be to get paid to look after your dad instead of having to go to work' She doesn't know how lucky she was not to walk away with a black eye and a fat lip.

 

Paid ....
what a joke...
slave labour if the carers allowances are anything to go by!
I’m spitting for you!!!

xx

 

Spoke to Anne Marie Morris on my doorstep who is doing a parliamentary paper onDementia - suggest emailing her with our experiences. Politics aside something has to change & quickly!

 

Signed

if we all wrote about our experiences to
www.annemariemorris.co.uk
Who is writing a paper on dementia & care needs. Maybe all our voices might be heard. As healthcare is her “thing”
I’m going to try anyway

 

Signed (not sure if too late)

 

That about sums it up,some people think it's one big jolly and they must think I'm loaded as I'm not seen out and about spending money,they don't realise that you still have to pay your own way on very limited resources,I'm scared to look at my bank balance and only do so when each home care bill has to be paid as I have to log on to my account to get to mums money

 

Oh yes I know all abut that. 24/7 with dad and that is 38 p an hour carers allowance and if I get a couple of days off it's not a lot more but hey ho I don't need to buy things like new clothes because I am not going anywhere to wear them. Flashy holidays, I really don't have the time.